
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

deleted_user
Okay, just a random rant. I'm just SO tired of finding things to do to help my health. I just needed to let it all out to people who REALLY understand what I go through. This is my schedule for the week:
Monday--Drop off husband at work, interview phone company for article, drive to Myofascial Rehab clinic for consult, run to Dr.'s for pain refill, go to Walgreens to fill medication, come home (oh yah, all with a three month old to take care of!). Then, go home, call counselors to help with depression and FMS (still haven't found ONE single person yet to help me!). Read for classes, write response questions, research final papers, study for comprehensive exams, make dinner, clean apartment.
Tuesday--Go to Dr. for Zoloft refill and consultation, take hubby to work, study the rest of the day (between taking care of the baby), do research for article
Wednesday--Go to eye Dr. because of funny vision--drop hubby at work, go to class until 6:30 p.m. hot tub at 7 pm. (hurray!)
Thursday--Nothing THANK GOD! Except for studying, writing articles, driving around NM testing cell phone services and making dinner. Possibly lunch meeting with friend.
Friday--DAY OFF
Saturday--Weight Watchers Meeting. article writing, get books from library for research paper.
Sunday--Reading, Reading Reading
Monday--Start ALL OVER AGAIN!
For my FMS/Myofascial pain and depression I take flexeril, zoloft,, percocet. On top of all that I try and rest one hour per day, take warm baths, stretch on an exercise ball, sometimes do ab work and take walks (usually short), diet (cut out sugar, gluten, and dairy and yeast as MUCH as possible), go to the Spa (usually for the hot tub although once in awhile for massage). I've seen chiropractors, ENT's, gone to physical therapy, had MRI's and CAT scans, seen a rheum, a neurologist, a myofascial specialist, counselors and sports medicine doctors.
SOME DAYS I"M JUST SO SICK OF TRYING! I'M SO SICK OF BEING SICK AND TIRED AND I'M SO TIRED OF DR.'S WITH NO ANSWERS WHO HAVE THE NERVE TO TELL ME I'M TAKING TOO MANY NARCOTICS!
Is 90 percocet a month too much?
Okay, thanks for letting me rant.
Monday--Drop off husband at work, interview phone company for article, drive to Myofascial Rehab clinic for consult, run to Dr.'s for pain refill, go to Walgreens to fill medication, come home (oh yah, all with a three month old to take care of!). Then, go home, call counselors to help with depression and FMS (still haven't found ONE single person yet to help me!). Read for classes, write response questions, research final papers, study for comprehensive exams, make dinner, clean apartment.
Tuesday--Go to Dr. for Zoloft refill and consultation, take hubby to work, study the rest of the day (between taking care of the baby), do research for article
Wednesday--Go to eye Dr. because of funny vision--drop hubby at work, go to class until 6:30 p.m. hot tub at 7 pm. (hurray!)
Thursday--Nothing THANK GOD! Except for studying, writing articles, driving around NM testing cell phone services and making dinner. Possibly lunch meeting with friend.
Friday--DAY OFF
Saturday--Weight Watchers Meeting. article writing, get books from library for research paper.
Sunday--Reading, Reading Reading
Monday--Start ALL OVER AGAIN!
For my FMS/Myofascial pain and depression I take flexeril, zoloft,, percocet. On top of all that I try and rest one hour per day, take warm baths, stretch on an exercise ball, sometimes do ab work and take walks (usually short), diet (cut out sugar, gluten, and dairy and yeast as MUCH as possible), go to the Spa (usually for the hot tub although once in awhile for massage). I've seen chiropractors, ENT's, gone to physical therapy, had MRI's and CAT scans, seen a rheum, a neurologist, a myofascial specialist, counselors and sports medicine doctors.
SOME DAYS I"M JUST SO SICK OF TRYING! I'M SO SICK OF BEING SICK AND TIRED AND I'M SO TIRED OF DR.'S WITH NO ANSWERS WHO HAVE THE NERVE TO TELL ME I'M TAKING TOO MANY NARCOTICS!
Is 90 percocet a month too much?
Okay, thanks for letting me rant.
Posts You May Be Interested In
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
-
I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
The one thing that jumped out at me was your comment about your vision. That could be caused by the zoloft. Anti-d's can & do affect vision. Be sure & ask the eye dr about this.
Keep being proactive. Ask, ask & ask some more. I pray you are able to find a great team of drs, counselors & chiro... I'm starting to ask each one if they treat the WHOLE person rather than just the symptom...
Gentle Hugs
My advice would be to stop and give yourself some more you time. The hot tub sounds great but we know that looking after a baby gives you about three seconds spare in a day. Can your husband schedule some routine time for you to be on your own and have quiet time? You sound like you need to quieten your brain. I listen to guided relaxation tapes and that helps calm my brain last thing at night and helps me a little. Hope that helps
the one thing i would be very careful about is all the tylenol in the percs. you can ask for norco, the same thing but with almost no actemetiphin(which can damage your liver in large doses) or ask for roxycodone. they have no tylenol in them at all. thats what i take because i am scared of liver damage and my tummy is more sensitive to all the buffers than most.
i also take methadone. this, is where it gets a little scary. methadone they SAY, can take up to 22 days to detox. in reality, i have had friends complain that thier detox lasted for up to two or three months. suboxone can also be used for this, but you have to switch to taking regular opiates for a few days to get the methadone out of your system first or else it will send you into instant withdrawels.
doctors and people throw around the word "addiction" like its the boogeyman. a bad addiction is only bad because you start to avoid loved ones, and it distracts you from what is really important in your life. you lose your job, your house, your car, your dignity. everything. thats when you hit "rock bottom."
we take pain meds so we can ENJOY our lives. honestly, if you have been taking pain meds for a few months in any amount you will go through some withdrawels when you stop cold turkey(with no other medication to ease withdrawel symptoms)
i can't imagine what my life would be like without the medication for pain. it would just be awful. i study bio-psych as well. i know that being in pain constantly, puts a lot of uneeded stress on your body. releasing a hormone called cortisol. this hormaone can break down cell tissue and cause other side effects like causing a weakening of your immune system.
it is healthier to take what you need to get rid of your pain. yes. be addicted to drugs. it won't hurt you as much as the fibro pain and the cortisol. there can be no morality attatched to a substance. its just a medication. who you are has more to do with how you handle having an addiction. sounds like you are handling it fine. these drugs were meant for this exact purpose. to kill pain. nobody deserves to be in pain. methadone is so good because it lasts for so long. but all other meds. even the really, really strong ones, like diluadid and morphine. they take the same week to get over as the percoset. i have been through so many of these weeks i can't even count them any more. i have survived them all. usually some rest and some valium or klonipin or xanex or all of the above combined(do not take all of them at the same time, i meant each drug on seperate days has worked before because i took what i could find at the moment) will get you through. i have done it without anything to help me. fibro is worse. trust me. you are already beating the crap out of syptoms that would make most junkies cry like a baby. don't ever feel guilty for taking what you need to live the life YOU want to live. you have a right to accomplish ALL your dreams. congrats on doing just that! a family, work, school, being active in fighting a disease. way to go!
you are obviously a strong person with a very strong will. not the type of person brought easily down by an addiction. keep fighting the good fight. don't let anyone ever tell you or make you feel guilty for taking what you need to enjoy life. talk to your doc about possible liver damage and ask for something with less tylenol if it is a concern. or maybe you need one or two stronger pills that you can break in half and take once a day. or twice a day if you need it. i take one dose of methadone in the morning (about thirty mgs) and then take another around 8 or 9 at night after i am sore from moving around all day. (usually anothr 10 or 20 mgs depending) this weather change has increased my dosage. i usually took half of that a day. find what is right for you. whatever keeps you out of pain for the longest amount of time.
ironicaly, most of these anti-depressants these doctors are throwing at us have longer and nastier (mentally and sometimes even physically)) withdrawels then for opiates. but they never warn you about the addictive nature of psychotropic drugs. they hand them out like candy. many of these drugs have not been tested on a varied enough group of people or for long enough. these drugs change the chemistry of your brain!!! it should never be taken or prescribed lightly. of course opiates change your brain chemistry as well, but they work on your already built in pain killing system, and act as our natural endorphins would.
i lived out in san francisco for awhile when i was studying bio-psych. i saw on craigslist all the ads for drug companies looking to pay people to test out new drugs. people lie to get into paid studies. haha. people addicted to drugs! they lie and even sometimes don't even take the meds and then make up the results. drug companies make so much money off of anti-depressants. think about the cost of these "new" anti-depressants compared to the cost of one months worth of methadone or one months worth of persoset. 25-40 dollars right? then think of how much it costs without insurance for one months worth of an anti-depressant. hundreds of dollars. a drug must be on the market for 25 years before the company loses the patent and then there can be the generic version.
some people really do need the anti-depressants. depression is a terrible thing to go through. i also had anxiety and panic disorder that caused me a great deal of depression, from 15 years old till now. i believe in the power of cognitive therapy. anti-depressants should be a last resort, not a given. sometimes it is only the circumstances in a person's life that causes a depression. like say, having a chronic illness that causes a lot of pain that is impossible to "test" for and is even thought of as "being all in your head" by some people. websites like this one do more good for a lot of people then a pill ever could. sorry for the length of this response, but i just get so frustrated when doctors warn you against the dangers of addiction and don't give you the pain killers you need, while giving you, God only knows what, type of new anti-depressant that just came off the shelf. always research everything yourself before you take it. i have found that ex junkies like me usually know more about drugs than the doctors! some might call me a junkie now because i take pain meds. screw them! my life now is a hell of a lot more productive and peaceful than when i was using off of the street! i use my medication, i don't abuse it or myself by taking everything some "doctor" hands me.
oh yeah, one last thing. doctors are given free samples of new drugs. often drug companies will also give docs package deals like trips to the bahamas and other "perks" for writing so many scripts for a certain drug. maybe its an urban legend, but when it comes to some doctors and all drug companies, i wouldn't be suprised by anything unethical.
you rock by the way. stay strong and proud. hold that head up high because you have earned it!
love to all of you and please excuse any spelling errors.
kris