Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

3,752 Members

47,740 Posts

0 Online

deleted_user 04/13/2008

I thought I would let everyone know a new research has shown the Glia Cells are producing the pain and not the neurons. The Glia Cells take up 70% of total cell population in the central nervous system. They are saying this is one reason meds are not helping with pain really well.

There is also a NEW MEDICATION waiting for FDA approval which could be ready this fall. Milnacipran which works in the central nervous system to increase norepinephrine and serotoins.

Here is the link
http://www.fmnetnews.com/basics-issue.php

January 2008 Issue 80
Pages 4-7 for Glia Cells
Pages 12-14 for Milnacipran

Hope everyone has a very wonderful day. Low pain or pain free.

Much Love & Soft Hugs
pam

Trish50 04/13/2008

huh.. interesting.. hope they find something soon.. too many of us are at the end of our ropes... ty for sharing this.. hugs..:)

deleted_user 04/13/2008

Have been waiting for the Milnacipran, it sounds more hopeful than the lyrica. I won't even try Lyrica. Sounds like neurontin with added side effects, one of which is extreme weight gain. Not helpful!

These new findings will lead to more and better drugs, and who knows, someday a cure. Maybe not in my lifetime, but that's okay.

deleted_user 04/13/2008

Thank you posting!

deleted_user 04/13/2008

Thanks for the info

deleted_user 04/13/2008

Thanks for sharing

CarrieinSK 04/14/2008

Interesting, I sure hope this is the answer! Thanks!

deleted_user 04/14/2008

Thanks for the info and sharing
will check it out.........

deleted_user 04/14/2008

i had what i thought bwas good friend was in the trialls of that helped her great . she just disapperd. never heaed from her again.gg

deleted_user 04/14/2008

I've already looked into buying Milnacipran online. You can get it with no prescription. It's legal in both Japan and England. The AlphaPharm site out of England told me they'd send it to me. My doctor is all for it!

If anyone HAS tried it, could they please let us know?

deleted_user 04/14/2008

Thank you VERY much for the information. I'm currently on Lyrica and have gained 10 lbs in 2 wks and 5 days and I am NOT happy! Yes, I'm vain, I guess. I don't want to gain a bunch of weight as that will depress me BIG TIME

Hugs...Deb

deleted_user 04/14/2008

I wasn't aware that they are finding CIDP in FM patients, this was on the first page of the link you provided. My neurologist thought I had this since I'm having severe problems with numbness. What I've read about CIDP it is usually fatal....where does that leave us?

deleted_user 04/14/2008

Hey Yankeechick, Its not vanity, I was on Lyrica for 1 year, gained 35 lbs and decided to get off it because, it helped with pain but the extra weight is definately not good for the heart and you canot move as well. So you are less active. I had to stay on it that long because I had a total hystretomy and had to have a craniniotomy ( to clip a 4 mm aneurysm ), so all in all it helpe with the pain and the seizures after the surgeries. But don't think you are vain, it's enough that we feel so Shi@#$%@#$%^&*y with the fibro...
keep on smiling : ) Popo

deleted_user 04/14/2008

I am glad this information was helpful to all. I will keep everyone updated as I get more information. As I have stated before I am doing and educational day at the local hospital. This is one reason I have gotten much information from personal contacts with different Association. I do hope everyone has a very blessed, pain free, comfort day.

deleted_user 04/14/2008

Thanks for posting this info!! Lets hope there is something for us around the corner!!

deleted_user 04/14/2008

That is the issue right there. They HAVE TO FIND OUT what is the ROOT cause of the issue. Not simply slapping bandaids on the collection of symptoms.
Thanks for the info.
HUGS
JBEAN

Join the Conversation

Posts You May Be Interested In

Walk a Day

Posted by: Rizen

Last Reply: mujicaptsd 03/29/2020

2009

I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
Have you had the test with water in your ear?

Posted by: sleepyjean

Last Reply: Trog 01/14/2020

11

My ENT sent me for more tests last week...one where they had me lie back in a chair, with blacked out goggles on so I couldn't see while they administered water into my ears one at a time ( first warm, then room-tempurature, then cold) while they video taped my eyes and asked me questions to determine how cognizant I was... This test went HORRIBLY. They were about 20 seconds or so into...

Walk a Day

Have you had the test with water in your ear?