Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...

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Oprah

deleted_user
deleted_user
I just emailed the Oprah website to let them know how mad I am that in every article it is just addresing her weight gain. I think she should address the many faces of thyroid and how it effects our bodies phyiscally and emotionally. How many suffer undiganosed or misdiagnosed. The treatment options how women are bulled into RAI in the USA. That it just down plays it because when u say you have a thyroid disease like Graves than people just assume hey your either gonna gain or loose weight and they give u a pill and poof your better ! Thats why families and friends dont understand the physical an mental exhaust we go through and frustrations of treatments or keeping levels Normal!
deleted_user
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I agree. When I heard what happened to Oprah I thought great now the world will know more about Graves. I guess for a superstar like her to say the word Grave was just to much for her image. And your right, they do push people to get RAI. My theory is that the Doctors get more money from the insurance companies. And it's not just women who get pushed to use the RAI. I'm a guy. To anyone out there thinking of getting RAI don't do it unless all other treatments have been exhausted!!
deleted_user
deleted_user
good for you! Did oprah actually have Graves?
deleted_user
deleted_user
I dont think Oprah had Graves Disease...wasnt she hypo??
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I dont know what thyroid issse she exactley has because all they have been discussing her weight. But in one article I read it said that she went on vacation for a month and drank soy milk and has been feeling better. You know how hard it is for people around me to understand how bad I feel . No soy milk or vacation would make me feel better when Im have a high or Low.There are many sides to thyroid and that should be explained in these articles and that if untreated it could be very serious.
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Here is a link about her thyroid:
http://www2.oprah.com/health/yourbody/slide/20071016/slide_yourbody_northrup_101.jhtml
deleted_user
deleted_user
Sounds to me like it's Graves. She says she,"sort of blew out" her thyroid. Sounds like Graves to me.
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In the article there isnt any clear statment on what she actually has. But she's also talking about women 35-40 what about all the women and men under those ages being misdiagnosed and it says that at sometime in life so many people will have a iassue with their thyroid. What Im feeling isnt a issue . To me a issue can be cleared up . I feel like garbage still one year after diagnosis. There is also nothing said about the emotional side efeects treatment options side effects and severity if left untreated anything just said she was tired with night sweats.
deleted_user
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I signed up and left a message in her "Health forum" No one has responed. I too thought that Oprah would open up...... i a sure with her money she got excellent treatment and most likely didnt go thru what we are are going thru.
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your right Mia But you think with all the things she supports and all the things she discusses This wouldnt be ONE HUGE topic b/c so many are mistreated not given the right infomation.
deleted_user
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Maybe there is a quick fix to this uncommon disease and the government doesnt want her to leak it out. They may be making millions off the treatment (medicine & RAI) they are offering the 10-15% of us that have it. Its sounds strange to me why she HAS NOT discussed it. Oprah has discussed so many other personal thing about her life.
deleted_user
deleted_user
Agreed MIA , and doesnt sound crazy! So much money would be lost if there was a vaccine or quick fix sometimes it makes you wonder
deleted_user
deleted_user
It sounded like she had Hyshi Moto which is the other end of the spectrum. I have a friend who has Hysi Moto and she said she blew out her thyroid. Meaning the Thyroid kills itself off.
deleted_user
deleted_user
What exactly is Hysi Moto ??
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Hashsimoto's Is Hypo Thyroid I believe. I know someone who was severly ill with this .
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deleted_user
Here is an interesting article I found regarding Oprah and a possible explaination.

http://thyroid.about.com/b/a/257461.htm
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