
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

deleted_user
so glad I found a site with current members and activity. Just recently started searching the net for outside support instead of taking everything on myself. I am a 41 yr old married mother of three teenagers. No one seems to get how bad I feel or why I feel this way, what hurts more is they don't seem to care, which of course leaves me feeling even more emotionally drained and deserted. I feel like I'm feeing sorry for myself and I hate that. I've never been a whiney person and they usually irritate me, but I find myself slipping. Sorry just needed to vent to people who actually understand.
much love
much love
Posts You May Be Interested In
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
-
I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
You have to let them know every day what your pain level is. What I realize is that my family aren't mind readers. They don't know how much pain I'm in or what to do unless I tell them. We also have to be good to ourselves and give ourselves a break once in a while.
Im so glad you found us!!!!
Yep we all need each other
Im so glad yer here Welcome
You might try asking your family to read some articles or book excerpts on fibro (or even leave articles...around where they will find them.) Education can really help. There is also a Letter to Normals that describes fibro from the non-ill person's side. They might be more empathetic knowing that their frustrations are understood too. I'll pull it from my files and post it. You also may want to try calmy and intelligently explaining the illness and how you feel to them. I think people are more open to listening without getting defensive when everyone is sitting together talking calmly.
I understand exactly what you're going through. We all do. We have been there, are there and will be there again. Welcome to our family and keep writing.
Jan
I want to say something about family reacton to fibro. When fibro hits, it generally hits like a ton of bricks. Generally, fibro folks are hard driving, energetic people who always put the other person first. So, the objects of our commitment loose us as much as we loose ourselves. They loose patience, just like we do. They know they can't fix it for you, so they are trying to ignore the problem and pretend that everything is like it used to be before it changed their lives.
Please don't think you are whiney. If you feel sorry for yourself it only prooves that you are a compassionate person. I feel sorry for you too and for us; all of us who have this disease.
I so hope this does not sound like a supercilious lecture. Sometimes I can get pretty terse.
The only thing that's helped so far is to be thankful for the little things, no matter HOW LITTLE...AND, not to expect anyone to understand because my expectations will always be dashed.
We DO understand and we ARE here to give you hope and advice. I LOVE this board. It's great...but most of all I LOVE the people in it. They are very caring and giving of their time and their stories, etc.
Look in the left margine selections for both letters and click on them.
WELCOME AND WILL WATCH FOR FUTURE POSTS !!
http://www.fibrohugs.com/
I think you'll have to copy and paste this onto your address bar.
Does anyone know how to create a link?
Hope you enjoy the letters after all this. LOL