Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
After really thinkng about this whole subject, I wondered what upset/frustrated me the most about the situation.
I came to the realization that I, and others it seems, have a problem with not so much the "game", but what this Title of 'Queen" implies to those of us who are unaware.
When I first starting seeing this queen-business, I did not participate, because frankly, I do not have the time. I would scan through the posts for discussions, and choose what related to myself. Simply looking for answers in trying to deal with this SOB fibro crap interupting my life.
In trying to explain why myself & others are insulted by the "queen-stuff", is because there were so many posts about this topic. I started feeling like I was no longer a part of this supportive site, and therefore did not belong. I felt out of the "group".
Think about it, Queen definition/implications: Empereor, Superior, Monarch, Sovereigh, Better than, Excellence, Supreme ruler, Boss...etc.
Wow! Such powerful Titles for someone on a support site. Who is this person? Honestly, I do not even know them. What rose them to such an important role on this, once again, supportive site? For newbies and others as myself, who only occaisionaly get to visit the site due to work, it was a bit confusing.
Does this "queen" have all the answers? Has she licked the fibro problem? Why her?
If you look back months ago, we use to have members such as Elvanley, Blue Mist, Penny59, etc., who I found had profound knowledge and helpful hints, but we never put them above others. No, because we are all equal here, unfourtunaly, dealing with this dreaded crap wreaking havoc in our bodies.
Maybe I am just getting at, that perhaps you change the name of the game. Like, OT-Playtime or OT-Fantasy game etc. Therefore it will not sound so much like a "clique" or exclusive club.
Well, this is only my perspective. Bottom-line is, I need you guys. You are the only ones in my life that relates to how this fibro-crap is impacting my life. I feel I can ask all of you anything and not be embarassed.
Sorry this is so long, and hope I have not offended anyone. Just trying to clarify how I and others are preceiving what's going on.
Thank you for reading and possibly understanding. You are all precious to me.
Love ya like the Ocean, Mel
I came to the realization that I, and others it seems, have a problem with not so much the "game", but what this Title of 'Queen" implies to those of us who are unaware.
When I first starting seeing this queen-business, I did not participate, because frankly, I do not have the time. I would scan through the posts for discussions, and choose what related to myself. Simply looking for answers in trying to deal with this SOB fibro crap interupting my life.
In trying to explain why myself & others are insulted by the "queen-stuff", is because there were so many posts about this topic. I started feeling like I was no longer a part of this supportive site, and therefore did not belong. I felt out of the "group".
Think about it, Queen definition/implications: Empereor, Superior, Monarch, Sovereigh, Better than, Excellence, Supreme ruler, Boss...etc.
Wow! Such powerful Titles for someone on a support site. Who is this person? Honestly, I do not even know them. What rose them to such an important role on this, once again, supportive site? For newbies and others as myself, who only occaisionaly get to visit the site due to work, it was a bit confusing.
Does this "queen" have all the answers? Has she licked the fibro problem? Why her?
If you look back months ago, we use to have members such as Elvanley, Blue Mist, Penny59, etc., who I found had profound knowledge and helpful hints, but we never put them above others. No, because we are all equal here, unfourtunaly, dealing with this dreaded crap wreaking havoc in our bodies.
Maybe I am just getting at, that perhaps you change the name of the game. Like, OT-Playtime or OT-Fantasy game etc. Therefore it will not sound so much like a "clique" or exclusive club.
Well, this is only my perspective. Bottom-line is, I need you guys. You are the only ones in my life that relates to how this fibro-crap is impacting my life. I feel I can ask all of you anything and not be embarassed.
Sorry this is so long, and hope I have not offended anyone. Just trying to clarify how I and others are preceiving what's going on.
Thank you for reading and possibly understanding. You are all precious to me.
Love ya like the Ocean, Mel
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I saw no inferred importance on anyone when they took this title or that one. It was just make believe... just like any other game we play at home. Roles are assumed and the game is played. {shrug}
Were there too many postings involved, yes, in the beginning. But those involved were trying to restrict the game to a single thread. They've also been trying very hard to ignore the nasty posters that come in occassionally to snipe at them.
Whether or not it continues is not important to me, as I was never really into it. But I do think they should be allowed to play it provided it's kept down to a dull roar! ;) LOL
Especially for Newbies, you know first impressions speak volumns. I also have refered people to this site and did not want them to get the wrong impression, but to see the site as a helpful place with answers.
Hope this makes sense. Love,Mel
This is a GAME. Agame of FANTASY. The Queen is not real. Dixie is not a real cat. We do not have real gowns encrusted with jewels, or a fairy with magic dust. Sadly, we do not have real unicorns, or flying horses, or any of our other magical things. We use our imaginations and have a marvelous time! The battles are the most exciting part of all. Perhaps you could see the 'enemy' as fibromyalgia, accompanied by our other aches, pains and illnesses. It's a game!
I'm glad to hear you opinion on the game. It is so important to communicate our feelings and our perception of things. Yours is one that I had not thought of before but I can understand how you could feel that way.
A comprimise has been suggested throughout many different threads over the last few days. I don't know if you are aware of this because you have so little time to be here. It has been suggested that the game be kept to one thread only so that it does not seem to monopolize the board. This seems to be acceptable to most people from what I read. (this is just my perception though.)
For others who feel as you do, seeing only one thread on the game might feel less intimidating.
I've copied what I wrote on another thread rather than rewrite my thoughts, so that another view can be expressed.
I want to thank everyone for being open to and showing respect for other's opinions. That is the only way to solve problems.
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" I've been here 1 1/2 weeks, just about the time the discourse started. At first I completely stayed away from those threads and found plenty of other topics to discuss, learn from, and contribute to. Eventually, the problems seemed to invade posts that had nothing to do with it, so I began hearing about what was going on. Finally I read what I could to get an understanding of the issues. I have to say though that until today, I never underdtood the issue with the Queendom until kabellado mentioned how 4-5 new threads about the game would appear on the front page. I can really understand how that could be annoying and am so happy that all agree that keeping the game to one post will be an easy solution.
I participated in the game the other day and noticed many new members joining in, so I'm not worried that the participants are only "the same few". I'm also sincerely hoping that much has been learned by everyone from this whole experience and that now is the time to trust that everyone will do their best to not intentionally hurt anyone, If we remember that good ol' Golden Rule that has been referred to before.
I love all you guys, even in the short time I've been here, and I respect everyone's opinions, needs, and differences; and I believe that I am not alone in this. Let's work for peace among us as hard as we work to be well.
Love you all,
Jan
Love, Mel
I didn't know who or what the queen biz. was about at first and so in order to know the real deal I checked it out!
That's how one sees if they either like or dislike something...they just check it out and see for themselves and even though I saw that it was a might strange to go on about flying pegusu's and choclate fountains in the golden courtyard I figured I had missed out on some vital piece of info that made them want to talk about such things! So I was like..."OK! Strange and silly, but it does get thew mind off of constantly thinking about the pain!"
So I have decided to read the silly ones I understand and the serious ones that help me get through and leave it at that!
Because when there are silly jokes and the day is super painful that helps just as much as me venting about how much pain I'm always in and on REALLY bad days who wants to think of the pain they are in so I go to the silly jokes and relax my mind for a few and just laugh it all away as much as possible!
Personally I never really thought it was an exclusive clique thing because if it was "members only" there would be a sign in sheet at the door! HA!
If you like something, you read, If you don't like or understand the need for such silly things, then you don't have to read or even participate!
The silliness in my mind is just as valued as the great, meaningful advice! Because for me some days are REALLY bad and to not think about it for awhile is just fine with me when all you can do is think about how you have this disease and others on top of it and and how it won't go away!
So some days I value your advice and some days I'm sooooo silly I could burst because I would rather not burst from crying in the midst of extreme pain! It all helps me get by!
What we really should be concerned with is the fact that if you want peace on this site, you have to look inward and be the peace you want to see in the world! It is far from a matter of acting "better" or "Above" all the drama and bickering...it's just choosing not to take part and ONLY sticking to what matters most...the love, support and understanding you came to this site for!
I grew up moving around allot and as the new kid ALWAYS one can get pretty bullied and it really got to me at first, I do admit! But over the years I learned that the only REAL way to make negativity and bullying stop is to IGNORE THE NEGATIVE ATTITUDES OUTRIGHT and only pay attention to them if they choose to be nice! It REALLY works wonders for EVERYONE involved! Keeps you sane! Keeps the wolves at bay! If someone chooses to be nice to you, that is WONDERFUL and their own choice! If they choose to be mean, they don't deserve the energy you don't have trying to prove to them who you really are because chances are if they are mean to you...the ONLY way to prove your case and who truly are, is to be who you truly are and let them decide to like you or not like you of their own accord!
NO ONE in this world can please EVERYONE, some peoples personalities are just designed to clash, but WE ALL have a choice to focus on the good and ignore the bad and let EVERYONE make their own personal choices to do what they will and if you like it...join AND if you don't like it or understand it's purpose even though you took the time to understand what something is really about...then just ignore it and go on your own merry way!
I hope your days are filled with peace and relief my friends!
Take care,
Stay sane!