I was calling to find a dr. who treats Fibro, since I thought I found one while doing a search on the Internet. Turns out he was a Rheumatologist. It took me several different people on the phone, but I finally got the response, "actually, no he refers Fibromyalgia patients to a primary care doctor because he treats a lot of REALLY SICK people" so basically the Dr. doesn't want to waste his time on ones like us. My best friend has Rheumatoid Arthritus. She's on some of the newer drugs that are working wonders for her, which I'm so grateful for. She actually does ten times better than myself on a day to day basis, and she's not on any pain meds for pain, because most of the time it's under control. Now I do think RA and other associated Rheumatological diseases are much worse in that the body is actually attacking itself (joints) and deteroriation sets in, but with these new meds, it slows that and even stops that which is wonderful. This being said, I don't mean to compare them, because really, they are very different and honestly I feel very glad that I don't have something like that...however, Fibro may not be deteriorating my joints, but it controls my life in such a way that renders me quite disabled when it comes to a job, relationships, ect, ect.. it affects my emotions rendering me depressed (in spite of the ssri's I'm on), and in pain all of the time. Some days worse than others. WHO IS GOING TO TREAT US THEN?? WHO IS GOING TO CARE ENOUGH TO TAKE OUR PAIN MANAGEMENT SERIOUSLY IN SPITE OF THE FACT THAT SUPPOSEDLY IT'S NOT DOING ANY REAL DAMAGE TO OUR BODIES? ALL OF THE PRIMARY DRS I HAVE COME ACROSS LACK THE KNOWLEDGE AND DESIRE TO TREAT PAIN ON A LONG TERM BASIS. I recently went to a pain mgmt clinic since my primary recommended this since she was clearly not comfortable treating my pain on a long term basis, so I went with the hope that I will have a dr. that will work along side with me on a long term basis to keep it under control and help me live as normally as I can. It turns out pain clinics are just meant for you to go maybe a year at most. WEll, THEN WHAT??? I'm back to trying to find a dr. that will treat my pain for an illness that is invisible to drs because there is no "known" cause or real deterioration going on, so we are neglected and tossed aside, going from one dr. to another. I have realized that WE MUST TAKE CONTROL and simply tell them what we need and or want to try. If they say "no" then we find someone that says "yes." The drs simply do not know more than us with this "syndrome" so we must arm ourselves and basically treat ourselves, and be darnright aggressive in our search for treatment. Thanks for reading my rant since it helps to write it down, and just want to encourage all of us to really be our own advocates and start taking control since this is OUR life, and no one is going to care more about it than ourselves, and I do believe that there are meds out there that can helps us significantly with our pain. Trick is finding a dr. who will want to, and knows about pain management.
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