Does the surgery work? Aredia?
I was diagnosed with fibrous dysplasia in my skull about three years ago and had to have surgery in November, 2008. I have been fortunate to have a physician that is fairly familiar with the disease, and he has now placed me on an IV drug therapy of pamidronate (Aredia). I have the two hour IV treatments for three days every six months. Has anyone else used Aredia to manage fibrous dysplasia and if so, has it helped at all? Also, has anyone else had fibrous dysplasia of the skull return. I feel okay right now, but I'm worried that I will require another surgery in the future and I desperately want to stop the IV treatments. It's only every six months, but I absolutely hate them. I also have problems with my calcium and Vitamin D levels, and must take medicine and vitamins to control it. I would really like to go back to a "normal" life...
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Hi there everyoneI was diagnosed with FD seven years ago.I get really bad headaches and have a constant sinus infection.My FD is in my spenoid bone.None of the doctors think that the FD is the cause of my headaches.Recently my headaches got much more intense and I get it every day.Scans also show that the FD had grown a lot.Is there anyone who went for a surgery that helped with pain relief??Hope...
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