Since my diagnosis of HH a few months ago it seems my health has been deteriorating quite rapidly. I have had numerous phlebs and now my ferritin is down to 125 at the last lab test. My hematologist ordered an MRI and my organs appear ok. I have been diagnosed with Perifial Neuropothy (Taking 1200 mg of Neurontin daily) Policythemia Secondary and now HH in the last year or so. Weakness in my arms and now legs is getting worse. Joint pain in my hands is constant and I may be using a cane soon if I can grip it. Thank goodness I am a young 62 and am very fortunate to be retired through the military and SS. I count my blessings there. I don't know what the months ahead may bring as far as my condition worsening but I know that I am more fortunate than so many others. As Chesty knows, I have to face this without fear and keep pushing forward to another day. Whatever tomorrow brings will be met with a smile (that I am alive) and determination to make the most of the life that I have. May God bless you all and always remember that you are not alone. We may be scattered all over the earth but we are together and we have an elite bond. Again...................Happy Holidays my Iron Clad Friends!
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