When my pain is bad I retreat to my bedroom and just like to lay there. I don't feel up to talking or doing much else. I felt a lttle bad yesterday laying down because my Mom was up visiting. I told her I hope she didn't think it rude of me but I just had to take a nap before going out to eat later.

When I got up an hour later feeling better she said, I don't nap, even if I'm tired. I'm disaplined. It hurt a little bit but I let it go. I'd rather be happy then right sometimes!

So I totally understand. It's so good we have DS and friends that do get it. Hugs, Keleee :)

It's the same for me. I don't answer the phone, definitely don't go anywhere or hang out with people. It's hard to concentrate when it's really bad, difficult to get my mind and thinking out of its muddy state.

Lost one friend to this, and another spent a lot of time talking to others about how I 'am,' that I don't put forth enough into friendships, etc.

The good news is... I'm mostly too tired to care what anyone else thinks.

Those who stick by me and don't push... they hold a special place in my heart, and I'll tell you what.. you really learn who your friends REALLY are when you have this condition....

*hugs*

when I do not feel well....either physically OR emtionally...I tend to pull the blinds and sut off the phones and do not answer the door...til I feel better...have always been this way.

I thought I was the only one! I've been questioning and basically my chastising myself about my "attitude". For the past two weeks I haven't been feeling well, and I just don't want to be bothered. I also turn off the phone and don't talk to anyone until a) it's absolutely necessary; or b) I feel better. I get tired of people telling me they're going to "drag me out of the house" to socialize or calling me to tell me how I've disappointed them by not coming to an event. I mean really, how is that helpful??? Like I need to deal with your feelings on my illness. It's nice to be wanted, but I think my true friends realize that it's not something I can control. Sorry, I think I've slipped into a rant. LOL

No you are not the only one who feels the way you do. It can be a problem but true friends will try to understand.

I do feel this way once in awhile..But since Ive been here its not so bad at all...Gentle hugs to you

Not with my immediate family, but with friends I find that I am not in the mood to talk they think I am mad at them. Sometimes, I just don't want to talk about it. It has nothing to do with them. It is just to do with me.

oh so much so it isn't funny that is exactlly how i get when the pain is intolerable...i just withdraw and want to be left alone not talk not do anything... i am so with you...for this reason i have lost friends..as i tried to explain this to them and asked them to read a book on this fibro thing as the books always recommend..no one wants to so..as it goes my social life is practically nonexistent except for here..thank good ness i have friends here..

Yep, there are days when I don't feel like putting on my "happy mask"! Those are the days I try to go lay down but then my mom or my daughter phones. I don't want to dwell what's wrong to them every time so try and pretend I'm all chipper! In a weird way though, they usually cheer me up and I end up getting back out of bed. LOL

I love when I'm home and the house is sooooo quiet and nobody is phoning me. Today, I have to take my son to a counsellor appt but it's not until this afternoon. It's nice to putter around here.

I am like you. I don;t answe the phone, the door. Just want to rest everything, including my brain and emotions.

I hear you, I hear you. I think the pain has alot to do with it, I just have to shut down too. I try not to do this with my immediate family if possible,because they get worried if I am out of touch. I just go to my haven/nest. I think you do have to be careful and make sure that your just not hiding or wanting to face things, but there can be a balance of both. Spending to much time alone is not good for you either. But there certainly is not anything wrong with some good, peace and quiet.

How sad for you. When anyone is in pain the last thing you feel like is being sociable. It sounds like they don't really understand how you feel. Maybe you couls ask them to imagine a time when they had the flu, or surgery....Then tell them that is how you are feeling rieght now. Next ask them if they felt like carrying on a converstion with body aches, fever...

Maybe it will help. I hope so.

Thank you all for your comments. I thought it was just me being an unreasonable bitch but I see that it isn't. healing prayers and warm healing energy to you all!

I hate it that we have to feel so guilty for doing what we know we have to do to survive. There is something in our human nature that causes perfectly, apparently normal loving people to become utterly judgemental and abadoning when we start to display a need to care for ourselves in a "different" sort of way.
At first they are accepting, because they think it is going to pass. Then they become impatient. Then they become hurt/angry. And then, if you are as unlucky as I am; they start to blame Us for our situation.

(Well! There was a rant if I ever heard one!)

Please! Take your rest. Make your space everything you need: find all the comfort your spirit needs to grow; give your body the time it needs to heal; feed your mind positive, helpful, funny, suspensful, and useless stuff. Love yourself as your very own best friend and through this you will know who the Rest of your friends truly are.

I my case it was not my own children.

yes I'm exactly the same. talking is just too much effort really when you're exhausted and in agonising pain. i dont think anyone understands me but i try not to let it get to me because then thats just more hassle. glad you've got a friend who understans when you're feeling like that-always helps. take care kay