Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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deleted_user 10/17/2007

I have been way sicker then I have ever been since I have had fibro. I might have a weekend of this or maybe 5-6 days, but this is going on weeks now... weeks and weeks... I am waking up feeling like "hell" forgive my language, It makes you afraid to go to sleep, but I cannot -CANNOT stay awake. I am sleeping 14-18 hours a day!!! that is broke up in 2-3 sessions, but usually at least 12 all at once!!! I am taking my ultram, my lortab, motrin... I know I dont have to tell you guys, but I am not just after the pain pill, I am after the NO PAIN~~~ It is not working... It is making my depression get so out of hand, and the excruciating stiffness in all my bones. I have never really had it ever to this extent. My left elbow hurts so badly that I cannot even pick up my glass sometimes. I feel drained and such a waste. I quit my job in August and I cannot even handle the bussiness part of our life here at home. I shoud be contacting attorneys and etc. over our house and I JUST CANT DO IT!! I cant... who else is supposed to!! What do I do?? How do I get better... It this all fibro?????? I know I need to loose weight, but how the holy mother of frog hair do you excercise when your bones are seized up??????? Help me please... my baby daughter 13 has to have open heart surgery in the next few weeks... just found that out yesterday and I HAVE TO BE functioning at that time... let me rephrase... I WILL be functioning... I do to doc on friday and need advice on pills or what ever. I take Cymbalta, Lortab, and Ultram basically and Klonopin and Ambien CR for sleep.... I keep hearing amytript., and voltrin???? :Lyrica?????? Please help

deleted_user 10/17/2007

You really are suffering. I wonder if you are caught in a cycle where the pain is increasing the depression and the depression is increasing the hours you sleep. The extra hours of sleep can cause extra stiffness and more pain.. the cycle continues. Maybe working on the depression would help. When I took Ambien I couldn't function if I needed to get up in the night. That might be a concern if your daughter will be recovering from surgery. There are other sleep aides that might let you get up if you needed to with less side effects. I was able to take Tramadol with Cymbalta and it helped with pain making it easier to sleep. I wasn't taking the other drugs you are taking. I hope you get some help really soon. Good luck with everything. Lots of prayers for you and your daughter.Hugs and more hugs, Donna

deleted_user 10/17/2007

Well sweetie , it does sound like you are caught in a bad flare , I have had them last a day and some a month , have never had the problem of sleeping that you are experiencing...in fact when I flare I usually can't sleep.

Definitely talk to your doc in depth about your meds ,maybe they can be changed to give you relief and stay awake.

You mentioned your daughtr's health and I'm sure this stress is aggrivating your flare.I will be praying for your family and the team that will be taking care of her.

You asked about how to handle situations when you are so out of it. One of the hardest things for me to was to relinquish control , but after 3 yrs of my hubby and I going thru this we have reached a point that we are more comfortable with me being able to say"I just can't" or I want to try to..."and usually when I volunteer to do something he stands by to step in if I need it.He has completely taken over the bill paying and knows that things have to written down , because all to often in 10 mins it will be gone.I retired from a career in nursing due to the pain and fog..and I thank God that I was able to help so many for so long , and I have reached a point in my life to let others take care of me.

I certainly do not feel qualified to advise you on your meds , as for myself , I am searching for ways to get away from them.

I hope you can find some balance in your life...I will be watching the board for the results of your daughter's surgery.
Sandra

deleted_user 10/17/2007

You are really, really stressed. I have found that being under so much stress can actually make everything worse. This was a statement from my doctor. I take Trazadone, Cymbalta, Zanaflex, , Ultram EC, Lyrica (225mg night and 75mg x2 daily) along with my b12 and folic acid. This seems to be helping with my pain some. I was in bed for several weeks and just wanted to sleep to make the pain go away. Sometimes you just have to push yourself a little bit even though it hurts. I try not to nap during the day because it messes up my sleep pattern at night if not careful.

In addition, to everything else you need to see your doctor and explain everything going on and get them to get the pain under control. There is a shot they can give you in the drs. office but I don't remember the name. It helps calm the pain down so that you can get it under control with your right medications.

I will keep your family in my prayers and I just can't imagine what it is like to go through having your daughter so sick too. I thank God everyday for my husband who has started trying to understand and pitchs in to help when needed.

deleted_user 10/17/2007

Hi gorgeous!! I am so sorry you are going through this! I had a bad bad flare recently. Im taking 300mg of ultram and it didnt touch the pain I was in. Lyrica made me feel like a walking zombie and if I took it at night I was blessed exausted for the entire next day. But different people have different experiences with it. I had to go to my pain management doc on Fri. I think he felt sorry for me. He gave me vicoden which when taken with the Ultram did wonders for me. Now the problem you might run into is the vicoden. Im sure you know that most docs will cut off their own arm before handing out narcotics. The sleeping thing I totally understand because of the pain. For me thats all I could do is try to sleep it away. The amitriptalene was supposed to help me sleep but actually made me WIRED!! I still a full bottle of that and Lyrica sitting around. Hon Im sure that you should print this out and take it to your doc. Tell him/her that you are losing it. Thats what I had to do. Oh I hope you are feeling better soon!!!!!!

CarrieinSK 10/17/2007

Special hugs for you...watching your child go through those surgical doors is excrutiating! Be strong and know that you will get through this.

deleted_user 10/17/2007

SOUNDS LIKE AN ADJUSTMENT NEEDS TO BE MADE BUT I'M NOT SURE WHERE AS I AM NOT A DOCTOR. I KNOW YOU WILL HAVE ADDED STRESS WHEN YOUR BABY HAS HER SURGERY,BUT TRY TO SEE YOUR DR. ASAP....WE WILL PRAY FOR YOU AND DAUGHTER.....LOVE AND HEALING.....HELEN

deleted_user 10/17/2007

Ther are other pain pills out there.It may be time for your DR. to try something else for awhile.I take ms contin which is addictive but take only low dose with 1 prn when necessary.I am also on plaquinal and I think it is helping. I take elavil 25 mg at bedtime which I swear by but every one is different and sometimes those flares come anyway.I know stress makes them worse also.My prayers are with you and your daughter. God Bless marilyn

Zzzzowl 10/17/2007

The stress is prolonging the flare by the sound of it, who wouldn't be stressed going thru what you are! I take Amitriptyline 30 mgs at night, it is a anti-depressant, but is widely used in the UK for fibro and MS to help with sleep, pain and spasms. The only other med I take is Co-codamol 30/500mgs up to 4 times a day. I think a trip to your doc is in order for a review of meds, they may be interacting with each other. Warm thoughts and hugs to you Barbie, keep us informed of how you are. Hope all goes well with your daughter. Owlxx

deleted_user 10/17/2007

So sorry to hear what you're going through. Have you ever had a thorough Thyroid check? Not just the standard test, but several? My cousin, who has Fibro, also has thyroid problems, & your symptoms sound a lot like hers.

deleted_user 07/13/2008

Lyrica and vitamin D!!!!!

Sending prayers for you and daughter,

Love and hugs,
Annie

deleted_user 07/13/2008

Perhaps you are becoming Toxic ??

I don't believe our Lymphatic system is working properly...muscles become full of Toxins...blood becomes toxic...and down we go...go to ur Local health food store...or to a massage therapist...or BOTH...they should be able to help you !!

will be thinking and Praying for you and your Daughter !!

deleted_user 07/13/2008

Another old post.

PeaceN2You 07/13/2008

OLD POST - THIS IS FROM 2007 - IT'S WAY OVER - OLD POST ALERT!!!

deleted_user 07/13/2008

So much stress. And I'm so sorry to hear your family is in such a place of suffering and distress. Frankly, I don't know if more meds will help you. If this were me, I'd do a quick get-my-ass back-where-it-should-be routine. I'd start with the stress. For me, that's meditation (not medication) and yoga. For you it may be music and dancing. I MUST attend to my spirit when I get in this place. Do you have a spiritual practice you can immerse yourself in? Any kind. Doesn't matter. Next, good quality sleep. Whatever it takes. Next, very very high nutrient content of diet. LOTS of fruits and vegs. Smoothies, juicing. A little lean protein. These are not quick fixes, but will help you gain strength for the long haul. Are you taking d-ribose, a very good multi, and B vites? This combo brought me back from zombi land. See vitality101.com.
I do hope and pray for some good news and good health to infuse your family.
Be at peace.

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