Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of hyperthyroidism.

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Lost Voice

Does anyone else have issues with losing their voice with GD? I do get frequent hoarseness in my voice or I tend to sound scratchy on some days but this morning I woke up with clearly no voice and when I eat its hard to swallow. No swollen glands, no sore throat as in a sickness, no fever, no cough nothing... Just a clear loss of voice and obviously my thyroid is inflammed because well it looks like I have a man's adams apple. Can it occur so quickly? (the inflammation that is)..... I was hoarse for the past week but this is a whole new level. I am so new To graves disease that I am not even on treatment besides a betablocker to help with most of the symptoms.

TSH of 0.028
T3 of 20
T4 in normal range.
Thyroid Antibodies are still pending.

Replies

deleted_user
deleted_user

Maybe you ate something really high in iodine that caused it to swell. Please be careful, thyroid storm can happen quickly.
deleted_user
deleted_user

Oh I didnt think about iodine.. no one warned me about that... Ughh what did I eat yesterday...CRAP I ate corned beef..potato chips and ice cream!

As you can tell Im trying not to lose anymore weight. Man I wished I knew that..OMG!! I sabatoged myself.. I researched a list of foods to avoid for a low iodine diet and Lunch meats, chips and dairy are on top of the list no wonder I woke up and couldnt speak today!

Wow thank you for your insight, I guess I need to take a closer look at what I eat! this is such a miserable disease..

What am I to do to not lose so much weight? I cant eat too high in calorie because everything has Iodine in it.. I have stopped running my 5 miles a day just so I wont burn calories that my body needs right now..
deleted_user
deleted_user

Ive spoken with several doctors and endos . Yea we should try and aviod foods high in Iodine but We are on Iodine blockers. so it blocks it out anyway we are left with that gross feelin tho after we've eaten high iodine foods
dairytech
dairytech

On the website that trying2smile gave us it states that with graves your voice can actually change to a deeper tone but I didnt see anything about loss.
deleted_user
deleted_user

Well I talked to my endo today, he was so nice enough to call me just to talk about this. He said that I can and will have a hoarse voice or a deeper voice and notice is more frequently when I am on a higher iodine intake since i do not take any antithyroid meds yet.

BUT as far as losing my voice he thinks I am getting a virus and low and behold 5 hours after talking to him, I have a pink eye and fever and stuffy nose...

so Im guessing that is where my voice is gone from because he said when people with Graves are exposed to virus' that can cause a Thyroiditis which will make it hard to swallow and talk.

So I guess that is the answer now that I feel like poop, no voice hardley but Hey i got some antibiotics and hopefully will feel better soon,

Thanks for all of your input!
dairytech
dairytech

Well not to scare you skinnurse but one of the first symptoms of TED for me was what they thought was pink eye. Both my eyes were very red a watery, they gave me pink eye meds but that didnt work, then they thought I was exposed to chemicals at my work and it didnt respond to those meds either. This went on for about a week and then my eyes started to bulge. Pink eye meds should work within 4 hours so if It dosnt, call your Doc
deleted_user
deleted_user

I've always had a deep scratchy Voice even as a kid ( they use to joke and say yea she sounded like she smoked a carton when she was 6 ) I remember b4 i was DX'ed always having a sore horase voice actually I can even remember going to concerts and the next day not even being able to talk. Still the rare times i feel well and decide to go out if Im somewhere and we're screaming and singing i cant talk the nxt day
deleted_user
deleted_user

My voice is much scratchier with graves disease. My neck swelling has subsided for now, so I hope it stays down. I try to keep some cough drops around, but I any that are colored. I guess the red, green and blue colored ones can have a lot of iodine in them.
deleted_user
deleted_user

Hmm very good to know about the TED, I have a few small signs like chronically dry itchy eyes, a little reddness. Right now I have a slight bulge but I think I have always had that, I am a big eyed girl haha..

The voice thing ya know, my mom was reminding me last night that I am allergic to advil..Not the medicine in it but the Brown/red coat it has on the pill, whenever I took it as a teen my throat with swell just enough it would be hard to swallow for a few days, i wonder if that is somehow related.

My voice is still horrible. Its getting worse by the day, I am down to a very scratchy whisper.
deleted_user
deleted_user

skinnurse, it sounds like an iodine prob. The coating around advil has the red dye that is high in iodine on it...sounds like your body doesnt like iodine. which would explain a lot.
deleted_user
deleted_user

It sound like it, I have been wondering that. I retain a lot of fluid in my body with any salted or processed products before I was diagnosed and I have had occular migraines for a few years now but got progressively worse this year.
deleted_user
deleted_user

It looks like your TSH is low @ 0.028
I just asked for mine today and was told it was 1.072 I went online and googled TSH levels and here's some of what I found.

The new guidelines narrow the range for acceptable thyroid function, and the AACE is now encouraging doctors to consider thyroid treatment for patients who test the target TSH level of 0.3 to 3.04, a far narrower range. AACE believes the new range will result in proper diagnosis for millions of Americans who suffer from a mild thyroid disorder, but have gone untreated until now. Here's a link.

http://thyroid.about.com/od/gettestedanddiagnosed/a/normaltshlevel.htm

The reason I brought this up was my Endo told me about two years ago that without my .112mcg of levoxyl every day I would die in about a month and the first symptom was that my voice would become rough and scratchy from being Hypo.
deleted_user
deleted_user

They are constsanly changing guideline to normal /abnormal thyroid levels. but , I was always told they dont go by your TSH b/c with Graves its supressed and will take yrs to come to normal range (wether ur on ATD's or had RAI) Its the FreeT4 thats important thats what Ive been told ( i could be wrong tho )
deleted_user
deleted_user

I havent had any treatment yet. I am newly diagnosed with Graves so this is all new to me, I am still waiting my RAI Uptake and Scan. I work in Dermatology and see on average 60 patients a day..I have a break the first week in june..No patients that whole week and that is when I am getting the rest of my testing done.
deleted_user
deleted_user

I hit 2nd puberty with Graves. My voice changed quite a bit. Then the RAI it changed and now when I went hypo and now that I'm on the levox it's finally back to normal.

When I was hyper, my voice was always fatiqued. Like I had just ran a marathon. Sometimes it took considerable effort to get anything out. Combine that with the fog and I developed a stutter. weird. It's gone now too. I just barely remembered that. There are so many little things that are gone now that I've had the RAI. Don't really notice them until I"m reminded of them.

When I went hypo I had that deep morning voice thing going on but all day. It was kind of cool running around doing the deep voice movie trailer guy thing annoying the wife and kids. But it's back to normal now. No more singing Johnny Cash songs, I guess.