Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I was diagnosed with Fibro just a few short days ago and since then I have been in my own little world. I have had a life time of illness stemming back to kindergarden when I was diagnosed with Mono, then when I was a freshman in high school I was again diagnosed with Mono (very rare to get this twice) then when I was a junior I was diagnosed with bacterial spinal meningitis. Years went by with various problems health wise. I had to have my gall bladder out at age 25. Was diagnosed with a psuedo-tumor cerebri at 27 where I underwent over 50 spinal tap's to check my level of fluid, also was on medication. I am still being followed to this day by a Neuro Opthamoligist. Then at age 32 I was diagnosed with uterine cancer where I had to undergo a full hysterectomy. Fell last Christmas Day and broke my right ankle had to have surgery yes on Christmas Day where they placed a 10 inch plate and 8 screws in my ankle. I also badly sprained my left ankle at the same time. They think this fall made this Fibro blow up. I have had all the symptoms since I was a kid. Now what do I do to go on with my life being in pain? I don't want another issue in my life. I didn't ask for all this to happen to me and I wonder why me? AGAIN This is just unreal. Who does this happen to? I am so frustrated. I don't know how much more I can be handed. I am a strong person but it is starting to take it's toll on me. It's hard to be happy when inside you are so mad and frustrated. I am glad I found this site and look forward to reading into what I can do to make myself feel better. The med's I was given make me very dizzy and kinda like a drunken feeling. Hard to explain. I am still in pain... it has only been about 4 days I have been taking it so hoping it will kick in once it is in my system. Thank you so much.
Joni
Joni
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
i have been blessed by reading others stories
wow you sure have gone through alot
are you a Christian by chance?
i know that has been my Saviour
i dont know how people do it without Jesus in their lives
if you dont im not judging you just speaking from my heart
gentle hugs to you and im here if you need to talk
I also know what you are talking about when you list your MENU of Medical Issues. My list has become laughable.. I recently moved to a new state, when my records were recieved by my new medcial CREW, they each felt they received a truck load of documents from a Library.. They were astounded at the number of tests, illnesses and issues I have experienced, and I AM STILL BREATHING!!
As for meds, it will take some time for your body to adjust, especially if you are taking other meds. Be sure to keep a running listing of ALL of your meds in case you come up against some that cause interaction or and allergy.
Please keep us informed and take tours of other medical communities.. you may find others that will be supportive and helpful of other issues you might have.
Take Care...and Welcome
I wish you all the best in the world.
LOVE&HUGS, Jackie
Hugs Leslie
It can't be cured but with the right combo of meds a good doctor and a lot of good information, you can stop it from consuming your life and turn it into a manageable chronic pain in the butt illness that lives in the background of your life.
Now, the real fun begins -- the quest for what works best for you.
Please don't get discouraged if you read about something that doesn't work for someone else. We all have the same illness but it affects each person differently. What helps one may hinder another.
It's a lot of trial and error but there's a lot of promise and hope with new meds and more doctors who are gaining true knowledge about FM.
Again, welcome. Grab a warm blanket, something warm to drink and dive in!
This is a very supportive site. I hope your medications calm down and help you without the dizziness. DId you get anything for breakthrough pain? I would ask for that.
Sounds you have had much happen you do not deserve like us. We are hear for one another everyday. xoxox
I read on your profile that you're taking Lyrica. From what I've read here, it helps very few people. I don't want to be negative and hope that it works wonderful for you. I just want to give you the heads up. There's also a few side effects but you can read about it under the "treatments" section.
I hope you find everything you are looking for on DS. Friends, information about the fibro, and sometimes just plain old fun.
Love and hugs. Kathy