Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I want to thank every one Sooooo much for your candid, frank, sincere, honest replies to this post. I found them so very helpful and I can honestly say that I am seriously thinking about changing my attitude about what to say, when and to whom!! Keep em coming!! I made so many friends from this post! I'm new here and that feels great. I truly believe that this is EXACTLY the purpose a site like this is supposed to serve. Let's ignore the juvenille BS and get down to the nitty gritty of how we need to deal with fibromyalgia...socially, medically, and psychologically/physically and of course spiritually!!:) Prayers and Hugs to All of you
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I decided that I would just check the reactions of these great people in the ER who mostly know me from disasterous conditions that befall me from time to time.
Anyway, yesterday I deliberately brought up the fact that I have fibro. They all, and I mean all, ignored the comment with a mmm=huh and went on without so much as a gee, that must be painful right now or anyother comment. Talk about negative reinforcement. If I wasn't the strong ol' woman I am, I might have been intimidated. Instead, I will talk to my Doc, who is cheif of staff and ask him what the hospital's policy for dealing with people with fibro when they are presenting with another problem.
If someone or something doesn't come along to change this medical mind-set, what can we do to help ourselves beside speak up?
Oh, and talk about pervasive, when I was at OHSU which is THE teaching hospital in Oregon, the internist that I was seeing said in passing as she was leaving the exam room after doing a two hour intake on my medical history: "I think you should know that I do not treat Fibromyalgia with medication. We believe that exercise is the correct method of treatment." "WE" made me think that is the teaching at this school that is teaching protocol to our new Docs. HELLLOOOO!!! That's enough to m ake ya' want to band together and march...as if any one of us could march more than a half a block. And who could we get to carry our signs? (Just Kidding!)
I just pulled this from a mold support website and I thought it was appropriate here for some reason.
The lack of accountability in medical recording of fungal related illnesses is not because of any error or failure of the system to realize the unhealthiness of micro fungi or the mycotoxins produced by them. Unlike illnesses believed caused by bacteria or viruses (that attach to live cells in disease causation) "microfungi" (i.e., molds and yeasts or dimorphic molds), and their chemical excretions are used commercially in literally thousands upon thousands of products... from perfumes and colognes to medicines, food products, cleaning products, fuel, alcohol products, tobacco products, beverages, and many others. Other microbes do not have this huge impact on the economy. Also, in medicine, microfungi infections and deep tissue colonization are far more deadly to humans and much harder to medically treat or diagnose than their microbial counterparts.
No... I am afraid that the lack of attention to human disease is a precise and calculated decision by both government regulating agencies and the medical industry. Why? Were the actual and factual dynamics of fungal diseases to be fiscally accounted for and reportable in advanced molecular research: 1) HMOs, PPOs and other health insurance entities such as these would have to convert their mission from one of "preventive medicine" to "treatment medicine", and face the fact that in "treatment medicine", arbitrarily- speaking, many patients over the age of 50 whose medical conditions are primarily microfungi-related, would not only have to be accurately accounted for and properly treated, but they would perhaps "break the bank." As it stands now, many of these "idiopathic diseases" are classified as "unknown cause and/or unknown cure". As such, the medical has a wide range of treatment possibilities in which to work medically-speaking. As long as various "idiopathic diseases" are classified as such, the medical field is not under any regulation to report them to the CDC. Unlike most bacterial and viral categories of human disease. 2) Literally hundreds of thousand medical malpractice cases would emerge for inadequate and uncertified medical treatments in high-risk patients (i.e., cancers, leukemia, neurological diseases, or even idiopathic diseases, etc.), that quite possibly might have been treated far more effectively had medical schools taught far more about environmental medicine (specific to microfungi and mycotoxins) than they do at present. For instance, in 1943 Swiss Chemist Albert Hofmann was who had been studying Claviceps purpurea Sp., (ergot) for several years, discovered the hallucinogenic (i.e., mind-altering properties and neurological changes) affects of this particular mold. The study of certain Aspergillus species date back to the 1890s, esp., involving chemicals released by the Aspergillus niger species industrially used to produce various bleaching products. Respiratory diseases related to Aspergillus fumigatus species are well documented medically, and the Merck Manual for medics lists 11 fungi-related diseases or health conditions that specifically are connected to inhalation as the primary route of contact.
What I am saying directly; given the fact that modern medical mycology studies are derived from research into HIV/AIDS, is that medical doctors, even in general practice, are not stupid people "by a long shot". Doctors of today in medicine have been around antifungal medicines since the 1940s, and are very aware of the deadly and serious consequences of prolonged exposure to even minimal pathogenic microfungi. The true question here should not be, what do doctors really know about microfungi exposures, but WHY are medical doctors fearful of exploring new methods of treatment relative to fungal infections? I can tell you through my extensive research, there are more political aspects to the medical accountability for microfungal diagnosis in disease than simply the medical profession policing itself. This is a "Catch-22" of super-huge political and moral accountability dynamics in the American public health quandary.
Best regards,
Doug Haney
Maridea EnviroHealth Research & Consulting, Inc.
Email: Douglas_Haney52@ hotmail.com
RIGHT ON!!!!!!!!