Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi everyone...
last June after comeing to fully Understand that people just do not understand I started to keep a Journal...
Month by Month...everyday I write in Just how I am feeling...symptoms...how dabilitateing it is..how it is affecting my ability to do the things I need to do that day...and alot of times I eneter several things a day...at the very beginning of this Journal I have written my "Head To Toe" symptoms list...anything that plagues me on a regular basis...from headaches to the raynauds in my toes...
We FEEL bad about Feeling bad....Why is that ??
we cannot hope that everyone else Understands something that we ourselves do not even Understand....we get mad about someone getting frustrated when we ourselves get frustrated with this damn DIS-EASE !!!
We NEED to STOP !!
this is something that will probably be with us for the very rest of our Lives...
I have Stopped trying to explain anything to anyone...the biggest reason is i am aware I might just wear them down with all my pain...
I make No Aplolgies for me haveing to Now say NO from time to time...it is just the way it Now is...I have to deal with it...and I cannot deal with it alone...I need help...either emotional or someone to just give me a damn hand from time to time...
this site has helped SO very much with the EMOTIONAL things...I have someone to talk to that I do not NEED to explain the WHYs of it all.....so I no longer NEED to Bombard my family and friends with it everydamnday...
I had an appointment with my Dr. last week...a physical....I sent a copy of my journal for that month to him in advance...he looked at me when he sat down and said....."Do You REALLY feel this way all the TIME ??"...I said "yes...now can you help me please"...I told him my biggest FEAR is that Now that I have been Diagnosed with FM/CFS that every symptom I have will be shoved into THAT catagory....and we may Miss something that could easily be fatal...after all...had I been diagnosed with FM before 2004...my Blue toes would have been pushed off as simple raynauds...and a Clot that was blocking my abdominal Aorta 100 percent would Not have been caught in time....all the symptoms i had were among the symptoms of FM...
he agreed...and is Now in the process of running a huge amount of tests....just to check everything out...
keep a journal....for your OWN peace of mind...has done wanders for me.
Bonnie
last June after comeing to fully Understand that people just do not understand I started to keep a Journal...
Month by Month...everyday I write in Just how I am feeling...symptoms...how dabilitateing it is..how it is affecting my ability to do the things I need to do that day...and alot of times I eneter several things a day...at the very beginning of this Journal I have written my "Head To Toe" symptoms list...anything that plagues me on a regular basis...from headaches to the raynauds in my toes...
We FEEL bad about Feeling bad....Why is that ??
we cannot hope that everyone else Understands something that we ourselves do not even Understand....we get mad about someone getting frustrated when we ourselves get frustrated with this damn DIS-EASE !!!
We NEED to STOP !!
this is something that will probably be with us for the very rest of our Lives...
I have Stopped trying to explain anything to anyone...the biggest reason is i am aware I might just wear them down with all my pain...
I make No Aplolgies for me haveing to Now say NO from time to time...it is just the way it Now is...I have to deal with it...and I cannot deal with it alone...I need help...either emotional or someone to just give me a damn hand from time to time...
this site has helped SO very much with the EMOTIONAL things...I have someone to talk to that I do not NEED to explain the WHYs of it all.....so I no longer NEED to Bombard my family and friends with it everydamnday...
I had an appointment with my Dr. last week...a physical....I sent a copy of my journal for that month to him in advance...he looked at me when he sat down and said....."Do You REALLY feel this way all the TIME ??"...I said "yes...now can you help me please"...I told him my biggest FEAR is that Now that I have been Diagnosed with FM/CFS that every symptom I have will be shoved into THAT catagory....and we may Miss something that could easily be fatal...after all...had I been diagnosed with FM before 2004...my Blue toes would have been pushed off as simple raynauds...and a Clot that was blocking my abdominal Aorta 100 percent would Not have been caught in time....all the symptoms i had were among the symptoms of FM...
he agreed...and is Now in the process of running a huge amount of tests....just to check everything out...
keep a journal....for your OWN peace of mind...has done wanders for me.
Bonnie
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
Sandra