Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I am not so sure that I can physically take anymore of what life has to throw my way.
I have the right to be nervous or stressed out about the holidays and the impending birth of my daughter, but is it necessary that for me not only is stress mentally painful,it's even more physically painful.
I have become consumed with my own pain and misery that I honestly don't know who I am anymore, I don't even know what good or bad things I'm capable of,and as they say misery loves company...
I've drug down everyone around me,even my poor kids suffer everyday. It's been a downward spiral for so long already, the effects that fibro has had on my life up to this point are irreversible.
I do not see the light at the end of the tunnel,hell I don't believe there is an end to this tunnel.
DS is the only place I have to turn, I have no friends or family that I can talk to, I don't believe what anyone tells me is genuine, because I just don't feel like anyone I know even believes me, they all think that I blow everything out of proportion,
and because I don't have a terminal diagnosis like cancer, or they can't see that I look considerably ill, I must not be that bad.
Most of my suffering is done in silence. There is no doctor that can help or even really wants to.
I feel like I'm am in a much higher level of depression, one that medicine cannot fix, I try to think positively but it has no long term effects.
I literally hate the person I am today, this is not what I wanted my life to be like, I did not ask for this, I didn't do anything to deserve this, I just barely started my life and I've never got to enjoy it.
I know the positive things I have, but I don't feel that I deserve them anymore,I am not a person that anyone would admire, nor even want to associate with.
Bitterness is not appealing and I ooze it.
I guess what I expect to get out of this is some kind of hope, I don't want to give up, I want to be better and I'm so sick of having to do everything alone.
I have the right to be nervous or stressed out about the holidays and the impending birth of my daughter, but is it necessary that for me not only is stress mentally painful,it's even more physically painful.
I have become consumed with my own pain and misery that I honestly don't know who I am anymore, I don't even know what good or bad things I'm capable of,and as they say misery loves company...
I've drug down everyone around me,even my poor kids suffer everyday. It's been a downward spiral for so long already, the effects that fibro has had on my life up to this point are irreversible.
I do not see the light at the end of the tunnel,hell I don't believe there is an end to this tunnel.
DS is the only place I have to turn, I have no friends or family that I can talk to, I don't believe what anyone tells me is genuine, because I just don't feel like anyone I know even believes me, they all think that I blow everything out of proportion,
and because I don't have a terminal diagnosis like cancer, or they can't see that I look considerably ill, I must not be that bad.
Most of my suffering is done in silence. There is no doctor that can help or even really wants to.
I feel like I'm am in a much higher level of depression, one that medicine cannot fix, I try to think positively but it has no long term effects.
I literally hate the person I am today, this is not what I wanted my life to be like, I did not ask for this, I didn't do anything to deserve this, I just barely started my life and I've never got to enjoy it.
I know the positive things I have, but I don't feel that I deserve them anymore,I am not a person that anyone would admire, nor even want to associate with.
Bitterness is not appealing and I ooze it.
I guess what I expect to get out of this is some kind of hope, I don't want to give up, I want to be better and I'm so sick of having to do everything alone.
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
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Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel
you really are not alone..these emotions you expressed are what so many here go thru day in and day out... You are worth it and do deserve to be happy and enjoy life. I know it is hard...This disease is absolutely horrible and what makes it worse is that alot of dr.s do not care nor believe it yet...But know that we are here for you...we will all get thru these tough times together....my feelings inside are how you expressed them in words...we can lean on each other and take it one day at a time....so many don't believe what we go thru but it is very real...and you must think positive..don't let this illness take over you don't let anything or anyone break your spirit...sometimes i have to talk myself thru a night or day...it is very hard to cope with this but you can do it and we are here to help....i have a shoulder here for you and an ear as well...have you tried any kind of meditation? tai chi , chi ghong, yoga it helps you relate to and concentrate solely on you and get you thru stress..it is hard to explain but there are many benefits...that this discipline can help you get thru that one would never dream such a thing could help you accomplish..just know we are here for you and you are not alone hun.
warm gentle hugs....
try to smile sweetie it takes a while but you can do this..
#1. is to never give up hope.
#2. find a doctor who will listen and properly treat you. You may be in a depression and need some meds to treat it. Depression isn't something you can just snap out of.
#3. Remember that your pregnancy isn't going to last forever (although it feels like it sometimes) and you'll be able to resume any pain meds or try new ones.
#4. You're wrong about not being a person that anyone would want to admire. A photo speaks a thousand words and your eyes show that you have a heart of gold. Not everyone has that. Plus, you have gorgeous hair!
#5. We all get bitter and it's perfectly natural. Not only do we have to fight this illness 24/7 we actually still come across idiots that don't believe it exists! I really seriously want to smack those jerks upside the head!
#6. You're not alone. You have all of us.
#7. Do something nice for yourself each and every day.
#8. Remind those around you that you have an illness that you can't see but it exists. I've probably complained more about my aches and pains this last 2 months than I have the last 20 years. I'm tired of the big "cover up" and not going to do it anymore. I tell anyone and everyone. If they don't like it or don't believe it...to heck with them.
hugs!
Being that you are in pain and pregnant those around you should recognize that you need support. I am sorry you are not getting that right now. It's hard to remain upbeat in these circumstances. If you are seeing a rhuemy he/she should be checking you for depression EVERY time you come in for a visit, because it is normal for people with chronic illnesses and pain to be depressed. If your doc is not these things then you should look for another rheumy to treat your FM.
I hope you can find the answers you need. Don't feel bad because your pain is bringing others down, try to give them the opportunity to help you but otherwise they are responsible for their own attitudes. Don't judge yourself at this time, you are in an emotional, needy state that others should help you, not the other way around.
I don't have all the answers but by talking to us here at DS hopefully that will give you a place to vent and feel cared about, because we do. I hope in some small way that this helps you...hugs jilly
I can say all the regular things and try to lift you...better to try to lift you thru prayer along with everyone else...And I am going to pray, because with everything weighing on you , you have to be in an emotionally terrifying position...
and you Know better then to think you do not deserve all the good things you have in your life...not like you went out and bought this DIS-EASE and are now shoveing it down everyones throat....it is consumeing you right now because of all the added stressors...remember everyday to give urself time Alone...meditate, read...Pray....whatever comes to you each day...
and be sure to keep in contact with us everyday so someone here can keep up the encouragements !!!
Take care girl....Bonnie
This illness SUCKS. There is no other way to describe it, there is no sugar coating, there is no magic pill that will end it all. It Sucks. BUT IT WILL GET BETTER.
It will not go away, but your level of frustration will go away. You will not be dancing the jig this afternoon, But you may be dancing the Tango tomorrow. You are going to have a child, What joy that will bring to your life. You already have children, What Joy you already have in your life. You are loved, Yet another Joy in your life. There is indeed light at the end of this tunnel. These are the things that will keep you walking ahead. Your meds will become the correct cocktail and this will keep you moving forward. you will find the correct way for YOU to live,,,not what someone tells you to, or what others do, but what is the best for you. Sometimes there are power surges and sometimes there are blackouts in your body, but the lights do come back on. You can do this, you Can get through this frustration, We will help you anyway we can.
I also think you are suffering major depression. I say this because I've been there, I've felt those same feelings. I almost left my husband at one point because I felt I was such a horrid wife, and he could do so much better than me. I isolated from everyone, I didn't want to see anyone, I didn't want to talk to anyone. Please talk to your doctor about these feelings though. I'm sure you're aware of it, but you're at much higher risk of post partum depression when you feel this way before the baby is born. Also realize that alot of these feeling are probably hormones as well. You have so many hormones coursing through your body right now, and I can't think of a single hormone that makes you feel good! (Well, maybe serotonin, but I wouldn't know about that, since my levels have always been so low!)
Just remember that we are all here for you, and there is always someone here who has been where you are. Keep talking to us, getting it all out is a step in the right direction. And remember, chances are really good that you'll feel at least a little better once your baby girl's born. Keep us posted & please do not give up hope!
Hugs, Shelli
You are not alone - the DS family is here for you. You deserve all of the many blessings you have.
When I was pregnant, I had times when I felt like you do now, but things do get better.
Ask your doctor if he can tweak your anxiety and depression meds to find a better combination for you. You have a lot going on right now and he/she needs to help you through it. Maybe your OB and FM doctor can find a solution together that will make you feel better.
None of us stands completely straight - we prop each other up so we all can stand together.