Hope everyone is doing well today. It is finally sunny where I am and I only woke up 2 or 3 times last night so I feel almost human today!
I am just curious if anyone has been diagnosed with autoimmune or connective tissue disorders ontop of their fibro diagnosis and wouldn't mind sharing their experience. I have been through so many specialists, appointments, and tests, and all the docs tell me I'm "perfectly healthy". I've been curious for some time about the possibility of some autoimmune disorder with me due to a lot of my symptoms. I finally had a doctor test my ANA levels for the first time late last year and they were quite high. Second test showed the same result, 1:320. However all of the other blood tests for RA, lupus, sjogren's, etc. all came back negative. I'm finally seeing a second rheumy in a couple of weeks (after a 4 month wait) and hope to get some answers! I know the tests don't catch everything because I know people with both RA and lupus that always have negative blood tests, but the docs I've seen so far aren't willing to investigate further if the tests aren't positive.
In addition to my fibro symptoms, I also get a mild malar rash, increased photosensitivity, heart palpitations and skipped beats, sharp chest pains when breathing deeply, occasional swelling in the joints that cause me pain, low grade fevers with no explanation, lymph nodes in my neck that have been swollen for 2 years, increased difficulty breathing despite my asthma testing as very mild, and several others but I won't bore you all!
I guess I am just looking for any advice anyone might have on putting your foot down with the doctors who dismiss you and tell you there's nothing wrong. I really feel pretty certain there is some sort of systemic issue going on. It's like over the last 3 years, every single system in my body started going haywire with no apparent cause, plus the ANA results seem suspicious to me. It would just be heartbreaking for this new rheumy to be just as dismissive and then leave with no answers again while I wait another 4-6 months to get in with a new one.
Thanks for your support and for any advice you might have!
Hello! I slept hard, and have the post-hard-sleep aches. (Not the worst, by any means!)So, it's nearly June. What's your status going into a new month? Around here, we're counting down to tings like seeing doctors in person for regular check-ups, and I'm still hoping that we'll get to Europe this fall, so I'm gonna make sure my papers are getting done. Just in case. Hpoe, y'know?More personally,...
Kindness warms our hearts and helps relieve anxiety and stress not only for those receiving the act of kindness but also for those showing an act of kindness. Kindness is such a simple thing to give......words, a smile, a small gesture. Tell us an act of kindness that you were able to give or have received. Everyone needs some form of kindness at one time or another.For me the kind words on DS...