I am a 29yrs old woman I got GBS last Dec of 08 I had a very sever case i was on life support for 4 months and they had the tubes down my throat and I ended up getting pneumonia so they changed the tubes I ended up getting pneumonia again about 2 weeks later. They ended up putting in a trake which helped, I have to be honest i don't remember much they had me on some very strong meds the pain was like nothing I have ever experienced my whole body felt like I was skinned and burned what happened was my nerves disinitegrated and I was a paraplegic for about 2 months I had the IVNG I think that's what it's called they had the Red Cross come in and do it it was a total of 6 treatments I got worse before I got better it was a very scary time for my family the other problem they were dealing with was my blood pressure was through the roof and they couldn't control it. But I'm home now I have just recently decided to take a few weeks off from P.T.& O.T. I have hit a plateau and I'm exhausted all the time I am also having a lot of anxiety and I'm not sleeping that good. I was just wondering if anyone else might be dealing with the same or similar issues I am. I'm on some meds to help control some of these issues and I know some of my meds cause this but I just need feed back on other ways people are dealing with this. I know everyone says it's going to take time but I have no answers as to how long and the waiting is killing me. All thoughts would be very helpful:)
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