
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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I have been dealing with severe pain in my back, legs, shoulders, and hips. As well as all that I have devolved a skin sensativity that I can't explain in words. It hurts to have my skin touched. This includes clothes. people touching me like rubbing against my skin, and I am unable to sleep. I have incredible pain 24 hours a day 7 days a week.
I have a huge pain tolerance and this is more than I can bear. Dr.'s can't seem to find out what is wrong with me and I have been referred to an Endocrinologist, a neurologist, and finally I am being referred to a Rhematologist, that I have no idea what one is or obviously how to spell it, but I haven't seen him yet.
Please tell me what you guys think because you live with this everyday. The dr's are useless but maybe here I can get some sort of idea as to what I have or don't have!
Please help, oh yes I forgot to tell you that my mother also has fibromyalgia and has had it for about 10 years. I unfortunately do not speak to her so I can't ask her about this stuff.
I have a huge pain tolerance and this is more than I can bear. Dr.'s can't seem to find out what is wrong with me and I have been referred to an Endocrinologist, a neurologist, and finally I am being referred to a Rhematologist, that I have no idea what one is or obviously how to spell it, but I haven't seen him yet.
Please tell me what you guys think because you live with this everyday. The dr's are useless but maybe here I can get some sort of idea as to what I have or don't have!
Please help, oh yes I forgot to tell you that my mother also has fibromyalgia and has had it for about 10 years. I unfortunately do not speak to her so I can't ask her about this stuff.
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If blood tests come back "normal", then they usually diagnose you with fibro.
Good luck & I hope this helps.
Before I was diagnose with fibro. I also seen many different Doctors and went for many tests. But you need to Google Fibromyalgia and read as much on it and the symptoms and the treatments. Also ask these Doctors if they are familiar with fibro and see what they say. Fibro has no known cure at this time. Sadly. And does not show proof of its existence from test. That's why it is important you see someone who has knowledge in this evil Illness. Unless you have other Illnesses that need different care?? You will only be waisting your time and money.
You sound like my mirror image! I have been feeling exactly like that. When I lay down at night, my back and hips, and down both sides of my legs, to my ankles hurt so bad, I can't get comfortable. And my skin and even hair hurts. I take tramadol, and Lortab. I recently was experementing with my meds and decided the tramadol was causing all kinds of weird things, most of all excessive sweating. Even in the 25 degree weather we have been experiencing here in NY this last week.
I have to get back to the Dr. I want him to refer me to a neurologist, or rheumy soon. I think they may be more capable of getting to the gist of what is going on all of the sudden.
I've been dx'd for 4 years, but it took 3 years to get that. A rhuemotologist dx'd me. I wish they would find a good way to help us. I tried Lyrica and it didn't help me, like it helps some here.
Prayers for you, Hon!
Laurie
The test is cheap but mine came back negative online and highly positive in the doctor's office. I think it was operator error lol.
The neurotransmitter Substance P that is responsible for pain is probably elavated amplifying every sensation making it seem painful when it shouldn't.
The neurotransmitter serotonin is probably low as it keeps substance P in check.
The thing I've found that helps the most is taking amino acids to regulate your brain chemistry. 5-HTP is used by the brain to produce serotonin and has made a world of difference in my life.
Serotonin is feel good neurotransmitter as it reduces pain, improves sleep, lessens morning stiffness, helps the GI tract function properly and controls depression.
Here's an article on the role of neurotransmitters in fibro along with a brain function questionare about symptoms associated with each neurotransmitter:
http://www.drmurphreestore.com/newsletters_letters/arefmspatcrazy.html
http://store.drmurphreestore.com/brfuqu.html
Since adding amino acids to my treatment protocol, I'm actually starting to feel normal for the first time in 25 very l-o-n-g years. I attribute it to them allowing my brain to function properly.
I think if you are going to add anything like 5-HTP , you need to check with Dr first, to make sure it won't interact with other meds you are currently taking.
I know my Fibro came on after a very bad infection in my system after a hytserectomy that nearly killed me. E-coli bacteria was in my whi=ole abdomen from an abcess caused by my surgery. My Doctors told me thats probably what brought on my FM diagnosis. Every one is differnt, and can just about pinpoint the onset of FM. If they think hard enough about it. Just my opinion, as everyone is so different.
The book is Fibromyalgia for Dummies, by Dr. Roland Staud. He is a Rheumatologist. I have found this very helpful, especially in not thinking I am crazy or that I am a hypochondriac.
My thoughts and prayers are with you. Let me know if there is anything I can do.
I am mentally worn down and I am just wanting this pain to end because I can't stand it anymore. I am taking Neurontin as well as percocet for the pain but it seems to barely touch it.
you have already been given some good advise...so I am just letting you know I am with you...I have hip/lower back/legs pain everyday...I get the sensative skin thing...to me it feels like my hair folicles are irratated or something...I have also had a bad neck/right shoulder and shoulder blade...this must be where I carry my stress....at any rate Physical Therapy done in a warm {but not hot} Pool has done Wanders for all my Upper pain....once everything else is ruled out and you get to the point of discussing Treament Options....you may want to ask your Dr.s to refer you to a PT...so your Insurance will pick it up...I have not had a headache since the Friday After Thanxgiveing....and I was plagued with them almost daily...severe dabilitateing headaches....I have to take the more natural approach since I have at some point developed a sensativity to meds....
A prayer for you that you find the right Combinations of treament that will help you to live as pain free a life as you can...
ur friend, Bonnie
Neurontin did NOTHING for my FMS pain. I take Voltoren (anti-inflammatory), Melatonin for sleeping and a herbal mix of magnesium, malic acid, fish oil and celadrin.
I also get a nightly massage, treat myself to pro massages and want to start aquatherapy.