
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

deleted_user
What exactly does a doctor or medical personal mean by that in reference to fibro? I was reading through the posts and I see that alot of people start out similar and get similar issues as time goes on. For example, the first few months I had fibro I swore up and down I was getting the flu. Then the fatigue got worse. It stayed that way for about 8 months or so and now recently, Ive begun having major muscle aches and joint pain. The pain is localized some days and most days its all over and its that dang flu feeling mixed with muscle and joint aches!!! AARRRGGGHHHH!!!
Tell me what you think please:)
Love Ya,
Brandy
Tell me what you think please:)
Love Ya,
Brandy
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FM can be a misdiagnosis for other illnesses. I know exactly what it's like to get that flu feeling followed by pain/fatigue, but 8 months, non-stop, after never having had a flare before? I would look very, very hard for an underlying cause, such as a virus, infection, auto-immune diseases, or thyroid condition (especially Hashimoto's). Have you had these tests done?
Tam
Fibro is basically neurological in that our neurotransmitters are out of wack leading to a whole host of strange, bizarre and downright odd symptoms that make us look like fools. Since neurotransmitters aren't exactly easy to measure, short of an autopsy, they just throw meds at us hoping something will help.
As the years go by, the neurotransmitter problems cause other systems to sputter and fail, leading to more strange symptoms. Most of these still aren't serious enough to show up on tests so again we look like fools. Among the systems that begin failing are our adrenal glands [adrenal fatigue], our thyroid [subclinical hypothyroidism] and our GI tract leading to IBS.
We don't get enough O2 to our brain or muscles leading to myofascial trigger points that cause untold undiagnosable pain. The pain travels so most of us hurt from the top of our head to the bottom of our feet. Or at least I did.
We develop food allergies that are often subtle and aren't seen for what they are until we're ready to explode or have other strange symptoms. Again, the neurotransmitter inbalances in our brain make us more susceptible to food intolerances and the like.
That being said, I've had fibro for 25 years and I can honestly say that I'm feeling better than I have in years since approaching it from an orthomolecular point of view. What that does is focus on repairing the body systems enabling them to function normally, or as normally as they can after 25 years. This is done through the use of amino acids, enzymes, vitamins, minerals and other nutrients that the body needs to function properly.
Probably the best book on treating fibro I've ever come across is Dr. Rodger Murphree's Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome.
http://www.drmurphreestore.com/newsletters_letters/healthnews3_21_07.html
I wish I would have read this years ago.
I think for those who are just now getting sick, if they were to apply these techniques, there's a good chance they won't end up as sick as so many others.
After my first flare I researched a ton of illnesses that might have been what I was experiencing, and there are A LOT out there. FM cannot be cured, it can only be managed. If you do have a treatable disease you may be the lucky one if it is treatable. Good luck!
Now if you excuse me, it's time for me to take that cocktail, lol
But that is just my opinion and I feel like crap right now so everyone in the medical field is an idiot at this point lol..sorry I am in so much pain I want to SCREAM..."Does anyone understand what is happening to me" but then they would look at normal me and say what are you talking about you look great...B.S.
V
YOU do what YOU feel helps, and decide yourself if it is progressive. I did.
Sometimes I debate about whether this is progressive or not. Could it be possible that the pain is the same but meds don't work as well due to tolerance or that due to having pain for so many years I am less tolerant and able to "handle" without meds? hummmm