Maybe some one already posted this....I am too tired to read all the posts.

http://www.restministries.org/invisibleillness/invisibleillnesshome.htm

This is a site for invisible illnesses. You can buy t-shirts etc here and get some information and laughs too.

Kiska,

I read the whole thread and there are lots of good ideas and sayings for a tee shirt. I wish I was creative. I think you are very brave to go out and make a stand for fibro awareness. Hugs, Keleee :)

Let me know the day and what my T shirt should say - The 7th of January is perfect as I have a doctors appointment right in the middle of the hospital.

Kiska darlin you rock as do the rest of you.

Love & Peace
Raven

How about this for the back..
"this is what a person with Fibromyalgia looks like"

Good luck

allie101, that was what I was thinking as well. this is election year, i would do it on election day, as then we will get media coverage. will have time to organize it. we could post this on all fibro web sites. maybe we could all go to state cap.s when there is goibg to be an imorant issues there.

also since lyrica is making money off of us, using our illness, maybe we can get them to help us. I don't know about any of yous but I get vewry angry when I see their commerical on tv, because they only tell the 1 / 2 of the story. and make it sound as if they have the mircale cure for fibro..

I agree!!!
Election time will make a better impack.
xoxox

i love Msboni's idea of the shirt and ribbon i think we should all have em.. i am looking into it today...**hugs**

http://www.customink.com/?loc=nav

this seems like a decent online place to have shirts and stuff made if anyone is interested...*hugs**

Kimmy, I can go anytime as I am very very close to DC. Depending on my schedule, I wouldn't mind just going out there everyday until somebody notices me. As for the lyrica, I like the fact that the commercial talks about how fibromyalgia is a real chronic pain disease. For me, it really was like a miracle cure. I think it's the first step into understanding what causes our pain. I think all we need is the awareness and funding for research and we can get more meds to treat and potentially cure us! I mean, who knows.. maybe they'll find that there are actually other diseases that mimic FMS and that is why some meds work so well for some and not at all for others?!

PUT, " FIBROMYO..... WHAT?!" WE USED THIS a long time ago to raise money for my support group in my city!!!!! then people have to ask you what it is!!! GET A HAT TO RAISE MONEY, TOO!!!

SOME ARTHRITIS OR FM SITES SELL FM T-SHIRTS, BUTTONS ETC.

WE MADE LAVENDER OR PURPLE RIBBONS IN OUR FM GROUP TO SELL, MADE LIKE THE CANCER RIBBONS WITH A STRAIGHT PIN OR SMALL GOLD SAFETY PINS!!!! IT IS CHEAP TO MAKE AND WE MADE MONEY TO CONTINUE OUR SUPPORT GROUP!!!!

Kiska,and all you really have great ideas! I would like to add that the FM aware people started with a great idea but now they have turned it into a commercial venture. I therefore trust all of the ladies on this site more. Dr. Orrange, thank you as always for your input and I know there are as many good dr's out there as bad and you are one of the goods. I am ready and willing to go and do whatever we all decide on. Kiska, should we have committes? Say, one for locating shirts and coming up with the design? One for contacting the media? etc?

I know those sites don't contribute the money to research but I am going to buy some rubber bracelets anyway. I will give them to my mom and sisters to wear and some friends as well. Awareness is important.

Homemade are just as good!!! We make our own in our support group to raise money we have an fm awareness day, decreed by the Gov't in May in Canada!!!!