Hello to all,
Well, I finally had my appointment with the rheumatologist with regards to Sjogren's-like symptoms. (dry eyes, dry mouth, dry nasal passages, joint pains, etc.) She confirmed Sicca syndrome and had some blood work drawn. She wants me to see the ophthalmologist for my dry eyes. In the meantime, I am trying the Biotene products (Fantod you suggested these as well). The mouth wash makes my mouth feel really good and then it wears off. I'm going to keep using it and hopefully, it will work longer over time. She said we can try Salagan (which you guys mentioned as well) if the Biotene doesn't work. She also wants me to check in with the dentist. I don't like the dentist. I have to find a good one because I've had bad experiences in the past.
She is waiting for the bloodwork to come back before deciding on a trial of Plaquenil. Due to my daughter having RA (and fibromyalgia) and my sister having an autoimmune condition, she's thinking we could try Plaquenil however, it may not help with all of the dry symptoms. The dry eyes, mouth, and driving me up the wall! I keep waking up drinking water all night for the dry mouth and thus peeing all night. It seems like salty foods make everything worse.
I did get the saline nasal spray that Fantod mentioned and it does help to soothe the nose temporarily. I just have to get some sugar-free mouth products besides the mouth rinse to suck on all day.
Thank you ladies for all of your help with commenting on my last post. I appreciate each and every one of you that responded and have offered suggestions.
Wow, I am doing... well, rotten, really, LOL.Weather change. Stress. PTSD stuff. I am terrified to see Mom this Sunday for Mothers Day. I just don't want to see her. I don't want to see that she needs rescue, and have to walk away from it. I don't want to see her treat us badly for doing better by her than she did by *her* mother. And now our next-door is bitching at Hubby about somethign we do,...
Been awake since 230 am again from nightmares/flashbacks of seeing dad on life support over teh ipad when he was dying. I miss him so bad i keep breaking down..................I want my Daddy back!!!!!!!!!!!!! But heathy!!!!!!! Sunday is mothers day, my angel babies are in heaven all 4. I cant take this pain from losing so many its so hard!!!!!!! My heart is just shattered right now..............