
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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WENT TO THE DR TODAY. AFTER WAITING TIL ALMOST 3PM, ON AN EMPTY STOMACH (WITH A BLOOD PRESSURE OF 110/62), NEEDLESS TO SAY I WAS AGITATED. THE p.a. WAS MIFFED 'CAUSE IT GOT BACK TO HER THAT I QUESTIONED WHY SHE TOOK A CHART FROM THE BACK OF THE PILE...BLAH BLAH BLAH.
SHE STARTED GIVING ME A HARD TIME WHEN I TOLD HER I WAS THERE FOR SCRIPTS. WHEN I MENTIONED THE HYDRO, SHE WENT INTO A TIRADE ABOUT HOW IT IS ADDICTIVE AND WHO PRESCRIBED IT??!! THEN SHE STARTED IN ABOUT MY WEIGHT AND SHE REALLY GOT ME STARTED...GEEZ. WHEN I ASKED FOR MY SOMA, MORE OF THE SAME CRAP. "WELL, I'LL GIVE YOU A SHORT SCRIPT, BUT YOU HAVE TO GO TO RHEUMATOLOGIST, PAIN MANAGEMENT. I HAD ARGUMENTS AGAINST BOTH. KNEW I WAS BEING A PAIN, BUT SHE REALLY WAS MAKING ME WANT TO BLOW HER BRAINS OUT!
SHE LEFT THE ROOM, AND SOME TIME PASSED. NEXT THING I KNOW...A NURSE COMES IN LOOKING TO TAKE BLOOD. I WENT NUTS AT THIS POINT AND ASKED "WHAT THE "HECK" IS THIS"??? WHAT DOES SHE WANT, A TOX SCREEN?" AT THIS THE NURSE GOT NERVOUS AND LEFT THE ROOM AND THEN RETURNED, AND REPEAT...LOOKING AT THE BLOOD ORDER, YEP THAT IS EXACTLY WHAT SHE DID! NEVER EVEN CAME BACK, THAT COWARDLY #@*$@#!!
I GAVE THEM THE BLOOD, AND THE URINE...MY GOD, WILL IT EVER END?
I CAUGHT MY DR AND YOU KNOW WHAT HALF BRAINED THING SHE SAID...IT'S COMMON PRACTICE WHEN SOMEONE IS ON PAIN MEDS. WE NEED TO KNOW YOU ARE TAKING THE MEDS. WHAT??!!!!!! YOU THINK MAYBE I AM SELLING THEM ON THE STREET CORNER??!! IF ANYTHING, YOU WOULD BE LOOKING TO SEE IF SOMEONE WAS ABUSING THEM, NOT IF THEY WERE TAKING THEM.
NEEDLESS TO SAY, I WILL FIND A NEW OFFICE. 10 YEARS I WAS GOING THERE!
GONNA STOP NOW, BEFORE I HAVE A NERVOUS BREAKDOWN. THANK YOU ALL FOR LISTENING AND FOR YOUR SUPPORT. TO THINK, AT THE AGE OF 50 TO BE THOUGHT OF AS A POTENTIAL DRUG ADDICT! AMAZING!
JERI
SHE STARTED GIVING ME A HARD TIME WHEN I TOLD HER I WAS THERE FOR SCRIPTS. WHEN I MENTIONED THE HYDRO, SHE WENT INTO A TIRADE ABOUT HOW IT IS ADDICTIVE AND WHO PRESCRIBED IT??!! THEN SHE STARTED IN ABOUT MY WEIGHT AND SHE REALLY GOT ME STARTED...GEEZ. WHEN I ASKED FOR MY SOMA, MORE OF THE SAME CRAP. "WELL, I'LL GIVE YOU A SHORT SCRIPT, BUT YOU HAVE TO GO TO RHEUMATOLOGIST, PAIN MANAGEMENT. I HAD ARGUMENTS AGAINST BOTH. KNEW I WAS BEING A PAIN, BUT SHE REALLY WAS MAKING ME WANT TO BLOW HER BRAINS OUT!
SHE LEFT THE ROOM, AND SOME TIME PASSED. NEXT THING I KNOW...A NURSE COMES IN LOOKING TO TAKE BLOOD. I WENT NUTS AT THIS POINT AND ASKED "WHAT THE "HECK" IS THIS"??? WHAT DOES SHE WANT, A TOX SCREEN?" AT THIS THE NURSE GOT NERVOUS AND LEFT THE ROOM AND THEN RETURNED, AND REPEAT...LOOKING AT THE BLOOD ORDER, YEP THAT IS EXACTLY WHAT SHE DID! NEVER EVEN CAME BACK, THAT COWARDLY #@*$@#!!
I GAVE THEM THE BLOOD, AND THE URINE...MY GOD, WILL IT EVER END?
I CAUGHT MY DR AND YOU KNOW WHAT HALF BRAINED THING SHE SAID...IT'S COMMON PRACTICE WHEN SOMEONE IS ON PAIN MEDS. WE NEED TO KNOW YOU ARE TAKING THE MEDS. WHAT??!!!!!! YOU THINK MAYBE I AM SELLING THEM ON THE STREET CORNER??!! IF ANYTHING, YOU WOULD BE LOOKING TO SEE IF SOMEONE WAS ABUSING THEM, NOT IF THEY WERE TAKING THEM.
NEEDLESS TO SAY, I WILL FIND A NEW OFFICE. 10 YEARS I WAS GOING THERE!
GONNA STOP NOW, BEFORE I HAVE A NERVOUS BREAKDOWN. THANK YOU ALL FOR LISTENING AND FOR YOUR SUPPORT. TO THINK, AT THE AGE OF 50 TO BE THOUGHT OF AS A POTENTIAL DRUG ADDICT! AMAZING!
JERI
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ABUSING MY MEDS??!! JUST THE FACT THAT I DON'T TAKE THEM ON A REGULAR BASIS! I COULD NEVER FUNCTION IF I WAS ALWAYS TAKING THEM. SO, I SUFFER WITH THE PAIN TO GET THROUGH MY DAY. YEAH, I'M CRAZY. MOST PEOPLE TAKE THE MEDS TO GET THROUGH THEIR DAY. I DON'T LIKE BEING SO TIRED, SO I SUFFER. THAT IS WHAT MAKES THIS ALL THE MORE RIDICULOUS.
OH WELL, THANKS FOR THE SINCERE ADVICE AND SUPPORT,
JERI
JERI
Do you mind if I ask if you've ever thought of trying something 'natural' for lack of a better word? I don't mean to be insulting, and am by no means discounting your pain or suffering, just wonder if you've ever read anything on fibro from an orthomolecular medicine point of view. What it is is working with the body's system to repair them using supplements like amino acids and the like.
One thing being used in pain clinics around the country and even by vets is the amino acid DL-phenylalanine. My journal entry from yesterday [10/16/07] deals with the subject and has some links in case you're interested.
What DLPA does is regulate your brain chemistry so your brain can sort out 'important' pain from that it needs to ignore.
One of the main theories of fibro that I truly believe is that the neurotransmitters in our brains are out of wack resulting in all the truly crazy and insane symptoms that make us look like fools. One of the main neurotransmitters, serotonin, is usually low and is why they put us on antidepressants. The problem with long-term antidepressant use is that they don't help the brain produce fresh serotonin, they just prevent what's there from being reabsorbed. Sooner or later you're running on fumes as the meds become less and less effective.
When serotonin is low, the pain neurotransmitter Substance P skyrockets as serotonin is needed to keep it in check. Excess substance P is why things like wearing a bra is often excuriatingly painful for someone with fibro. A 'normal' person who isn't deficient in serotonin doesn't even notice such things as their brain is doing it's job in filtering out stimuli that shouldn't be preceived as painful.
Back to the DLPA. I've been taking various amino acids to regulate my brain chemistry for about 6 weeks now and have noticed my pain level has decreased. That's saying something as the barometric pressure has been extremely low and in past years days like this meant nothing but pain and agony.
Well, enough pontificating. Hope I didn't offend you.
It is so so hard now days to find a good doc, esp. for fibro but do not give up. You will find one.
I just wanted to add that i went the natural route for years, i payed mucko bucks, out of pocket, had to use my charge card, my insurance would not pay for any of these meds because i didnt need a script for them, even after doc fought with them they still wouldnt pay for them.
I have to say to u again, do not give up, u will find a doc, just hang in there for now. my meds get me thru each day. i wasted so much $ on the natural meds, and took 15-20 a day and they did nothing for my pain. If u do go that route please research each and everyone. Just be careful if you try that route. I had some bad side affects also. I have only found that very few benefit from the all natural meds. Im so glad it works for some but for as bad as the fibro pain gets i will take my chances and stay on my narcotics. they truly help.
There are more and more docs out there that are becoming more familiar with fibro.
Is your doc a general practicioner? have u seen a neuro or rheumo?
I see a rheumo and he is awesome. I couldnt get out of bed without my meds.
I know how frustrating it is.
hang in there.
I too have taken antidepressants for yrs, did not even help much as anti depressants! I take fish oil and vitamins.
Funny thing is, my brother has been taking pain meds for yrs (the "big guns"), and has never been subjected to this. I must admit, I was at the end of my rope by the time she came in the office, so there was no stopping my arguments! I felt it was about time! lol
Thank you all for your continued advice and support!
Warmly,
Jeri
GIVE ME A BREAK!
JERI