At the ER on Feb. 14 an endo put me on 40mg methimazole and 2 1/2 weeks later I got bags under my eyes, 2 weeks after that I have hives and my face has swelled up like a balloon-I still can't look at myself because it is horrifying. I also take selenium, Acetl L-Carnitine, CoQ10, Curcumin, Amla, and Magnesium Glycinate. My labs on Jan. 19 T4-3 and TSH- .01 then my eye started to hurt pressure behind it so I went to ER on Feb. 14. My T4-7.8 and TSH-.0001.
Went to see my endo for the first time yesterday (March 12) and he told me to stop all the supplements because they might have given me an allergic reaction. While I was waiting to get my blood drawn he said he was thinking about it and maybe I should stop the methimazole. I tld him I have read that sometimes you can cut the dose and be okay but he seemed to think this was stupid. The office visit consisted of him telling me I needed to get Radioactive Iodine and everything would be fine. When I told him I was worried about having Graves and I thought Radioactive Iodine was bad for people who had Graves, he asked why. I told him the whole thing started with the pressure behind my eyes and I went to eye doc (TED specialist) and there is a slight protrusion with my left eye so he wanted me to be part of his study using celebrex to treat TED. I said can we test for Graves? He said okay and went on to say Radioactive Iodine wouldn't hurt the eyes. When I suggested surgery he said that was more of a risk, I would have a scar and who wants that?
No ultrasound just felt my thyroid which he said was a little enlarged.
I eat a autoimmune diet and it makes me feel good-better than before where I spent a lot of time at fast food places.
I will get the new results in a day or so...what should I do as far as he swelling, should I be part of the eye study, and should I get a new endo?
Thanks for any advice!
Hello,I was diagnosed with Graves on July 2016. My lab results became normal after 3 months of taking ATD. I stopped taking ATD on Nov 2016(expecting to be pregnant). Fortunately I got pregnant but my graves came back and I did not take any medications as I know that ATD will affect my baby. My thyroid levels normalized after 12 weeks AOG (except for TSH) without medications and had a normal...
Hello, I am new to all of this. Apparently I was born with this and most of my symptoms over my life now can be explained. In the last few years my health has continuously gone down hill and I've been back and forth to ER's and Dr and specialists. Finally got the diagnosis in February-ish... I have Graves' disease and I needed the RAI-131 treatment. I'm sure you all have been through all of this,...