I have certainly learned much about this disease and have much more to learn. I have found that what works for some with this disease does not work for others. I have learned that his is a very difficult disease to live with attacking all parts of my body. My body becomes not so dependable and very unreliable at times... I have learned that I do what I can each day and I stay focused on that and not what I can not do. I have learned that it is not in my head, stress does not cause it, depression does not cause this, and that people do not understand. I do know that these circumstances can aggravate this disease... very badly.... I know that this disease can bed ridden you. I know that people are cruel and mean , if you tell them you have this and they treat you badly. And they are out there, then when they are sick and need help , the shoe is on the other foot.... I feel for people with this disease and I hope and I pray for a cure... I worked for 2 years and three months before our store closed. I kept ( may sound strange) the Hidding Place in my mind and that is the way I felt at times because of this disease- as if I was in a concentration camp. I have to work,I tried for my disbility and was denied... I needed help so bad..... It wasn\'t there, I didn\'t choose this disease, it chose me for some reason... I have a dear friend that told me her alcoholic- brother-in law got his disablity and bought new vehicles and now I understand her anger... A state rep helped him get it... He with help after help continued to choose his alcohol, killing his body... and he got his disablity..... I understnad her and her husbands frustration now... I really do.... I fight and I do everything that I can to help myself, to take care of my body and nuture it back to health. I struggled and nobody nows how much pain I have been in but me to work. I live in an apartment complex with some idiots that have no respect for themselves or anyone else. They slam doors and treat people awful, as you all know this does not help this disease.... Because of what has happened to me here at this complex at times I did not know whether I would make it in to work or not the next day. You that have Fibro know what I am speaking of and what the noise and slamming things around and such as doors does to your body... I prayed everyday God help me get to work tomorrow. There were days that I was so bad that I missed work because of them.... These people\'s day will come... and I tell you I hope soon , so that they will not continue through life hurting other people stricken with disease..... My chest goes in to pain, my heart flutters, and then to bed I go...... how can any one be so cruel to another human being and be human... I live in this,,,,,, day in day out... I have told them, I have a disease, please do not slam the doors... it does no good what so ever,,,, You are not alone knowing the pain, the frustration, and the hurt from this disease... You are not alone.... I PRAY THIS YEAR THERE WILL BE PROGRESS IN THIS DISEASE- I PRAY THAT DOCTORS UNDERSTAND AS WELL AS FAMILY MEMBERS - I PRAY THAT WE TOGETHER GET THROUGH THIS AND SOME HOW MANAGE NOT JUST TO SURVIVE BUT TO LIVE AGAIN. THERE ARE MANY THINGS THAT CAN HELP THIS DISEASE-EATING DIFFERENTLY , LESS STRESS, CALM ATMOSPHERE, BUT THERE IS NO CURE.......
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