
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

WhiteDolphin
Does anyone else feel the same way? - like your life is on hold ever since you got sick... or maybe you feel like your life has ended?
I keep trying to figure out what I'm supposed to do next.. what are my options?
I'm getting so beaten down by my limitations caused by being ill.
I wrote a journal entry, venting about this stuff.
I just can't settle for this. I physically am unable to work. I did apply for SSDI and will know something in 4 months. I am currently receiving disability insurance payments from a private insurance company. That's fine, it helps in the moment, but how long will that last?
If I do get approved for SSDI, its only going to be enough to pay rent and electric. How am I going to afford continuing my doctoring, prescriptions etc?
How am i going to afford any type of hobby I might want to take up to take my mind off of being ill?
Its like I just came to a dead end in the road of life.
I hate to sound so depressing. I'm trying to be realistic...
I just want to be happy and healthy.. I don't want to hurt so much that I can't even enjoy much in life.
(crying)
I keep trying to figure out what I'm supposed to do next.. what are my options?
I'm getting so beaten down by my limitations caused by being ill.
I wrote a journal entry, venting about this stuff.
I just can't settle for this. I physically am unable to work. I did apply for SSDI and will know something in 4 months. I am currently receiving disability insurance payments from a private insurance company. That's fine, it helps in the moment, but how long will that last?
If I do get approved for SSDI, its only going to be enough to pay rent and electric. How am I going to afford continuing my doctoring, prescriptions etc?
How am i going to afford any type of hobby I might want to take up to take my mind off of being ill?
Its like I just came to a dead end in the road of life.
I hate to sound so depressing. I'm trying to be realistic...
I just want to be happy and healthy.. I don't want to hurt so much that I can't even enjoy much in life.
(crying)
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So far as your life being over, let me tell you this.
When I broke my foot, due to an imbecile doctor, he didnt treat me after the six weeks....so I treated myself and put myself back on crutches.
I would not advise people to treat themselves. He wanted me to get an MRI done bec after 6 weeks I still had not healed right. (your healing can be very slow with fm, took me three yrs to heal from reduction mammaplasty, breast reduction)
Anyway so jackass wouldnt treat me. As a result, I was on crutches for a long period of time which is a bad move..dont ever treat yourself people, I developed disuse osteoporosis in my feet and both legs as a result of being on crutches for so long. I am better now due to walking a lot per my real doctors instructions.
Btw a REAL doctor later told me why did that other doc want to do an mri that isnt necessary....
ANYWAY my point is this, honey we adapt WELL when we are broken. I am fast on crutches, I still use a wheelchair when I go to the mall, and I am Quick Draw Mcgraw in a wheelchair. In fact, my friend was talking to me and the next INSTANT I was gone..he was talking to himself lolol I am quick honey
bottom line is this, you WILL adapt, you will be creative about how you get around and do things.
I saw a lady on tv with no arms, who has a child. Honey chile, she can put on her MASCARA with her TOES!!!!!!!! In fact, her child is so used to seeing Mommy use her feet that the child started doing that too although the child does have arms.....
point is, you will make it work when you want to and you will get GOOD at it.
I didnt break my foot due to the doctor lol I did that on my own...and then when after 6 weeks he couldnt milk me for more money with an MRI that wasnt needed I might add, his staff cut me off and he never did return my calls...I got referred to a real doctor in the overland park ks area who was on the ball, LISTENED to you, and took X rays and such. He CARES about his patients.
he was WONDERFUL!!!!!
his name is Dr Romito for anyone who might need him in the KS area lol
If I'm going to have a new life.. I need to be in a new town.
That's just how I feel..
But moving requires funds. Not only that but where would I move to with no money to do so. So I get where you are coming from. But maybe if you had more friends there it would be better?
Good friends are hard to find then when you have a chronic illness and folks find out they act like you have leprosy or something, damn people are so dumb
but anyway hon lol I want you to make the best of where you are maybe time for a vacation?
I am Still trying to find "My Place" in this world of Fibromyalgia...I feel as Tho I am just exsisting, Unable to go in the Direction I want to go, at the speed with which i want to go...and everytime I turn a new corner, thinkin I have found a Path around In My general Direction, I HIT a Brick Wall....sometimes Hard enuff to land me Flat on my ass...
Last year I got my Pain Levels Way down, but my endurance barely Increased...so even tho I would have perhaps less Pain, I would still get Weak, or these stupid Nightly "Mini Flares"...My Brain wants me to GO GO GO...Lets Flippin GO already !! I Like to get stuff done NOW...but if I push, I am down...Christ !!
so Here I sit...just exsisting within my Husbands Life basically...having nothing of my own so much anymore...but, am still walkin the Maze...lookin for a Path that will lead in the Direction I want to Go...
I have found some things over the last few years that I never thought that "I" would Enjoy...Like our gardens, flower beds...WoW how relaxin it is to get out there right as the sun is coming up...
and I DO have ALOT more time now...sure wish i could have had this Kinda time a Long time ago !! when I felt Good enuff to Take advantage of it all !!
so On we go...reInventing and just Plain old Venting !! we will have these days on and Off...just hopefully they will be soon more OFF...
Hugs this day girl !!
I don't want to participate in any family gatherings because of it. It just takes so much energy for me to be strong and listen to what is said and take it in, and it takes more energy to defend myself.
I'm so done with that. I'd just rather not be in their lives anymore...
there are Times I still want to join in...but this is a Big family...and Ohhh all the Kids Love me...and my energy levels will lay me out flat for 2 days...yet sometimes it is FUN !! and I get So tired of having to miss out...and it is all Just VISCIOUS !!!!!!!!!
Gosh..it's like I need to go and "prove" to them how crappy I feel.. So I have a new plan.. I'm not getting fixed up to go there anymore.. I'm gonna go and look like crap and let my true sickiness shine through...
Then they can't say "You look like you're feeling okay"
So, like you would stay the same anyways?
You could try to be positive and take each day as a new adventure. I know it's real hard to be positive when you hurt or are foggy, etc... However, you have to live the moment and you have to be something so why not try to be happy?
Honestly, the way I feel right now, I would tell myself to go to Hell but I know sometimes it works.
Today I read that if you laugh outloud or smile, it tricks your brain into being happy.
I go through patches of thinking my life is over but then I get my good days when I look at the positives and things that I can do. I certainly understand how you feel and cant really say anything to help other than you are not alone in feeling like this and to give you anice big caring hug x
I do craft to keep my mind occupied.. this has saved me.... the way I do this.. is go to yard sales and thrift stores and salvation army stores.. and look for anything that I might could re-paint, re-do.. something I might get that I could make something else out of...
Yes, it is hard to be realistic sometimes.. but what I done that has helped me.. is go through this message board and read all these posts.. some of these people here have been living with this for years and they are STill holding on. I hope you feel better. God Bless You! Lori