I'm sorry the visit has you down. Wouldn't it be great if we could go, find an answer and come out of there feeling revived and energized for the future?

If consistency and exercise were the cure,, then everyone who doesn't do that, would have fibro and lemme tell ya, I can give you a long list of people who don't exercise or have consistency who do NOT have fibro.

I wish you a restful night.

I'm sorry too. It seems hopeless some times. I hate it when they tell me that exercise will cure me.

I was still excercising when I contined to get worse every year. That is not the answer and I wish these ignornant docs would figure that out.

I do feel some sympathy for the Rheumatologist though. They learn this from the American Rheumatology Society and they don't know what else to do for us.

Hmm. I know what you mean. My battle to get somebody to listen has gone on for 2 yrs. Who can even exercise? Anyway, you did not do this to yourself. But, if you've been doing this for 15 yrs (I'm working on 20+) you know that exercise helps everything. Just with fibro, you have to be really smart about it. Actually smarter than doc and experts. Take care of yourself.

ChaCha: I understand your comments about exercise, but I do vividly remember when I first starting having problems with fibro. I would go for walks at the track - I would go home and be so frozen up it was horrifying. I now have meds that keep me functional...without them, within 5 days, I would be so frozen up I would hardly be able to get out of bed. I've come so far from that time...for me, until part of the "inbalance" was dealt with, it would not have changed. The consistent exercise did nothing to help me until the right combo of drugs were in place. I have been, over the past 3 years or so, about as functional as I could ever dream to be.

I guess part of my frustration is I thought the medical profession was alittle more enlightened. This doctor was very matter of fact. And, honestly, I think my bloodwork results DO mean something. You can't have someone battling chronic pain for years and have autoimmune panels and inflammation panels with "bad" results mean nothing. I'm in the medical field and it doesn't make sense.

It is not obvious from my post here, but despite my ranting I am a very function and often a very positive person. I work at a doctors office 5 days a week - often times running my butt off - taking care of people with cancer and blood disorders. I hate the office politics and crap, but I love my patients. I love being able to take care of them the best I know how, and no matter how I am feeling - and like everyone else, I have bad days - I will let go of myself and my problems to take care of my patients. In that respect I am blessed. And, the medications I am on have given the ability to function somewhat normally back to me. A patient, even a coworker, would not know that I am in chronic pain - I've shared my story with a couple of coworkers and a couple of patients, and they are always surprised.

Anyways, thanks for the acknowledgements of my feelings. That's what I needed tonight... it would be really crappy if I were in a position where no one could understand or validate my feelings.

Blessings,
Jan

I keep wondering if these quacks paid for an illegal online course and now are our docs we face.

They dont have a fricking clue.

Im so sorry you went thru this....you are not alone.

hugs

I'm sorry your going through this. You didn't do anything wrong. We all just had this time bomb built into our bodies and nothing we did or didn't do could keep it from going off.

Exercise is probably the first and last thing all doctors tell their patients and the doctors don't understand that for some of us that is all most impossible. They just don't know how devastating this illness can be.

Hope you feel better soon.

Hugs and Prayers

How Many times I have i walked out Feeling the same way...and How many times have I doubted meself...to many to even Count...

and what Really Pisses me off...is their Ability to tell ya to Exercise, but give you No idea where to even start...I tried so many times on my Own...I Know how to exercise, I used to be Very Athletic...but thats just It...we cannot do it the way we Used to do it...were all tight, Sore and Achey...and if we push it a bit to hard, then we end up Flaring...

so I Concentrated Less on the exercise, and More on getting my Muscles Loosened up...Relaxed...then I found I could at least Walk half decent...

We Know how we are Feeling...we need to find a Program to help us...One Step at a time !! Since no one out there seems to Really be able to Give us a Clue as to what the "H" is going on !!

I am so sorry you had to face the ickiness of this diagnosis again.

I saw one of my Dr's on Friday, and we had a really interesting conversation about the perceptions of fibromyalgia (I was talking about managing my full time job, and not feeling supported when I asked to be placed on less taxing jobs for a few days)

He said that even when he graduated from medical school (2001) there was still a cloud of suspicion around fibro. They were taught a lot about the depression and other behavioral health type issues that cloud up the diagnosis. There was just not any quantifiable support for the diagnosis, so it was sort of passed on as "probably not an real illness"

He said that he is a full believer because he has seen so many people like me who fight it in every way possible and are still in pain. He said that he has seen 5 research studies in the past 2 years that confirm the diagnosis, confirm differences in our brains, our spinal fluid, our pain receptors. He thinks that in another 2 years we will see so much validation and recognition that there will be no doubt in the medical community.

We all need to keep our heads high, no matter who thinks we shouldn't!