Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Has anyone else on here also been diagnosised with narcolepsy? could they be related to each other since they both seem to deal with sleep?
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
Makes in interesting combination with insomnia.
I've also got alpha intrusion, which basically means my brain is still awake when I'm supposed to be in that good deep restorative sleep. I've heard that one's commen with fibromites.
I do not have narcolepsy. I do have obstructive sleep apnea. And the problem mentioned in reply #5. I do not get to the 2 stages of sleep that are restorative. All 3 of my sleep studies had long periods that my brain activity appeared that I was awake, but I was asleep.
I would really appreciate anyone willing to share their knowledge on this subject.
God bless you all & thanks for your sharing.
Are alpha wave intrusions when you go from REM to awake to REM again multiple times but you look like you are sleeping? (you dont' open your eyes or anything but that's what your brain signals do) i did this during my sleep study (the sleep tech showed it to me--he had never seen it before so he didn't know what it was called)
When I saw the Dr that afternoon, he said that he was very concerned about my over night study. Several times my SaO2 got down to around 54%, and I was told that 70% is getting into the dangerous zone.So he decided that we would put the narcolepy on the back burner and try to get my SaO2 up while I sleep. He PX the CPAP, however, I felt like I was choking on it. He finally sent me to an ENT, who examined me, and said that in order for the CPAP to work properly, I need to get my airway open more. And to do that, I need my soft palate (roof of the mouth) shortened and my tonsils out. When I lay down, my tonsils are touching, restricting my airway. So, sometime in the very near future, I will be having, as the Dr described it, a very painful surgery. He said I will be on morphine drops for about a week, because it is really hard to swallow pills, and then for another 1-2 weeks, on some pretty strong stuff for the pain. I won't be able to eat for at least a week. I will be living on protien shakes (yuk), and broth,then for the next 1-2, I will only be able to eat realy soft stuff. I better lose like 40 lbs., ok maybe 10 lbs. Kathy