Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

3,656 Members

47,497 Posts

1 Online

deleted_user 12/09/2007

I have some questions if you ladies don't mind.
I am sleepy all the time,I keep falling a sleep everytime I stop moving. I am forgetting litte things at times. I am cold all the time and my neck just aches along with a few other body parts. Being able to go to the bathroom as normal doesn't happen so the dr said to do Mineral oil. My vision gets so bad that I tend to get away from the tv and the computer. I cry all the time even though they have me on Depakote 2x's a day. They say it gets better but when, I am tired and worn out from the body abuse that I have on my self. Sometimes it takes everything I have to get out of bed and others I can get up and take my meds and be about myself. Work is out right now since I can't drive to get there and I have to wear sunglasses out side just to see to drive to and from and now sitting to long or walking to long kills me. What do I expect?? Any help I can't get from you ladies. You are getting me through a bunch believe me

deleted_user 12/09/2007

Hi Honey,
Im so sorry you are going thru this we all do dammit!!!!!!It sounds like your anti depressant isnt cutting it.I had to go thru bunches before I found the right one..Im now on Celexa.Talk to your Doc see if you should change.Its hard all of this is hard!!!!!!Thank God we have each other!!!Much love and support to you!!!!!!

Dixe4me 12/09/2007

Please go in to see your dr. for a good check up and tell him everything! you may have a condition called narcolepsy. Ask him about it. But please go see your dr. you may also need to change or increase your antidepressant.
Take care
~dixie

Zzzzowl 12/09/2007

Most of the meds that we take for fibro and co. take a while to get into the system and do their thing. What you are going thru is a huge change for your body, mind and spirit. Depression tends to come along with fibro first off coz you are finding that things that you did before are no longer possible at this time. Fibro fog affects most of us at times, forgetfulness, sleepiness it all comes from fibro. Hang on in there FF, it will improve, it just takes time yeh? Constipation is mostly caused by the meds, up your veg and fruit intake if you can ok? As with most of us, you have to find a balance between moving and resting, a little of each alternatively. Have you started to keep a daily record of what affects you and when? It can be a long haul sometimes finding the right combo of meds and therapies that are best for you. You are not alone FF, take care of you yeh? Warm thoughts and hugs, Owlxx

deleted_user 12/09/2007

Hi- So sorry you are having so many problems. I wanted to let you know when my dr had me on depakote I was a walking zomby and was not thinking clear- It was totally wrong for my body-way to strong!! Pls remember to love yourself and know this to shall pass. Best wishes to you. Betty

deleted_user 12/09/2007

Hi, I take Depakote ER 250 for a mood stabilizer and Zoloft for an antidepressant. The Dep wouldn't do anything for my depression and if I increased it I would be doing what you are doing - falling asleep constantly. I hope that is somehow helpful and that you feel better soon.

deleted_user 12/09/2007

I have found it a lot easier to talk to my doc since I started keeping a journal. Some days I feel too bad to write, but it is pretty easy to catch up on a good day. The brain fog is one of my biggest problems, so writing stuff down is very important to me. Right before a doc appt. I look back over my journal and make a list of everything I want to make sure we talk about. As far as the sleeping goes, I can say that right now I'm sleeping about 18 hours a day. Other times of the year I may sleep 4-6 hours a day. I try every day to just take what comes and be grateful for the good days, which helps a lot with the depression. Best of luck to you. When you sleep, is it "good sleep", or are you tossing and turning and up every few hours? I know that really impacts how much I need.

deleted_user 12/10/2007

SOUNDS TO ME LIKE YOU NEED A BIG ADJUSTMENT IN YOUR MEDS, HOW LONG HAS IT BEEN SINCE YOUR DOC HAS CHANGED ANY OF THEM. THAT DEPAKOTE IE EOME STRON STUFF YOU TAKE, IS THAT WHAT HE GAVE YOU FOR DEPRESSION? YOU PROBABLY ARENN'T GETTING ENOUGH SLEEP AT NIGHT TOO, WILL YOU TELL US WHAT ALL YOU TAKE? THAT MAY HELP US SOME TO SEE. I'M IN NO WAY A DR. BUT I HAVE PRETTY GOOD COMMON SENSE, NOT MUCH OF A TYPIST EITHER BUT AS LONG AS YOU CAN UNDERSTAND, WE'LL BE OK....PLEASE LET US KNOW JUST WHAT YOU ARE TAKING RIGHT NOW!!!!LOVE....HELEN

deleted_user 12/10/2007

OH, I FORGOT TO TELL YOU ABOUT CONSTIPATION; I TAKE A SYRUP PRESCRIBED BY THE DR CALLED ENULOSE, I TAKE IT 3 TIMES A DAY AND IT WORKS GREAT FOR CONSTIPATION. I USUALLY HAVE TO TAKE IT IN A 1/4 CUP OF JUICE B/C IT IS SO SWEET, THIS MELLOWS IT OUT FOR ME.....

deleted_user 12/10/2007

I will keep you in my prayers and will pray for you three times daily. I keep all of my daily strength friends who requests prayers on my prayer list.

Join the Conversation

Posts You May Be Interested In

OT My last day with USPS will be 2-27-15

Posted by: Ilovethekitties

Last Reply: GiphyOlivia 07/23/2019

21

I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
Curcumin / Lecithin

Posted by: Barbel

Last Reply: cgreens 08/31/2019

16

Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel

OT My last day with USPS will be 2-27-15

Curcumin / Lecithin