Just my experience with that Fibrohugs website..... I made a purchase MONTHS ago and bought a couple of little things which NEVER showed up! I had to email over and over again and got responses full of excuses. In her defense, in the end she sent me what I ordered along with 20$ back which was nice and she didn't have to do, BUT that being said...it was VERY poor for months before that, after I made my initial order.

I went and had 2 shirts made up...One is a heavy sweatshirt...one is a long sleeved T-shirt...i did the purple Ribbonmy girlfriends Mom said she would sew a beautiful purple ribbon onto a sweatchirt for me...well...that gave me an idea, these shirts were actually kinda expensive...but we can easily make our own...just fo buy a white shirt and some material...
on the front of my T-shirt I have the letters FM...on the back they are gonna print "what is it ?"
cause ya know...I would REALLY like ta know...!!!

I did not put this post up to hurt feelings or make anyone do anything they do not want to.. This was just to ask for an idea for the other side of the sign I am using this day.. I knew of the other sites. But only to read if they had a goal for a cure.. And sadly I did not read one. The health care system has forced fibro to slip threw the craks too long so they do not have to care for us.. This needs to stop..

I agree completely....the health care system has, and will, continue to let people that suffer from FM and/or CMP down. That's exactly why I did NOT use western medicine to help. My doctor told me straight up when he diagnosed me "there is NOTHING I CAN DO TO HELP YOU except prescribe pills to make you sleep and pills to take away the pain - neither of which will help in the end because unless you make changes on your own, you will have to take pills forever as they only act as a temporary bandaid. You need to go home and do some research to get yourself better." He then gave me a pamphlet that talked about naturopathic treatment for FM and recommended a good naturopathic doctor. Under the care of that naturopathic doctor, I had 100% success.

My advice to you is to quit the pity trip, don't waste your money on T-shirts, billboards or anything else that is only going to waste your time and money, and take your health into your OWN hands, do some research, open your mind just even a WEE bit and get some help from something other than a doctor of western medicine. They can't help us, they continue to tell us that loud and clear and yet very few listen. Those that do find a way to get better - and do, and those that don't simply find other doctors, and find other doctors until they find one that will do whatever they want that appeases them. Why is this?

Since when did doctors of western medicine get to be the 'be all and end all' of health care? Did you know that western medicine has the LOWEST success rate of almost every other type of treatment in the entire world?

You can stand outside with your billboard on, making your stand, proving your point, but the fact of the matter is that the doctors you see are trained to heal with prescription drugs and prescription drugs (very obviously) do NOT help with FM! You can stand there until you are blue in the face, freezing cold, sweating hot, whatever. Nothing you do, no matter how much money you raise will convince these doctors to find a way to 'cure' you.

You want attention from the 'right' people? Find a doctor who is a certified, legitimate doctor who has gone the extra years of training to learn how to heal NATURALLY!

It's amusing how a doctor of western medicine can't explain nor 'cure' FM, but a naturopathic doctor can do both? HMmmm...

I'm ranting, yes. I apologize. I'm very passionate about this. Please don't stand out on the street with a damn billboard! You aren't invisible but you are being taken advantage of and being let down by a system that really only wants your money.

pity Trip ??...Ok, am gonna breath...pity trip ??
would hardly call what we are doing a "Pity trip"...and if i so wish to go on a Pity Trip...I will and I will Invite all my Friends...and aquantances...and they each can Invite all of theirs and we will have one big PITY PARTY at the end of our Pity Trip...damn

Yes, pity trip. I probably used those words as I'm simply sick of listening to people complain yet take no action to get better. Or to take action only in one direction without looking into any others. Yes, I realize I am outnumbered by the amount of people on this site that use meds as a bandaid but I don't care really. I'm one who HAS had success with something. Have you?

Christ, I suffer from BOTH FM and CMP to the point where life is simply unbearable, but I often see people who are DYING from diseases such as cancer, or other terrible things who complain LESS than the bunch in here! Put yourselves into perspective, really.

i think a reply like that should have been kept to your self..

all anyone is doing here is trying to make more people aware of something , not loking for pity..u really are bitter..

this may be a stupid question...but who are we making rich? if we buy t-shirts from a t-shirt company? we are not asking for money, we want to make people aware of what fibro is and let the healthcare know we want help not pity...we want to have our lives back! at least thats my take?! :{

littleone, that was completely out of line. How rude. It's not passion you are showing honey.

BTW, MY regular doctor is wonderful. I just recently requested medication which she gave me. Together, we came up with appts for massage therapy, allergy specialist, dermatologist, and a variety of other tests to rule out cancer, mold and other toxins, deficiencies etc. She is a smart lady who is trying to help.

So get off your high horse, quit making yourself look like an ass and stop talking about things you know nothing about. You don't know what other treatment options we've done or continuing to do. Also, some of us haven't been on any meds for years...doesn't mean we are less of a person than those that do need them.

If you aren't here to listen, offer your advice or participate in friendships or helping others...why don't you just LEAVE !!!!

I for ONE am ON NO MEDS....I do massage...PT...my Chiro...and what do you think We ARE trying to DO here ??
we want to raise AWARENESS !!
not Put Plugs in for Big Pharma !!
meds can do nothing for me...I want freakin ANSWERS!!
thats what this is ABOUT...you musta read the Post WRONG...imagine that...we are all as sick of Dr.s as we are of being SICK.

Littleone,
Yes I agree with seeking natural alternatives besides modern medicine, One thing is. This was my life style before I got this evil Illness. So why it picked me?? I would fast 3 times a month and juice and eat meat only when my body craved it Also,, after I was diagnosed with fibro. I went to SO. Lake Tahoe and had a DR Whitcomb who is a Chiropractic help me and stayed there for 2 months and still no help. I spent out of pocket $9,000 Dollars. I can no longer do the job I love or any other cause of no help by the health care. They are who I am attacking. Not the Doctors.. Doctors are helping more and more. But they can only do so much. If you can do without the help of medication?? I am happy for you. I can not. I have tried.. Many times.. I have watched both my parents suffer months, days, and hours before they died from Cancer. Its a evil thing to have and to watch the ones you love with all your hart and soul wanting so desperately to not die. Only to do so with such pain and agony cause the Morphine no longer works. And hearing them screem. Yes they screem..

darling, if you don't like what we've got to say.. then you can leave. Nobody's stopping you. I have had this my entire life and so many people tell me they feel sorry for me.. and I always tell them not to. This is all I know, and probably all I'll ever know! I don't feel sorry for myself!! I just want it to be recognized as a real illness.
Also, you said you suffer from it.. so what initiative is that for me to go completely natural? I really don't like having to take medicine.. but guess what. It WORKS! For the first time in a long time, my fibro is under control. So who are you to tell me that I'm doing things wrong? I work at a dr's office and I can tell you that the dr I work for goes above and beyond to help his patients. If you don't like them, then fine. But how dare you come to a post about trying to help everyone with fibro, and tell us that we are complaining enough! We didn't make you come here and read this. So maybe next time you should keep your condescending thoughts to yourself.

Littleone,
I can hear your anger and yes, at times, I am so angry that I have lost "me" that I lash out at people. I hope that it (along with your other homeopathic remedies) has helped you hang in there "one more day". God Bless and take care....Lynda

How about:
STOP THE THIEF that stole my life!

I like that one! Seriously though if we all have the same white/purple and FM on the front,it will be a good thing for different sayings on the back! And I for one LOVE the election day idea! I think taking advantage of the media attention is great and I think that we should appear at Dr.'s offices AND Social Security Offices AND Election Headquarters what do you all think?