Hi, I just foung this board. I am 57, female and have been disabled from idiopathic cardiomyopathy since 1997.My goal at that time waas to see my son graduate from high school in 2005. My condition then tok a rapid deterioation and by 2006 by EF was down to 15, and then 10. I have had two biventricular pacemakers implanted and last June, after a prolonged "vacation" in the hospital (7 weeks), ended up with an LVAD w hen no transplant became available. I am much more mobile than I have been in years but still don't feel very good. I had just been placed back on the transplant list as a IA in November when they discovered stage I cancer of the lung on a routine test.So I had a lobectoomy and now need to wait at least 18 months for a transplant. It has been a very difficult year for me and I just wanted to meet some other folks who were like me. It's hard to ever feel normal and when you say you are tired, no one really understands HOW tired you are. I look forward to meeting more of you.
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