Today, I stopped my medications. (Methimazole)
After being diagnosed with Hyperthyroidism caused by Graves Disease, approximately one year ago, I am now in a much better place - mind and body.
At the start of this journey, I was depressed. My doctors were giving me choices I did not want. I am not much of a medication (pill) taker. Thinking I would have to take a pill every day of my life felt like a life sentence. Then the next one up was the albation. Why would I want to invite radioactive material into my body to cause other problems. And, speaking of that, I wish I never did the radioactive scan and uptake. I felt terrible for many days after ingesting this small amount of radioactive iodine pill to do this test. Right after this test, the radiologist said it absorbed 74% and highly recommended getting the albation. He was ready to set me up for an appointment to do it. When I found out that taking the blood tests T.S.I. And TRaB would be able to give the doctors the information that they were looking for - the cause of the hyperthyroidism. (If it was Graves Disease) Well, I felt tricked. I started to see a little of what the medical profession was about - the bottomline - money! And, NOT looking out for the patients best interests. I considered surgery thinking that all my problems would go away, immediately. Well, after researching this option, I was told that you can get rid of the victim (the thyroid) but the auto-immune disease still exists. Starting to feel trapped, again. Then I started reading these “infomercial-type” ads online on how this person was able to get rid of Hyperthyroidism, naturally, just buy my book and products. This was getting depressing. Then the pieces of the puzzle started to fit together. What am I treating? The thyroid? The auto-immune disease? The symptoms? The side effects? I kept reading about how diet made a difference. That a certain type of Endocrinologist would treat your whole body over the conventional doctors that keep pushing that 50+ year old 3 options protocol - anti-thyroid medications/RAI/surgery. A lot of this information would go right over my head, so I tried to keep it simple. Because there were times when I racked my brain over special recipes and eating only certain foods. It was so frustrating.
What I found that worked for me was keeping a simple journal of what meds and supplements I should take each day (so I wouldn’t forget - my brain was so unfocused and I would forget everything) Also, weighing myself to keep on top of the weight gain as my metabolism was slowing down. After losing 35 pounds in a few months was intense. I have gained back approximately 15 of them since this all started - 8 pounds in the recent month. I loved that I lost all that weight but I knew what I was in for because once the metabolism calms down (and your mind and body feel better) there is that possibility of gaining it back because of a slower metabolism. For me, I don’t mind the trade off because I was so anxious, sleep deprived, exhausted.....it was like having my period on steroids. Just insane.
I saw my Endocrinologist, today, and she said to stop the medication. I was only taking 5mg per week.
My numbers are in “normal range” but according to Elaine Moore (and our forum friend MM) that is subjective and needs to be tweaked to feel much better. My T.S.H. Is at the high end of normal which means I will go into HYPO if I do not stop taking the medication. I feel a little HYPO. Tired, unfocused but a different type than HYPER, which is exhausted tired and unfocused. If I write things down in my notebook, I won’t forget as much.
I am not sure how I am supposed to feel, right now. The Endocrinologist said I was in remission but we will see what happens in a month when I take my labs (T.S.H., Free T3 & Free T4, TSI, TRaB, Lipid Panel (Cholesterol) and Comprehensive Metabolic Panel.)
I just wanted to share all this because I wanted those of you to know that getting Graves Disease isn’t a death sentence. Some of us will suffer for a very long time until we are diagnosed. (I think I had it most all my life)
Some of you will feel depressed about it but you will get through this. Making up my mind to do whatever it takes to battle this disease instead of allowing the doctors to do whatever THEY wanted, made this process more acceptable to ME.
I wish for all of you the strength and fortitude to do whatever it takes to make yourself feel better. However that looks.
Have a lovely holiday season and peaceful new year. Take Care.
it has been 5 years since diagnosis and I went off meds 4 months ago. No symptoms so far. Monday I will have my labs drawn and have endocrine follow up.i can’t wait to see what happens.
Hi, it's been a while since I have posted. I have been to two endocronologists and paid out of pocket for two functional medicine consults. I am taking supplements, but I am still not receiving treatment. I had an appointment this morning and the endo is still refusing to treat my condition, he said it is not far enough out of range to warrant anything. On Saturday I was at an event and I...