Be honest, say 'not so good' or ' had better days' or 'awful'. If these ppl are sincere and really do want to know, tell them. I say different things to different ppl. My Mum, hubby and kids I'm totally honest with, am the same with my best friends. Others that are acquaintances I use those above. A total stranger I tell them 'you don't want to know'
Warm thoughts and hugs, Owlxx

I feel the same way if you come up with something let me know, cause you know they care about us but really don't understand that we don't want to sound like hypocondriacs so we say ok or managing. To them we are ok, right. UGH!!! Just put me under the rock!!

For most people, a short, truthful answer will suffice. You don't really want people who care to stop asking, that could leave you feeling sort of alone after awhile. Just say something like, thanks for asking, today's not bad; or, I'm really tired today, but the pain is better than yesterday, oe whatever. If they want more details, they'll ask, if not, they at least have a clue of how you are and what you're able to do that day. If you know they're just basically saying hello, I'd just say thanks, i'm pretty good, how are you? and let it go. You don't want to go into details with everyone you see.

when I feel ok...I say Great...when I feel totally crappy I reply "Am above ground'...and move straight on into another subject...
I do have to say...and I know this is gonna come off so very bad...cause I know the intention is good...but when people ask ALL the time if i am feeling BETTER yet....drives me INSANE....NO! I do NOT feel better YET!! and until they find out what this Monster is lurking inside of me I Won't feel BETTER....Ok...got that OFF my chest...now I feel better...ty.
lol

listen to what you wrote "I wish caring people would stop asking me how I am"...they are asking you because they care. What I dont know what to reply to is when a doctor first comes into the room and asks you how you are lol. If you dont feel comfortable saying OK to your friends and family just say "I've had better days" that usually works for me. If I know the person real well I say "I'm shitty how are u?" And that gets us both to laugh.

I agree that you really don't want people who truly care about you to stop for good do you? It would get bad after a while. I'd honestly start thinking nobody gave a sh1t about me anymore.

I think it depends on how close the relationship is. If it's someone I know well, I'm honest, and say, "Not a good day." or "Pretty crappy today" but if it's someone that I rarely see or just someone at church, I'll say,"Oh, hangin in" or "Yah, ok". I don't go into detail unless they ask. I don't really like it when they do, because I hate PITY! I don't want to be pitied. Understood, yes, pitied, no! There's a real difference.

Just find a few answers that stick with ya, and use those. Hope you get to feeling better. This is a frequently asked question, don't feel alone.

IF I AM FEELING HORRID I SAY HORRID IF I AM FEELING SO SO I SAY SO SO. I DON'T PUT ON AIRS FOR ANYONE WHEN IT COMES TO THIS,
TRISH

How about:
"I've been better, I've been worse. Thanks."
and leave it at that. People do care about us, it's this disease that even I can't understand myself let alone tell anyone else about it without sounding crazy or lazy or both.
I think whatever makes you comfortable & okay with yourself is the right answer.
God Bless...:)

For those that I know are honestly asking I tell them exactly how I feel. Most of the time I say having a rough day. Or having a pretty good day. For those who are just asking I will say been better or I'm ok. As for the doctor they kinda fluster me at first but then I answer them truthfully too. Figure they want to know so I tell them.

I always take a leaf out of my fathers book, who even when he was in the hospice, dying of cancer, when you asked him how he was feeling (stupid thing to ask I know) would say, "Fantastic".

I have always replied "Peachy" even before I got sick. It is meant any way you want to take it. And I can mean it anyway I want and if someone questions me I can go into detail but Peachy works for me.
LOVE
TAM

I usually say "I have good days and bad days" or "thank you for asking, how are you?"
It's hard but even if I am awful everyday, I now tell my core supporters the truth all the time.

most of the time people avoid me,some will even turn and go the other way,not because of my Fibro,But because of my daughter being killed,they are'nt trying to be rude they just don't know what to say. I live in a very small rarul town and everyone knows everyone.Sometimes it would be nice to have someone ask.So plz don't be upset with the people that care about you,Just answer honestly and move on to next subject.(((HUGS)))