Oh my gosh...Can't you find another rhuemy in a different parctice? It sounds like he thinks Lyrica is a cure for us. I had severe reactions to Lyrica, and now take Neurontin, same type of drug, but its been around longer, and it really does help me. I wonder why he doesn't offer it to you?? I'm so sorry you have to go through this pain without any help.

Sunshine...I have been on Neurontin and it didnt help. As for finding another rhemy, he is the only one in all 5 clinic's here in my town. SO there is no way i can find a new one my ins. will cover.

Listen to me ok? I have had this illness for over 20 years and did not know it. I finally got dx in 07. I have pain at times to where it is difficult for my pelvis to support my legs and I have to use crutches.

It is imperative that you STRETCH your pain out. We have tight tissue called myofascia and until you stretch those muscles out, you will not get relief. I also have a foam roller that I lie on to release the tension from the muscles that align my spine.
Doctors do not know about our non medicinal therapies but occupational therapists do. In my Oct 7 journal you will see a lot of pain remedies that I use that work great.
There is NO magic pill that makes your pain disappear. It might help temporarily but it will not get to the root of the problem.

Fibro fog has moved in and I can think of no answers for you. Hopefully someone else will have some ideas. In the meantime, I'll keep you in my thoughts and prayers. Gentle hugs....

I would find and print all the Lyrica warnings you can find online...even go so far as going to Lyrica comments that patients leave online...google lyrica comments....the 1st one on the top is the best I have found.

I would print these and take them to him.

Or I would find another rheumy and fire this quack.

Nobody should be FORCED to take 1 single drug just because the doc swears by it...Lyrica is NOT for everyone and as a doc, he should KNOW this!!

I am mad FOR you, dear! I wish I could slap him upside the head.

NOW....in the meantime, can you get to your local urgent care and compain about one or two of your most significant pain symptoms and possibly get a temprorary rx for the pain until you can find a new doc??

I hope you find reief soon, hon.

Hugs and prayers

Oh i would defitnly call another dr. I mean, your telling him you cannot take the Lyrica and he keeps shoving it in your face, thats just not right at all. I would open the phone book and call a listing and ask if the dr sees and treats patients w/ fibro and ask to get an appt asap. Your dr should really give you something. I know how frustrated u must be right now. Hang in there enough to get another dr cause the one u have now is not do anything to help you. Hang in there.

please excuse my typos...sigh

Necie...I stretch all the time, and i have my DH help me when the pain gets bad. I really wish that thre was another rhuemy i could go to. As for going to an urgent care they will do nothing for me I would have to go to the ER and that is an even biger dr bill i soo dont need. lol.....I am trying to do all the stretching and medatating...but they can only take me so far in pain relief.

Why can't your PCP rx you anything? Something??

If you have the diagnosis of fibro, your pcp should be able to assist you with an rx and even a new referral to some other doc.

It was actually my Neuro who diagnosed me and is treating me even tho he says he doesnt usually treat fibro patients...but at the same time he is watching and monitoring me for MS...maybe that is why he is not referring me out just yet.

Can you see a neuro....someone??

I understand urgent care would likely just say go to the ER, but maybe you can downplay it enough to get an rx??? i dont know.....I am scrambling to come up with an idea. Maybe go, give it a shot...your doc office is likely closed by now (pcp)...just say you will follow up on monday??? I dont know....

I would go to your pcp next week and demand some other referral....pain clinic? Something.

Im so sorry, dear that you are going thru all this.

hugs

Danie you know what else helps me immensely? Swimming and hot tub therapy. The heat forces those muscles to relax so they give you a break.
Girlfriend if I were there, I would massage you down with my Homedics, have you do the tennis ball and roller therapy and you would want to keep me forever lol
I did a massage on the leader of my fm support group...now when I go to her house she makes comments like...I sure wish you had your massager with you lol
I had professional massage done and it was HEAVEN

I know what you have been going through. The doctors here are the same way. And the pain clinic was a bigger joke. They kept pushing methadone. Of all things just something else to get addicted to. They kicked me out when I said I wouldn't try the darned stuff. Well I finally gave in and tried it through my regular doctor and it mad me so sick I thought I was going to die. I was on it for about four months and the withdraws were even worse then the darned methadone!! I can't even get my doctor to send me to a rhuemy. And I have to have a referal to go see one. I know how you feel about the Lyrica I was in such high hope when it first came out and I had so many side effects including the swelling around the my entire face. I was lucky there my doctor took me off of it as soon as he saw how bad it was. I am like the other I wish there as something I could offer other then the streching. I know I do take three or four hot baths a day just to get a little bit of relief. It seems the moist helps helps more then just a heating pad. I hope you feel better and soon.

swelling is So Common with this DRUG...how the Hell do they Expect you to take it when it does that ??

Remind your Dr. of his Oath "First Do No Harm" and walk out the door...it will give him a little something to Chew on...

I Cannot take pain meds...they make me sick to my Stomach, and really don't do anything for me that taking 1 Ibuprophen and 1 Tylenol don't do...I take one each, and it backs the pain off Enuff so I can get on with my damn day...

I am So Sick Of Dr.s...THIS is Exactly the Issues I have with them...and Why No One will touch me now...they go Off, thinkin they are somehow GOD...and give you no real relief...just ALOT of money spent and Alot of Time wasted with these damn types of Dr.s...

I wish I could help you somehow...I wish I knew of a magic pill, therapy to get ya thru...don't back down from them is ALL I Can say...you have to be your Own Advocate...Dr.s are losing the Respect they Once held Automatically just by having "Dr." in front of their name.

I second Necie's recommendation. There's a book on working out myofacial pain - it stretches the muscles yes, but so much more than that, it breaks up little fiber knots that can cause so much achiness in the muscles AND the joints and ligaments.

Before I was dx'd with Lyme, I had been dx'd with Fibromyalgia. I truthfully think I likely have both.

Ping me if you're interested in info about the book, I bought it off Amazon for < $30.

Well, it does sound like you are in a tough spot. Your PCP can write for Ultram, maybe and a number of NSAIDs? My best fibro care did not come from a rheumy, it came from a fibro clinic with Occup. therapist, nurse specialists, physical therapist. If you are in this much pain, I have to ask how your sleep is. That's the #1 enemy of fibro. Have you had a sleep study with a sleep specialist? I developed a sleep disorder over the course of about 2 yrs. It is very subtle and mine is a mild case. I didn't even know I had a problem. But pain levels went up and up, fatigue went through the roof, finally heart palpitations got doc's attention after a year of complaining. We are still working on getting the machine settings and mask right, but the difference is dramatic. In the meantime, I continue to take d-ribose which helps with fatigue and pain and I resorted to acupuncture for pain because I have to function, drive, work. It took a little while, but it does help. I hope you can get this resolved.

My pcp dr does not prescribe narcotics either. So I asked for a referal to a pain management doctor. He was a godsend. He is very open to trying different meds to find the right one for me. Im currently on percocet 10mg/325mg 2 time daily, oxycontin 20 mg 2 time a day, zanaflex 4 mg 3 times a day and mobic 7.5 mg daily. It helps tremendously. I would ask for a referral to a dr who will treat your pain. Also check with your insurance. Some do not require referrals and you can refer yourself.