I have a neologism (new word) for us: Wowchies. The ouch so sudden and surprising, you say "Wow/ouch" (or WTF/ouch) and now, wowchies!
Or it could be a bizarre dog breed. Eh.
Today, friends, I ask your help.
Please, if you know anything in real life experience --- not internet --- about kids who develop heart problems between ages 10-15? Not congenital! --- pls PM or ping me, okay? One of my godsons is having a new issue and we're not sure how long he has. He's only 13. Started sliding downhill badly a year ago almsot to the day, with non-specific dysautonomia diagnosed, and now he's getting cardiac stuff bad enough that he needs a stress test. His mom is distraught, his dad's being a dickhead, and we just don't *know*. He's declined so bad from dysautonomia --- an dusually tht's just a tendency to get dizzy or faint easily (blood pressure drops on standing, or vasovagal nerve twigs and you go down, not exactly life-threatening stuff!) --- but he can't even go to school anymore.
We may/may not know more within a *month* --- he has to go to a big city for a lot of neuro, cardio, and other testing --- but....
Please, include my friend in your prayers, in whatever way you pray or send good vibes to the cosmos, that she'll have the strength she needs and the good luck she needs, even if that good luck means she gets her dickhead husband to be okay with her taking a leave of absence from her job. SHe teaches kids her own kid's age, and it's about killing her to be with them and not him while he's this weak and ill. And if the prognosis is bad? She wants, understandably, to spend her time with her son. Not have him at home with a nurse. He's on monitors even at home. The heart one isn't showing anything too bad at home, but the arrhythmias at his school? His fatigue, his decline, his alarms going off every night?
Her husband, whom I've known as long as I've known her, and they've been together since 1984, btw? Suddenly she is finding out what kept him out late... on FACEBOOK. Oh sweet mother of God. I can't express how upset I am with him for this. He's a better man, I really believe(d) that. I mean, when our *cats* are terminal, my hubby cuertails his social life, if onlky so I can have a break from caretaknig, and taht's *pets*. This is his only child. I *know* in my head -- oh, I know -- he's in Denial Mode, but if he doesn't snap out of that in time? If, God forbid the worst happens? He'll lose his marriage and wife along with his son's life.
I'm still reeling, obviously, or I wouldn't share so much on a public space.
Just, please, pray for my friend. She's so good-hearted. ONe of our other friends (the other BFF of our Terrible Terrifying Trio) is divorced and needs a home and she's letting that person an d that godson of mine (I have 7) move into her in-law suite that was meant for her own dad, until they can get their feet under them. While all this happens, no less. (Her dad refused the in-law suite. Then moved in with her sister, who hasn't got one. The sister isn't laughing, but I think the dad is. He tag-teams her with her teenagers. Every parent's dream, right? Your teenagers and your elderly parent ganging up on you.)
Wow. Ouch. Wowch. Wowchie. Oh...
Be warm, safe, dry, and comfortable and comforted. Puma purrs including everyone, and lighting candles to keep us whatever it is a lit candle should keep us.
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