I, too, have a mild case of GBS, but have not had any treatments and my recovery has been very slow. This all started with a respiratory virus Oct. 2012. By Thanksgiving I was unable to walk unassisted, and could not perform any activities of daily living. My recovery has been in baby steps with some back sliding when I over exert ( which doesn't take much). I still have trouble with balance, especially when I am tired and I also get blurry vision (does anyone else experience this?) That is when I know I must use my walker again. Since the warmer weather came I was not experiencing much pain in my legs, but went to church on Sunday and the air conditioning got to them and they ached in the worst way. My GP doc was no help and didn't even get a neuro referrel until Jan!!! Even though he thought I needed one back in Nov. I had even gone into his office again because I was having a hard time breathing and my chest hurt. I got an inhaler and an echocardiogram out of it. I had to call the office twice to finally get the referrel and I was in no shape to even be my own advocate. I am lucky that I had a mild case, but this whole doc thing has me not trusting docs much. I am sooo happy that many of you have had good docs. The fatigue is still extreme and I occasionally feel mild numbness in my hands and feet ( is this normal? Now I have a doc saying that prediabetes may cause this "neuropathy", my A1C was 128. and I am thinking it is high due to my minimal mobility for 7 months!!! Without excercise, insulin isn't taken into the cells well. What do you all think?) , but I feel like I am having more good days as long as I plan periods of rest. I am learning to listen to my body. Thank you everyone for telling your stories on here. It is nice to know that I am not alone. 7 months into this now and trying to carry on for my myself and my 6 kids. Hang in there everone and thanks for the inspiration!
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