
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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I am so ticked off. My rheumo's nurse finally called me at about 4:30 today and said that she just heard back from the insurance company and they wont cover the provogil. I asked her if there was anything similar that i could take for this aweful fibro fatigue. She said.. the Dr. did not mention anything, but I don't think there is anything else that is similar to this med for what he wants u on it for. I said its simply for fibro fatigue, my insurance will pay for ms contin which is morhpine, they have never batted an eye at it, yet they wont cover this! We pay a % of our insurance, for everything, so its not like they would have to cover it at 100%.
The nurse called me back and said no, there is nothing else he can prescribe you.
So here I sit, I have gone through my insurance book, I have seen most docs that treat fibro. I am so discouraged, I feel much worse than I did before I started seeing this rheumo, that was once really good to me and tried hard to get my pain under control. I am just irritated, cant stop crying about this entire situation. I over did it today at work, my back is spassing as hurts so bad ive given myself a stres headache.
I don't know how i am going to be able to continue to go to work and do everything around here i need to get done with this horrible fatigue. I have fell asleep and dozed off so many times tonight ive not gotten a thing accomplished, and its not just today, its every day.
I feel worse than I did before i ever found this doc, emotionally, physically and mentally. I just don't give a crap about a thing, not even me or my kids. I dont cry and this is all ive done since monday.
Ok sorry this turned into a vent and pitty party that im having for myself.
I am just so frustated.
Hubby is going to go to HR monday at work and find out if we or they can help me to appeal this.
I also asked the nurse why they denied it and she said i have no clue so i called the pharmacy. She said that the provigil for 1 month is $280.00 a month. I also take zyrtec for seasonal allergies, zyrtec is very very expensive, it doesnt come in generic and they cover that. Its almost $200.00. My cost for the zyrtec is $89.00 but a bottle of 60 little pills for that price will last me a year.
I am going to spend monday, my day off, calling different docs and am going to go see one for a 2nd opinion about what my rheumo is elling and i dont care if he gets mad at me or not. I cannot fathom the thought of trying to get thru my day with only taking neurontin and xanax of which is what my rheumo eventually only wants me to take.
grrr.. sorry this is again so long and a negative rant and vent.
I hope everyone has a nice weekend.
The nurse called me back and said no, there is nothing else he can prescribe you.
So here I sit, I have gone through my insurance book, I have seen most docs that treat fibro. I am so discouraged, I feel much worse than I did before I started seeing this rheumo, that was once really good to me and tried hard to get my pain under control. I am just irritated, cant stop crying about this entire situation. I over did it today at work, my back is spassing as hurts so bad ive given myself a stres headache.
I don't know how i am going to be able to continue to go to work and do everything around here i need to get done with this horrible fatigue. I have fell asleep and dozed off so many times tonight ive not gotten a thing accomplished, and its not just today, its every day.
I feel worse than I did before i ever found this doc, emotionally, physically and mentally. I just don't give a crap about a thing, not even me or my kids. I dont cry and this is all ive done since monday.
Ok sorry this turned into a vent and pitty party that im having for myself.
I am just so frustated.
Hubby is going to go to HR monday at work and find out if we or they can help me to appeal this.
I also asked the nurse why they denied it and she said i have no clue so i called the pharmacy. She said that the provigil for 1 month is $280.00 a month. I also take zyrtec for seasonal allergies, zyrtec is very very expensive, it doesnt come in generic and they cover that. Its almost $200.00. My cost for the zyrtec is $89.00 but a bottle of 60 little pills for that price will last me a year.
I am going to spend monday, my day off, calling different docs and am going to go see one for a 2nd opinion about what my rheumo is elling and i dont care if he gets mad at me or not. I cannot fathom the thought of trying to get thru my day with only taking neurontin and xanax of which is what my rheumo eventually only wants me to take.
grrr.. sorry this is again so long and a negative rant and vent.
I hope everyone has a nice weekend.
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In the meantime, doctor's offices get boxes full of samples on a regular basis. Can you ask you doctor for some samples because you can not afford the prohibitive costs of another medicine. Also, you can go to a family practicioner for Fibro treatment. Not only Rhume's treat this illness. Many family doctor's are now treating it. Good luck with this.
Our insurance is very wierd. We pay so much a week out of hubby's check, then every January the company pays the first so much off the top, then we pay that same amount off the top, they take that extra amount out of hubby's check on top of what they already take out weekly. Once those are both used up, then we pay a %, depending on what catagory the ins. company deems it necessary. For instance, if I were to go to the ER for a severe flare, my insurance would not deem that a true emergency so therefore the insurance won't pay for it. However if i were in a car accident and taken to the ER by ambulance that would be deemed a true emergency and then the ins. would pay a % of that ER visit. For scripts they place each med in a catagory, depending on what catagory that med is placed in depends on what % we pay for that med. One month I might pay $4.29 for my ms contin, the next month I might pay $50.00. Because we also have a % that goes toward each individual like a deductable. Even if we meet that % of each individual deductable we still have to pay a % for either a dr. visit and or script. That is how the insurance and the company have it set up. It has taken me 3 years to even understand how this fully works.
My rheumo did leave the room to go see if they had any samples of the provigil but they didnt. He has only givin me samples once and that was for lyrica, then when i couldnt take the lyrica due to bad headaches and migraines, when i called and talked to the nurse and old her what i was experiencing from the lyrica she asked if i had any unopened bottles from the samples he gave me and if so could i bring them in. I had 2 unopened bottles and did take them in, not sure if thats legal or not but they werent opened, so i gave them back.
I know the lyrica is also very expensive, and i did end up with a script for it when he put me on it the 2nd time, the insurance compnay did not bat an eye when it came to paying for the lyrica. Now i have a huge bottle of lyrica sitting in my cabinet going to waste. grrr. hubby is going to HR tommorow to see if they will help me dispute this, i am also going to call the place that Raven recommended to me monday morning(today, lol,)
gotta love insurance companies.