Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...

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Endocrine System
/ Graves' Disease Support Group

Is this a support group or what??

deleted_user
deleted_user
I am questioning it because recently I have experienced a few encounters with people on here not being polite and giving negative criticism. We are all here for a reason, and that is to be supportive. Also, I have read others journals and they seem to be experiencing the same thing. I dont want to see anyone cancel or get discouraged from participating in our discussions or writing in their journals. I believe this site is an effective way for all of us to communicate and help others to deal with this horrible disease. I have gotten more advice from you all then any doctor. Without this website I would be so lost.... Lets not discourage others from sharing their personal experiences. I know we are all very hormonal and irritated, but PLEASE lets all be nice and courteous to eachother. Some of us may not have a support system at home and this website may be all they have to help them get through the week. With the holiday being around the corner let's all be kind and repectful.

Please do not take any of this personal. I am just expressing myself and do not want anyone to feel uncomfortable to comment on this discussion.

With much respect!
Mia
deleted_user
deleted_user
well i sure hope it is a support group lol...i am a member of another support group for another reason and i have to tell you, it is one of the best things i have in my life...i hope this place is as well
deleted_user
deleted_user
I have not been on this site long but I can say that I appreaticate every bit of positivity and uplifting advice I have recieved from everyone. You make a very valid point - we are all here for the same reason and should embrace eachother for our commonalities. Positivity breeds positivity and kindness heals us all :-)
deleted_user
deleted_user
Thank you Mia,,, I of course agree with you 100%.. the Healthy Relationship and Depression Forums are the worst! They have really mean people that want to belittle the people that are posting on those site... Telling the people they are whinning... Anyway,, yes, I feel as though this site is for support and I also beg people to be courteous! We need each other or we would not be here!
Big HUGS!
Jerrie
deleted_user
deleted_user
I wholeheartily agree with Mia. There is too much negativity in this world already, this should be a place of positive inforamtion sharing. Positive thinking brings about positive results. I have an interesting website for those of us looking for positivity in our lives: http://www.universallawstoday.com/secret.html.
It's all about what is called The Secret...The Law of Attraction. It is important to attract positive people to you to bring about positive results. I find this forum extremely positive, and helpful, and as long as it remains such, I will be here...good luck...Mari
deleted_user
deleted_user
Mia, thank you! It is very difficult to speak out. I, too, have noticed what you speak of. It is probably why I only posted a few times. I thought I just let it waft over me. But I see now that I just dropped out, and didn't realize why. It would be nice to not even see the negativity.
deleted_user
deleted_user
I think sometimes we just get frustrated because even though we all have Graves there are so many different levels of it. You may have a symthom I don't have and visa versa. Just because I don't have a part of it that you do or at a different level does not mean you are not suffering too. We of all people should try to understand this. Too many other people don't understand what we go through. I think we are use to seeing people with an illness and they all have the same things going on. That is not the case with Graves.
deleted_user
deleted_user
I agree. I have really gained a lot from the wisdom of the others in this group, and don't know what I'd do without the support I have been getting. I'm so thankful to find people who understand exactly what I'm going through. I think this is a great group, and I'm really thankful to have found it.
deleted_user
deleted_user
I also have felt the negative feedback sometimes but I think of all the positive Ive gotten out of this site and it out weighs the negative.Remember Opinions are like(excuse me) A$*holes everybodys got one and thinks everyone else's stinks :) Post what you want and feel it might just help someone else :)
deleted_user
deleted_user
I am very greatful to hear everyones opinions as well. I think we all have to understand that everyone has their own experiences and opinions on how to deal with this disease. It is a free country and all is intitled as long as it doesnt hurt anyone!!!
dairytech
dairytech
I have not experienced negativity on this discussion group..intensity.. yes.. but negativity.. no. Passionate debate..yes, but I love that sort of thing. For me, its been a great experience. So far...lol...
deleted_user
deleted_user
I think this is a fabulous support, i just avoid any negativity or wierds and enjoy the finer points of DS, this is a great group!!
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