We have 10 blood tests pending, waiting to schedule bone marrow, etc.
Working diagnosis is as we feared/expected.
MGUS, subtype IgM.
This is "Monoclonal Gammopathy of Unspecified/Undetermined Significance", affecting the immunoglobulin type M. This is the kind that's associated with B lymphocytes (important white blood cells), and means that instead of my hubby possibly dying of myeloma (bad) it will probably be lymphoma (likely non-Hodgkins, possibly a really rare nasty known as Waldenstrom's, so still realllly not good). It also means that the chance his MGUS will develop ("transform") to a cancer of the blood or bone marrow is higher than if MGUS of other types.
MGUS, subtype IgM is typically only seen in 15 percent of people with any MGUS. So it's rarer to start. Oh rapture.
We'll have a lot more answers once the dozen blood tests come back. Most are measuring for anemias (Hubby's hematocrit remains a little low, with no explanation, so we're running about 6 blood tests to see if we can determine *what* blood factor is possibly not carrying enough iron around, or what plasma/bone marrow cells might be producing "bad" cells). The rest measure kidney function, cell/tissue damage.
Bone marrow will be done with conscious sedation, hopefully sooner. The interventional radiology department was clsoed by the time we left the hema-onco office, alas. Often, yes, blood marrow is done in-office, but Hubby's doc feels pain is bad and should be avoided, and in-office would be waaaay more painful even if only for "a little while". Whereas the pain will be ebbing before he comes off the conscious sedation. (Think the same way they do colonoscopies.) It also gives them a chance to take their time and not have a patient who might flinch! (Hubby is horrible about needles, so, duh, yeah, not good to have him be able to notice these things.)
The doctor is competent, clear-spoken, gets the concept of bedside manner. He also understands that FIL and I are going to be atop every thing, and the nurses already know I speak Medical. We are, as the hema-onco doc realized, DETAIL ORIENTED. (And willing to throw weight around, for thsoe who have it to throw.)
So now we get more details and then we wait and worry and get monitored and wait and worry and get monitored and wait and worry and wish that this was happening when it usually does, when someone is about 65-70, not even 50 yet.... Not taht I want anyone to have it, but Hubby *is* young for this apparently. At least by the data.
And that's all I've got.
All we've got for now. More tests. More wondering. More details. More all of it.
Going to bed now. See y'all tomorrow.
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