Since we hear are going all out for this. Can we all agree on colors, symbols, sayings and the like?? And then go gun hoe on it?? Not to make already fibrosites feel they are not worthy . But this is our baby. And we have different views of the importance we seek. Meaning.. A cure,

WOW, I'M BLOWN AWAY, I LIKE MICKI'S RESPONSE. IF THERE IS ALREADY A FIBRO DAY ON THE CALENDAR, MAY, 12, WHY NOT STICK TO THAT, I'M THINKING ABOUT THE WHEATHER IN JAN, AND I CANTELL YOU MY TINY BUT WON'T BE OUT THERE IN THE FREEZING COLD. AND I LIKE THE CLEAR RIBBON WITH THE TRIGGER POINTS ON IT IN BLOOD, WE REALLY HAVE SOMETHING GOING HERE. ALOT OF GREAT IDEAS....BET YOU DIDN'T EXPECT THIS CARRIE.....LOVE ALL.....HELEN

LOL Helen. :) Hey, we are still Fibro-sisters. :)

The Dr. St. Amand, GUAIFENESIN group have May 12 as Fibro day and they were selling cranberry bracelets. I bought some and was dissapointed when nothing happened that day! I am with you...if we get our own t-shirts that would be great! Suffers unite for help!! you go girl!

www.fibrohugs.com has t-shirts ribbons bumper stickers you name it. Check it out. here is the link to the t shirt. http://www.nationalitees.com/tees.htm

" YOU GO GIRL" Im There With Ya. I`ll be THINKING About The BACK Saying.PLEASE Let Me Know When YOU Pick One. THANK YOU LOVE & FRIENDSHIP ALWAYS! Indigo/Cindi

Check out the tshirts at Zazzle.com There are some really neat ones there and the get to the point!

I really liked the Tshirts on Zaggle.com.

Here is one of my favs,

http://www.zazzle.com/brain_fog_shirt-235715240564600087

Thanks Demablue!

No offense Dr. O, but I e-mailed you just the other day and received no response from you. I was hurting terribly and desperate and got no response. That's the kind of thing from doctor's that makes us feel invisible. We aren't talking about papers on treatments like stretching - as most of us have tried everything and are still not getting relief. We want to be heard and listenend to by doctors, family, friends and want them to know what we are going through so there can be more research to find a cure and help with everyday living. Most of us can't even take a shower every day because we don't have the strength and are in too much pain, and we can't work, but can't get on disability either - we're just caught in limbo in major pain.
I do appreciate the doctors who do believe us and are doing everything they can. I'm not talking about them.

bev- you can't pass judgement from whether or not she responded to your message right away. How do you know what was going on with her that day? I don't always hug people back right away.. does that mean I don't care? no. It's a silly thing to say that because she didn't answer means she doesn't care.

I did get your message...along with the 30 i get a day that i would LOVE to respond to...but thats not what Im here for and though i try and respond to messages as a rule it will not soon be the case...as we get more popular on DS the load gets too great. Do not take a lack of response as a lack of caring..ill continue to try and post as I can on ALL OF THE ADULT Medicine communities.
Dr O.

Well even though I haven't ever asked for your help, I for one would like to thank you for what you do here! I think it means a lot that you spend time trying to give us support.

Bump...any more ideas???

There is a national fm day it is may 12 of every year. Here is a good link to look at. http://www.fmaware.org/site/PageServer?pagename=community_awarenessDay

On my signs, I'd like to be able to put a website where people can go to find out more and give donations for research.. does any such site exist, or can we at least all agree upon a site to give?
Also, have we decided on what the shirts should say? I think this would be better if we are all uniform despite the distances between us..