Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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deleted_user 10/22/2007

I haven't really responded to a lot of the conversations lately because I was so disappointed with all the negative and nasty things that were being said. I have no idea who the people are/were but the majority seemed to want these people to leave the site.

You know, I'm 61 and I still think people are good for the most part but that doesn't mean all people are and I know that. It's just when I found this site and all the information that was shared I was really glad to find a place where I could vent and/or help when needed. It never entered my mind that some emotional predator would be out there just looking for their next victim. Like I said I thought about quiting but then thought why should I leave? We all should keep together and not allow anyone to harm or target someone with abusive words.

It's just so hard to believe that here we are just trying to find a place where people know what we are talking about because we all know most of the world doesn't have a clue, and then we get some freaks trying to hurt people! It was so hard to read all that stuff and after all, don't we all hurt enough?

I just appreciate all of you so much and I'm so glad you all share your feelings. Because you do share I found out I wasn't the only one suddenly sweating from my scalp and face. I kept telling my doctor and she couldn't figure it out and then one day someone asked if anyone else did and there were lots of responses. It made me feel better which isn't really nice to say but I think you all know what I mean!

Thank you all for being here and I will do my part to help keep our little world peaceful and helpful.

Nancy

deleted_user 10/22/2007

Oh Im so sorry that you felt that way. Its going around. I think we can all get back on track and make this site what its supposed to be right?

deleted_user 10/22/2007

Amen, Nancy. Thank you for reminding us all what this site is all about. DS is my lifeline and 99.9% of the people here are so caring and supportive.

New people come here all the time and we never know who is reading and not posting.

Gentle Hugs to ALL!

CarrieinSK 10/22/2007

I have learned so much from the short time I've been here.

I do have supportive friends, hubby and kids but not so much with my extended family. I also found I was in a pain rut. Too tired to even go to the doctor to get meds! (how sad is that???) so I decided to get in and get in and get some tests done. This site gave me that encouragement I needed to go and try an new pain med. So far, so good and feeling better than I have in years.

deleted_user 10/22/2007

THANKS FOR THE FOR ALL THAT YOU ON YOUR RESPONSE. I KNOW WE DO QUARREL AT TIMES BUT WE SEEM TO GET OVER IT PRETTY QUICK TOO B/C THAT IS WHAT FAMILY DOES, GET OVER IT...THANK GOD WE HAVE SOME MIGHTY WOMEN OF GOD ON THIS SITE AND TONIGHT WE ARE WORKING OVERTIME, BUT THEY ARE MY FAMILY AND I DO LOVE THEM.
DO GLAD TO HEAR THAT YOU ARE FEELING BETTER!!! I PUT YOU ON MY PRAYER LIST... THAT IS HOW I OVERCOME THE MAYHEM, I PRAY . I PRAY THAT YOU GET COMFORTAVLE HERE AND STAY WITH US....BLESSINGS...HELEN

deleted_user 10/23/2007

Don't go. I just came along not too long ago and you have been very comforting and pleasant. I hope you hang in and just take what is good and leave the rest behind.:}

deleted_user 10/23/2007

I know what your talking about, from day two, I thought what the h@!! am I doing here? People are saying it's all "warm and fuzzy" here...BUT I'm not seeing it!! I need some place just like this, but I'm not sure THIS is it!!! So I kept searching...but not much luck! I kept coming back, but I still wasn't sure this was the place for me!!

I'd just like to say... Thank-you all!!! (now I'm gonna cry...)

Cindy

deleted_user 10/23/2007

I'm so glad that you're staying. I'm still fairly new here, but DS has been such a positive experience for me. And I really needed some positive in my life! Don't let anyone run you away! Hugs

deleted_user 10/23/2007

Some of the posts can get uncomfortable, but if we all work on keeping this site supportive it will do its job. Like someone already said, the majority of people are really nice and there aren't many places that you can go and get the understanding you get here. I hope you are all in as little pain as possible!! Hugs and more hugs, Donna

deleted_user 10/23/2007

I understand, but you must remember that the world is growing more and more tainted by hate. No place you go will ever be free of such people. You are much older than me, so you may remember the past when things were far better, people were kinder, etc.. That is not the case. The majority of people in my age group are out to hurt others emotionally just to feel better about themselves. I am not one of them, but I am saddened that I must share something in common with them at all (age).

Please, don't leave. Think of it this way. There are some people here who are hurtful, but if you leave, they will have won, not to mention we'll have one less good person around. If you stay, you will have shown you have not let them push you away, and the community will have another good member. The more, the better.

So please re-consider. :)

deleted_user 10/23/2007

Hi Nancy,
I have been here for awhile, and don't respond alot on the boards, but, I have met so many wonderful people here.
I was like you, I thought I was the only one having problems with my drenched head and face. I found out the same way you did, my wonderful DS family.
It was about to run me crazy because, I couldn't figure out why I was sweating so bad.
Stay with us and we can all sweat together. LOL
Hugs

deleted_user 10/23/2007

Glad you decided to stay.Best thing is not to respond to that stuff. It upsets me too. marilyn

deleted_user 10/23/2007

can I please put in my 2 cents worth? we all have choices we can either click or delete. lets not let a few bad apples spoil the bushle basket. enough said.. lol

deleted_user 10/23/2007

I am new but I had placed a post asking about that same thing (sweating in head and face) on my very first post and a kind person directed me to a conversation about that very same thing, so I did not feel alone. I find this site, informative and refreshing. I haven't posted alot, but I do find it informative and like it has been said before, I am not the only "rat on a sinking ship." ROFL. I liked that quote!

deleted_user 10/23/2007

Every once in awhile, someone will come along who wants to take advantage of others or just be hurtful. It's really sad but true. But I've realized that we should never compromise our integrity. We should never forget that this place is for support..

mynameisD 10/23/2007

Nance, I am glad that you decided to stay. Sometimes people are in so much physical and emotional pain that they are enraged. They can't turn that rage on their loved ones, so they pick fights with us. We on the other hand, have figured this out and do not allow it to go unchecked. So from time to time someone stirs the pot, and it may take a little while to calm the waters again, but we do succeed. I am glad that you have faith in us all. 99.9% of the people are warm, loving, supportive people. You may never see their faces, or hear their voices, but they will become closer to you than your own family. I wish you the peace that I have found here.

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