Guillain-Barré Syndrome (GBS) Support Group

Guillain-Barré syndrome (GBS), is an acquired immune-mediated inflammatory disorder of the peripheral nervous system (i.e. not the brain or spinal cord). It is suggested that it is an autoimmune disease, in which the sufferer's immune system is triggered into damaging the nerve covering. Many cases developed in people who received the 1976 swine flu vaccine.

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Brain & Nervous System
/ Guillain-Barré Syndrome (GBS) Support Group

GBS wife

deleted_user
deleted_user
My husband has GBS. In less than one day he had the use of nothing. This came on him August 26. He remains in instensive care as this is written with a trach and feeding tube and unable to move. No significant improvement for the past two months. He has had 2 rounds (14 treatments in all) of plasma exchanges and 1 round (6 days) of IGIV. Nothing has helped.

Not sure where we go from here. Doctors don't really know of anything else to do but wait and see what happens on its on. It is truly a nightmare.
deleted_user
deleted_user
Hi, My name is Candice and new to this site, saw your msg and wanted to write to you. Im 24yrs old and got GBS on 28th July 2007, I was completely paralysed and had a trachy for 1 month, couldn't move at all and breath on my own. After I received two treatments of IVIG i began to get better. As the doctors kept telling me when I woke up is that I was as severe as it could get, but I am getting better and have been out of rehab for a month now, Im walking and am getting there. Im still in pain, but am glad to be alive. I feel for you and your family, as I know it was a hell of a time for my family to witness what I am going through. Stay positive and strong there is light at the end of the tunnel as people keep telling me GBS also stands for "Getting Better Slowly" my thoughts and prayers are with you. Take care. Candice
Lesa
Lesa
Will be praying for him and your family too.I have the chronic form of GBS.After my first round of it I was able to go back to work after a lot of rehab.The chronic form is very rare."Getting Better Slowly"is so true.It takes months sometimes but he will get better.Attitude is very important too and the supportive family he has will be key.Stay in touch and let us know how you're doing,okay?Here if you need anything.
Lesa
deleted_user
deleted_user
Just want you to know others are praying for you and your husband. My husband was by my side all summer while I was in the hospital. It was rough in the beginning for my two kids and their families plus him. But I am slowly coming out of it. I still use the walker and go to rehab but I hope to return to work soon.
You must look for small signs of progress
and I know I appreciated the constant praise that I was doing better. He will too. Hey, so much has changed for me
since July 20th. K.I.T.
deleted_user
deleted_user
yes, it does seem slow progress and this must be soooo tough to watch your husband try to cope with this. I dont know much about it, but a tenant who lives with me is getting over it. He is four years down the road and walks everywhere, without a stick. Still weak in the legs but is very motivated - I can see from observing him that there is life after and with gbs. He said when he was in hospital that the best thing he had was a therapist to talk about how he felt. He got one for himself - he felt it was so good for him to communicate his feelings to someone completely apart from loved ones. I dont know how far into the condition he was then, a little way, I imagine, as he couldnt do anything at first. love to you..Cathrynn X
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