
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

This is probably going to sound like a mess because I'm a mess. I told you all that I was diagnosed with severe fibromyalgia flare in my thigh after going through a ton of tests. And I just don't want to get into it. I finally had a diagnosis and could get on with life even though I was still in excruciating pain. My surgeon sent me to a pain clinic. The first thing the doctor said was that I don't have a fibro flare. He touched me on a couple spots on my shoulder and said my fibromyalgia isn't even bothering me at all. He didn't even ask me if what he just did hurt. He said he has no idea what is wrong and to come back in May. He gave me prednisone. And out the door I went. How can I go to two different doctors who don't agree on my diagnosis? My thigh hurts so bad that I can't even take one step without my walker or I'd fall on my face. I'm so depressed I cry all the time. It's not even my new knee that's bothering me. It's my thigh. I have been trapped in this house for a year. I'm absolutely nuts. I don't know what to do anymore.
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I am new to this group. I have recently been diagnosed with fibromyalgia after years of ungoing tests and doctor visits.i do feel releif finally that i got a reason for all this ongoing pain,fatique,and depression. I ahave so many questions about this disease.....I have been put on cymbalta, and may add neurontin, in a few weeks...doctor ordered more blood test for lupus.i can use any support
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I've had it. Honestly. my Brain gives up by 10 AM. C'mon, brain! Get outta neutral!***The first study linking carbon dioxide to warming was done in the 1930s. the hypothesis was first proposed in 1896.OK, let's expalin this in high school terms: the carbon cycle. If you overwhelm it, life gets very difficult. Four of the five largest extinctions known to paleontologists are linked to climate...
Focus on getting the thigh fixed. I do not want this blown off as just "fibro" till that thigh has been CT'd with contrast, whatever it takes to be sure they have ruled out DVT, fracture, tendon ruptures, all of it. OK?
Not saying that to scare you, but so you can tell the docs a few words that can make them *think*!!!
HUGS LOVE PURRS
Doctors, when we have good ones, can be such a help.
When they're dismissive, condescending, and rude, they make everything else seem so hopeless. See if you can find another pain specialist, and may be file a complaint against that one. He didn't even ask you if it hurt? Sometimes if a doctor can't "fix" you quickly, they just don't bother trying. Maybe the prednisone will help, but steroids come with their own problems.
My deepest empathy to you, and my prayers that your pain will decrease and you'll find better answers.
As you well know, Fibromyalgia causes wide spread pain it is not localized. If you were actually in a flare you would feel terrible all over. Pretty sure that your surgeon doesn't understand Fibromyalgia *at all.* He said that he has seen this before and yet was giving you pain medication that does not work for Fibromyalgia pain. Makes no sense to me....
I still think that this is either something to do with the tourniquet used during surgery or another problem with the surgery itself. You need a fresh set of eyes. Call the local hospital and ask for the physician referral department. Tell them what is going on and see who they can recommend that is a known and respected trouble shooter after knee replacement. Also, ask them for a pain management specialist who is highly recommended.
As for that pain management specialist; his first duty is actually take the time to figure out exactly *what* is wrong. Not send you home with a steroid and hopes for a better life. That is a bullspit. He could have done a nerve block or something else to help. Lazy and incompetent would be my evaluation. Not all doctors are actually good at their chosen profession.
Get an immediate appointment with another surgeon. I'm so sorry that you are being given the run around and still in terrible pain. There is no excuse for any of this. You should be well on the way to a full recovery at this point.
Sending support and a hug.
And, since you have a history of back problems, referred pain which is registering in your thigh should be given consideration. If the pain management specialist did not even go there then he is not doing his job.
I've had referred pain. It is tricky to diagnose but should not be ruled out in this instance.
HUGS
I would see if you can go to a physiotherapist. They have helped me through many aches and pains, and surgeries. Get a PT who will touch you. In Canada, where I live, the Canadian PTs don't want to touch you.. But I have been to an Australia and a Belgium PT, and both got to the root of the problem and it did involve touching my muscles!.
I hope you will get either an answer, or figure out a way to make it go away. There is nothing worse than not being diagnosed. It just leaves you in a big hole, with no help at all, always wondering! Hugs!
I will be keeping you in my prayers for sure
Sending lots of support
Gentlest of hugs <3
If anything else, perhaps just having that fresh set of eyes out side of the local community mentality will help?
I've noticed that also. When I was younger going through my pelvic floor pain episodes, I had seen close to 7 different doctors. The medical community where I lived was good for "fit in the box diagnoses". If you didn't fit into the box they all kinda scratched their heads and shipped you off the next guy. I had the same exact problem with my gallbladder too. It was tucked up higher than it should have been and I kept going back, at one point they even sent me to a psychiatrist to "deal" with the pain. I had ever test under the sun, which makes me wonder now what in the heck they imaged if they couldn't locate my gallbladder to begin with.
Anyways, my point being is, I decided to go to a Gyno by work. In an area with a huge medical community (off of France Ave in Edina, if you know where that is, you'll know that it's a 1-2 mile stretch of medical experts). And it was there than I was diagnosed with PCOS. It all made sense. A doctor even insisted that I must have fallen and not realized an injury and called it pelvic floor pain.
So, I encourage you also to fire those docs and continue to seek out another one. They are not treating your condition. If you need to come over to MN, hook me up and you can crash here and I can run you to appointments.
Praying for answers and remedies!
Anyway I just can’t get into talking again about the medical stuff. But I do have a different doctor getting me another MRI from a different angle. We will see what happens.