Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...

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Endocrine System
/ Graves' Disease Support Group

Very Emotional

deleted_user
deleted_user
I feel as if this disease is making me crazy, as my friends would say before this I was the happiest person they knew now I can go days without smiling, I was just diagnosed a month ago and well on top of it my Grandmother died as well so there is the stress factor. My mind wanders all day long and I ofter worry about things I know would never happen. I had RAI one week ago and started PTU 6 days ago. When will I start feeling better, I feel like I can not take much more of this and am sick of putting my family through all this. I have been to the er twice once my pulse was at 103. Is that bad?

I just dont know what to expect from this as there are no support groups around my area.
deleted_user
deleted_user
Im sorry for the loss of your Grandma..Welcome to Graves Disease! Thats what my endo told my family when I was having what could've been considered emotional breakdowns.I have always been the same smiling all the time happy ( even had the nickname of smiley and kool aid :) growing up) and now thats all changed. Everytime my levels change so do I. It's very hard to deal with and sometimes uncontrolable. The racing thoughts I understand also my mind wanders all th time now. I have now sought counseling to try and help me deal with being diagnosed, emotions and mood swings. Before I was DX'd I too would be in the ER not knowing what was wrong high heart rate high blood pressure (The last time I had gone to ER b4 being DX'd the ER DOc insited I was on drugs but yet he didnt even think to feel my neck to feel the big goiter in my throat to know umm maybe it was thyroid) They say it gets better once you have your levels under control. So try to be patient (I know how hard it is ) But this Graves thing is a Emtional Rollercoaster.
deleted_user
deleted_user
I hate the emotional component. I am near tears so much of the time. It seems to be the last symptom to get under control.
Please be patient with yourself. I am new to this disease, too, but am finding there are ups and down.
I am also finding this forum to be an awesome support network.
deleted_user
deleted_user
We have all been on that rollercoaster!
Hope you get better!
deleted_user
deleted_user
Its very stressful thing to deal with. The best thing to do is educate yourself and think positive!
deleted_user
deleted_user
I have to agree, emotions run rouge with this disease. Stress will bring it on worse. I am very sorry for your loss. My son had FSGS, where his kidneys were shutting down 2 months ago. I am the pillar of strength in my family and I wanted to run my car into an overpass. That is when I knew I was in serious trouble. It does get better. Son is doing VERY WELL. So Ii figure I can get thru this with humor. You will feel better soon.
deleted_user
deleted_user
I understand, in fact, we all do, because we all go through it! I'm still trying my best to not let my mood swings get to my family and bf..but sometimes its just so hard.

Hang in there.. :) You will get through this.
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