Guillain-Barré Syndrome (GBS) Support Group

Guillain-Barré syndrome (GBS), is an acquired immune-mediated inflammatory disorder of the peripheral nervous system (i.e. not the brain or spinal cord). It is suggested that it is an autoimmune disease, in which the sufferer's immune system is triggered into damaging the nerve covering. Many cases developed in people who received the 1976 swine flu vaccine.

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Brain & Nervous System
/ Guillain-Barré Syndrome (GBS) Support Group

Got Vax 10-17-07

deleted_user
deleted_user
One week after getting a flu vax, I was at the neuros with a totally numb arm. I just happen to mention right before he finished with me, about the vax. That changed everything. Within hours he had me in MRI and tons of labs to rule out other stuff first. Next day he called me and said its GBS and to please observe carefully any more numbness and go to hospital as mine came on so quickly (I literally was fine night before and then woke up with no use of right arm!). Hes sending me to the university of iowa as he said they are better equipped to help me with such a disorder. I like this neuro as hes very matter of fact and straight forward and doesnt waste time obviously. He skipped the spinal and siad the Uni would order if need be. Hey I was all for that! Ive had facet injections in my spine as I had cervical spine surgery 5yrs ago.. he thought originally it may have been that, but MRI is good.
I am optamist, yet I am terrified. I read about it and its potential progression. I do not know if its worse knowing what potentially in store for me.
I would love to hear from anyone who might know if its possible that the symptoms WONT spread any further and it will just be my arm affected. Did anyone else get a flu vaccine just before onset of symptoms?
Thanks for listening-
tee
deleted_user
deleted_user
Nanno: I was in rehad with a 60 year old lady. The virus spread through her body, but she recovered completely with in three months. Her recovery was gradual but steady. She had no side effects. There was also a 40 year old who's legs were affected. The virus did not go any further than her hips. I also met a young lady who was completely paralized, but made a complete recovery. So as far as I can see everyone is different. Keep a positive outlook. The very best to you.
Lesa
Lesa
Flu shots can trigger GBS,although they are supposed to be less likely to now than in the past.Each case is different and early treatment is key.There are different sub groups of GBS.Miller Fisher descends and the upper limbs and facial movements are more involved.In most forms of GBS the symptoms ascend up the body.Will keep you in my prayers.
deleted_user
deleted_user
I also got GBS (as well as swelling around my brain) from my flu shot! I would like to know how you are doing now. Were you able to get any type of help from the government as the flu shot was the cause of the GBS?
deleted_user
deleted_user
Hi,
Just to bring this up again because the flu shot is such a controversy, I'll tell you about my experiences. I have CIDP (chronic long lasting form of GBS). Got the flu shot November 1997, by March started experiencing numbness in fingers, weakness, etc, but still able to function normally. October/November 1998, got flu shot again. Diagnosed with CIDP December 1998. Really having difficulty walking, within a weeks time after last flu shot lost my ability to walk unaided, which led to wheelchair.
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