Oh you will not feel alone here. We understand. Have you been seen by a rhuemotogist yet? It would be good if you could see one and he can give you a definate diagnosis.It will be important for you to get some info to let your husband read.I am sure someone will give you a good site to go to or check some of the posts.Depression is very common among us with fibro. Good Luck marilyn

Thank you very much. I am in the process of finding a rhuemotologist. I have not seen one yet. My doctors that I have (gyn and family doctor) were not worried, so I tried not to be, but I am feeling worse and worse and my doctors have given up on me. It is very frusterating. I need new doctors, I know.

Dear Maggie
You have come to the right place, we all understand perfectly and are here for you. You need a new doctor right away. There has been a lot of research just very recently, so the medical community as a whole is not up to date. Fibro is no longer considered to be a physic disorder, it is very real, and there are anumber of studies being done to identify what exactly it stems from. There is strong evidence that there is a genetic component. One thing I believe there is no question of in anyone's mind is that stress makes it much worse, so you do need the strength and support of your loved ones, especially your husband. An excellent resource for information for yourself and for others is My Invisible Disability. I believe the website is http//.www.IDA.com , or you can just do a search on the bar. Another resource is the National Fibromylagia Association. You will find lots of answers, support and loving friends here at DS. Feel free to ask any questions,and share your own experience. We are all here to help each other. Hugs

Hi Mag. Welcome to DS. You have found a great fibro community. We have all been where u are..
Im sorry you are in so much pain.
If you havent already, you should find a fibro doctor. It might be frustrating, as some docs are not up to par with this disease, but dont give up. Maybe once you are diagnosed and get some help, your hubby will be more understanding.

hi Maggie, I completely understand how you are feeling, I went through the same. I suffer from anxiety as well as fibro and was on anti depressants which I worked out was making me worse not beter! I have recently been put on HRT which are helping a lot with my mood. luckily my husband is very supportive and I know this would have been a lot harder to deal with without his help, so I really do feel for you, maybe try and get your husband to read up on fibro? a lot of medical books cant be wrong!!!

I've been sick for over 25 years and am just now starting to feel normal again.

Fibro is cause by the neurotransmitters in our brains being out of wack so we need to counter it with the corresponding amino acids which is what I'm doing.

If you'd like more info, message me.

We understand your pain!!!! I started out with Endro many years ago with the laporoscopies and finally, after ten years, a complete hysterectomy. It caused me much grief when I thought that my pain would be gone after the hysterectomy. Boy, was I wrong! But, that's what we are here for to share our experiences and hopefully make it a little better for the next person.

Hugs and kisses!
Amy

Welcome Maggie! Please get properly diagnosed by a caring, informative doctor or rheumatologist.

Your hubby will eventually get it but in the meantime, know that he may not know how to deal with the love of his life in so much pain. Sometimes, men want to be the hero and when they can't, they use not caring to cope. Please read what I wrote KC today about talking with her hubby.

I don't know about Lupron but you may be having some serious side effects. Please check with your doc and tell him/her what is happening.

hugs, and know, you are not alone. We are here for you. :)

Thank you everyone for being so supportive. I have been having a really difficult time with this and it feels very good to know that I have some support. I really appreciate it.

BLESS YOU MAG, I KNOW TAT YOU HAVE FOUND A PLACE WHEE YOU EILL GET THE COMFORT AND LOVE AND SUPPORT THAT YOU NEED, I'M SO SORRY THAT YOUR HUSBAND IS NOT BESDE YOU IN THIS, THESE DANG MEN, THEY NEED TO REMEMBER THEIR VOWS THAT HTEY TOOK, BUT THEY DONT AND THAT IS NOT AN EXCUSE. BUT WE WILL BE HERE FOR YOU. YOU JUST ASK THE QUESTION, AND WE'LL TRY TO HELP.....LOVE....HELEN

Please do some research on the Lupron. I was on it 2 different times, and each time my syptoms of fibro got worse, not to mention it caused seizures! About 2 months after the last shot, the seizures also nearly stopped. My Rheumatologist feels that the Lupron is what brought the fibro on. I am part of a Lupron victims website and would be happy to tell you about it if you would like.

Lupron was originally developed by Tap-Abbott, for prostate cancer. It is a form of chemo. I lost a bunch of hair, with some big spots, that were hard to cover up. The FDA allows Drs to use it for anything, once it is an approved drug, without clinical studies for the new use! My Dr. (former), was using it to shrink the Endometriosis, but I still ended up having a hysterctomy! And had such a horrible experience while on the drug!
Please, research, research, research!!!!!!
If you would like to chat, leave me a msg or a hug, and we can discuss this poison
Love and Hugs. Kathy

Hi Maggie, i am so sorry you feel alone. YOU ARE NOT THOUGH!!!!! Please know that. i understand how you do at times when dealing with this I still feel alone. But we are not. Absolutely get some info and let your husband read it and get to a rheumo as soon as possible. I f you want I added you to my friends list. We can chat. I am 29 years old and have been living with fibromyalgia for a little over 10 years. This is a wonderful site. You will find a LOT of support and answers to the questions you might have. My thoughts and prayers are with you. Big HUGS!!!!