
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Well, I went to a Rheumatologist today. My bloodwork has some issues, and one of my doctors at work really felt that lupus and connective tissue disease be ruled out. I actually think I have connective tissue disease, but whatever.
So, basically I need to be on a regular exercise routine. Yes, folks, the cure for fibromyalgia is a regular $#$U( exercise routine. Our bodies need the consistency.
He is pretty much dismissing my blood work, although he is running some more. I don't need to go back to see him unless I start having more symptoms....rashes, the such.
Okay, the doctor wasn't a jerk. He listened and asked questions. But, I walked out feeling....stupid. Dismissed. Mentally ill?
Depressed?
I have been battling FM for 15 years. When I was first diagnosed....I was embarrassed. I felt they either didn't believe I was in the pain I was in, or that it was all in my head. Those same feelings came flooding back today.
I find myself sitting here tonight feeling depressed. Deep down I sometimes wonder if I did this to myself. Ever feel that way?
What's funny is my blood work is now "bad" - shows abnormal autoimmune results and inflammation results - and I AM STILL DISMISSED. WHAT DOES IT TAKE???? WHAT DOES IT TAKE TO HAVE SOMEONE BELIEVE YOU WHEN YOU SAY EVERYTHING HURTS???????
Thanks for listening. This is about the only place that would understand.
Jan
So, basically I need to be on a regular exercise routine. Yes, folks, the cure for fibromyalgia is a regular $#$U( exercise routine. Our bodies need the consistency.
He is pretty much dismissing my blood work, although he is running some more. I don't need to go back to see him unless I start having more symptoms....rashes, the such.
Okay, the doctor wasn't a jerk. He listened and asked questions. But, I walked out feeling....stupid. Dismissed. Mentally ill?
Depressed?
I have been battling FM for 15 years. When I was first diagnosed....I was embarrassed. I felt they either didn't believe I was in the pain I was in, or that it was all in my head. Those same feelings came flooding back today.
I find myself sitting here tonight feeling depressed. Deep down I sometimes wonder if I did this to myself. Ever feel that way?
What's funny is my blood work is now "bad" - shows abnormal autoimmune results and inflammation results - and I AM STILL DISMISSED. WHAT DOES IT TAKE???? WHAT DOES IT TAKE TO HAVE SOMEONE BELIEVE YOU WHEN YOU SAY EVERYTHING HURTS???????
Thanks for listening. This is about the only place that would understand.
Jan
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If consistency and exercise were the cure,, then everyone who doesn't do that, would have fibro and lemme tell ya, I can give you a long list of people who don't exercise or have consistency who do NOT have fibro.
I wish you a restful night.
I was still excercising when I contined to get worse every year. That is not the answer and I wish these ignornant docs would figure that out.
I do feel some sympathy for the Rheumatologist though. They learn this from the American Rheumatology Society and they don't know what else to do for us.
I guess part of my frustration is I thought the medical profession was alittle more enlightened. This doctor was very matter of fact. And, honestly, I think my bloodwork results DO mean something. You can't have someone battling chronic pain for years and have autoimmune panels and inflammation panels with "bad" results mean nothing. I'm in the medical field and it doesn't make sense.
It is not obvious from my post here, but despite my ranting I am a very function and often a very positive person. I work at a doctors office 5 days a week - often times running my butt off - taking care of people with cancer and blood disorders. I hate the office politics and crap, but I love my patients. I love being able to take care of them the best I know how, and no matter how I am feeling - and like everyone else, I have bad days - I will let go of myself and my problems to take care of my patients. In that respect I am blessed. And, the medications I am on have given the ability to function somewhat normally back to me. A patient, even a coworker, would not know that I am in chronic pain - I've shared my story with a couple of coworkers and a couple of patients, and they are always surprised.
Anyways, thanks for the acknowledgements of my feelings. That's what I needed tonight... it would be really crappy if I were in a position where no one could understand or validate my feelings.
Blessings,
Jan
They dont have a fricking clue.
Im so sorry you went thru this....you are not alone.
hugs
Exercise is probably the first and last thing all doctors tell their patients and the doctors don't understand that for some of us that is all most impossible. They just don't know how devastating this illness can be.
Hope you feel better soon.
Hugs and Prayers
and what Really Pisses me off...is their Ability to tell ya to Exercise, but give you No idea where to even start...I tried so many times on my Own...I Know how to exercise, I used to be Very Athletic...but thats just It...we cannot do it the way we Used to do it...were all tight, Sore and Achey...and if we push it a bit to hard, then we end up Flaring...
so I Concentrated Less on the exercise, and More on getting my Muscles Loosened up...Relaxed...then I found I could at least Walk half decent...
We Know how we are Feeling...we need to find a Program to help us...One Step at a time !! Since no one out there seems to Really be able to Give us a Clue as to what the "H" is going on !!
I saw one of my Dr's on Friday, and we had a really interesting conversation about the perceptions of fibromyalgia (I was talking about managing my full time job, and not feeling supported when I asked to be placed on less taxing jobs for a few days)
He said that even when he graduated from medical school (2001) there was still a cloud of suspicion around fibro. They were taught a lot about the depression and other behavioral health type issues that cloud up the diagnosis. There was just not any quantifiable support for the diagnosis, so it was sort of passed on as "probably not an real illness"
He said that he is a full believer because he has seen so many people like me who fight it in every way possible and are still in pain. He said that he has seen 5 research studies in the past 2 years that confirm the diagnosis, confirm differences in our brains, our spinal fluid, our pain receptors. He thinks that in another 2 years we will see so much validation and recognition that there will be no doubt in the medical community.
We all need to keep our heads high, no matter who thinks we shouldn't!