Hemochromatosis Support Group

Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.

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Gastrointestinal System
/ Hemochromatosis Support Group

hemochromatosis

deleted_user
deleted_user
Hi Group!
A new member (Mizzou?) mentioned being treated with something called "Exjade". Does anyone know what this is and/or how it works?
Judy B.
deleted_user
deleted_user
I was oked by insurance today to recieve,it is for iron overload from blood transfusions.Going to try for hemoch.Google EXJADE,made by NOVARTIS.
deleted_user
deleted_user
Mizzou's condition is temporary. Chances are the drug would have too many long term affects to be of any use to us. At least, that's the rhetoric they gave me when I asked about chelation.

Thanks for making that distinction Mizzou:)
Sue
deleted_user
deleted_user
Thanks, Sue. I didn't think we had missed anything . . .
By the way, You're daughter IS a big girl. And she's responsible for herself. But I know it's still hard to see your kids make mistakes . . .
Judy B.
deleted_user
deleted_user
Thanks Judy:)
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