Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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deleted_user 06/25/2007

I have officially lost the tenuous hold I tried to keep on all of this.
I have had RLS issues for 2-3 years now, but since the FMS began during my hospitalization, it has gotten much worse. I am not resting, rarely sleeping, my legs and arms are always aching and itching to move, and I am going to lose it.
I had a sleep study and all she could tell me was when I get close to REM sleep (and this is WITH my muscle relaxers-the only time I sleep), my body twitches and jerks me out of it.

Please,someone give me some hope. I need it so badly.

deleted_user 06/25/2007

KAnne,

((Please)) ask your doctor to try you on Requip for a month and see if it works. You start with a starter pack and the relief was quick and lasting for me. I'm on 1mg at night now. I have had RLS for years and I find ReQuip works the best. Good Luck and take care, Keleee :)

deleted_user 06/25/2007

Neurontin has helped me a lot with this. It is for nerve pain and seizures but I have noticed a big difference in my legs at bedtime. And you need a sleep aid not a muscle relaxer...or maybe both. Good Luck Sweetie

deleted_user 06/26/2007

I also was twitching myself awake. I don't have the RLS but Ambien has helped me a lot! I sleep so much better now! My husband says I still twitch, but I don't notice!

deleted_user 06/26/2007

ps, My bf had the twichiest legs I ever saw at bedtime. He drove me nuts! He went on requip and is not twitching anymore. He didn't notice but I sure did!

deleted_user 06/26/2007

My bf says I jerk so badly in my sleep, that it looks like I'm having a seizure. It seems to be worse when I've taken a Soma before bed. You'd think it'd be the opposite. I'm having a sleep study done next month. My Rheum is pretty sure I have apnea. I already have an insulin pump. I just can't wait to have another machine strapped to me, but hey, if it'll help me sleep I'm all for it.

deleted_user 06/26/2007

Klonopin also helps.

Read my post on the role spinal cord compression plays in triggering RLS. I have it in my back and it drives me insane. I have these orange glasses I wear in the evening to filter out blue light and they set it off so I think I'm not going to be able to wear them.

Also, have your ferritin irron levels checked. RLS can be caused by iron deficency. Mine has improved since getting my ferritin level up so long as I don't put my head back and get into a deep sleep before waking up.

deleted_user 06/26/2007

I have BAD RLS, it runs in my family. and also FMS and sleep deprivation.
YOU HAVE TO TRY VITAMIN E! i take 400-800mg pills when i feel the RLS coming on and it stops it! I also fall right to sleep with in 2hrs. You can get it a CVS and it really works.

deleted_user 06/26/2007

i was just asking my husband about this last night.I asked him if he notices me twitching.He said I used to twitch soo bad it would wake him ,but now he said I havent done it as much since I have been getting treatment for my fibr.I think its the meds that help.Ambien for sleep is a godsend.It works great for me.And I believe it also helps with The RLS.I have it also.

deleted_user 06/26/2007

Oh and Benadryl works for RLS also.

deleted_user 06/26/2007

Leah:

Thanks for the info on Vitamin E. I need to order some vitamins so I'll order some.

I take Benadryl as a migraine preventative but I think I've been on it so long that it's not effective for anything other than that.

deleted_user 06/26/2007

Vitamin E is good ! But you're not going to believe what I use....Peanut Butter! For some reason it makes me go to sleep. Something like the little cells that make you jerk run to the tummy. I heard it somewhere and tried it and it works!

deleted_user 06/26/2007

I used to find PB helpful too, but I'm allergic/intolerant of it so I don't use it anymore. Used to love it with a banana.

deleted_user 07/02/2007

I tried the vitamin E last night along with trigger point massage. Wasn't nearly as bad. Thanks for the tip.

deleted_user 07/02/2007

Now I know why i crave peanut butter before bed. I always have a little before bed. Wow...

deleted_user 07/02/2007

hat is FUNNY about the peanut butter! I used to tell my doc I had to self medicate with a PB&J sandwich - ihave one every night at bedtime :D

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