My dad was diagnosed with GBS March 6, 2012. Within 24 hours of symptoms starting, he was completely paralyzed from the neck down and on a ventilator. His paralysis started in his right arm and moved quickly to his left arm then to his legs. He was diagnosed and immediately treated with 2 rounds of IVIG. He is currently in an Acute Long Term Hospital that has experience with GBS. So far in the last 2 1/2 months he has battled pneumonia and sepsis. The worse of his condition being one week ago where he came very close to death because of the sepsis that stemmed from the pseudomonas in his lungs that was very resistant to antibiotics. They have that under control now and he is stable. He can now shrug his shoulders, slightly flex his hips and ever so slightly can move his left big toe. Everything else is still completely paralyzed. He is getting daily physical therapy. Our biggest fear is that he will not be able to be removed from the vent. Getting off the ventilator is our big hope for him. Of course having at least mobility in his arms would greatly improve his future quality of life. I am wondering if anyone out there has any experience or information on someone with such a profound case of GBS like my Dad and what their quality of life has been in the long term.
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