Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...

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RAI Problems with Dr

deleted_user
deleted_user
So I called my Dr yesterday as I was doing well for the past week and a half and then all the sudden my emotions came back and I was crying and my skin has gotten all oily and acne is back that had cleared up she told me that the RAI should be working by now they usually take people off the PTU but they will not take me off it right now due to this she also said she doesnt think emotions has anything to do with Graves and that maybe I need a psych evaluation. I have read all over the place that your emotions run rapid, then she proceeded to tell me that I am the only patient she has tha has had RAI. Come to find out she is a resident. My sister has graves and went to the same place I am wondering if I just shouldnt ask to have my case transfered to the same DR the had my sister as they hit it off and it is aparently something that runs in the family. There are several hospitals around here but unfortunatly they are all linked to Dartmouth Hitchcook (which is where I go) so if I want to get away from them I would have to go to Boston really and that is two hours from here. Any thoughts?
deleted_user
deleted_user
It would not hurt to get a second opinion. If you are doubting her now, I am afraid you will never have any trust in her. I dont think your emotions are a physc issue. This crazy disease effects everything in your body & mind. I get like that especially when I am on my period. I just started taking a birhtcontrol, so too soon to tell if its regulating my symptoms. What are your current thyroid levels? Also, I just got RAI treatment done on 9/11 and my levels just started to drop. It varies on each individual. If you havent checked your thyroid in the past few weeks, I would have them rechecked.
deleted_user
deleted_user
They did have me checked today and now say that I am extremly HYPO my TSH is 27 and my T4 .86.

I dont know how to read those things. I am just doubting her as she just I dont feel like knows anything about it as I have said she tells me things that I dont find are trur like my emotions have nothing to do with my thyroid. I did ask today and the earliest they can get me in with a different DR is 2-3-07. She advised me to stop taking PTU now cold turkey I had thought you always were to wean yourself and not go off suddenly.
deleted_user
deleted_user
The biggest mistake I made after RAI was not learning about what came next! I ignored my disease and got really hypo and chubby. I was unhappy and depressed. Your emotions are TOTALLY effected by thyroid. Get on synthroid, get your levels checked every 6 weeks and up the meds as necessary. Once you get normal you will feel so much better! Let me know if you want more info on reading and understanding your test results, or any other questions. I've been through it and learned how to deal with all that mess!!
deleted_user
deleted_user
I was hypo for a few weeks (TSH 22) from too much methimazole. I can't say that I felt teary, but I was somewhat depressed. Once my TSH went back to normal I felt much better. Definitely ask your doctor for meds!
deleted_user
deleted_user
A two hour drive is nothing compaired to a since of trust, selfworth and knowing you are not crazy. I would go where ever you need to, to get the anwsers to your question. I have taken the advise from this board and got a book called "living well with Graves" read it in one night. BOY! did it help me to understand what is happening, what will happen, and how to deal with it. Of course I do break down and go bonkers from time to time (well more often then that really). Listen to the board, listen to your instects they will tell you what you should do. If that means going to boston then I say go.
Good luck
deleted_user
deleted_user
It sounds to me like you are in New Hampshire. The best endo in the State is at Dartmouth Hitchcock in Concord. His name is Dr. Andrew Taylor. He is my Endo and I have no complaints about him. He is easy going, informative and very easy to get an appointment with. Give him a try.
deleted_user
deleted_user
Well this all became evenmore complicated yesterday when I went to work and just could not stop crying, so I can home my mom and I called my endo we said it just had to be depression and to call my pcp, called my pcp which mind you has know me my whole life he delivered me. He stated this was all my thyroid and started me on Zoloft. Last night I got into bed and my whole body was tremmering my eyes were rolling in the back of my head and I was dry heaving, they called 911 and I took a trip to the emergency room, in there they did more blood work on fridy tsh was 27 well on yesterday it was 54 it toubled. So they started me on the synthroid and I get to go see th Dr who treated me in the er who happens to be my sisters dr on monday for follow up as my mother told the other dr that we were not comfortable with her as my dr.
deleted_user
deleted_user
Oh my goodness!! What a nightmare! Definitely NEVER go back to that doctor! Stay as FAR away as possible! I can't believe that she claimed it was a psych problem when you have just had RAI. They should have decreased your PTU as soon as they found out on Friday your TSH was 27. Once your TSH comes down you'll feel a lot better! Hope you feel better soon.
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