Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I was just thinking, as always, that with all of this pain and fatigue I am going to college for something that I might not be able to do. I am getting ready to start my clinical sessions in 2 semesters for nursing school. I hate this disease, it takes to your dreams and goals from you. It hurts just to work but I have to pay the bills. I am thinking hard about trying to find some sort of stay at home job that's not a scam.
For the first time all weekend I am not hurting and I actually got half the day off. So, I started working on my term paper that is due in one week. That Brainfog had to show up. So I came to my favorite place now DS, where there are people who understand me.
The emotions have been running kind of high the past few days. I don't know if anybody else feels that no body wants to be around them. Even if it's not so. The other night I told my fiance that he was trying to get away from me when he said that he was going to a friends house after work. I knew it wasn't true because he came home first to make sure that I didn't need anything and had taken something for pain. I did apologize, I think that fibro is just as hard for him to see me go through as it is for me.
Sorry for the long post. I told you I was venting.
Kandy
For the first time all weekend I am not hurting and I actually got half the day off. So, I started working on my term paper that is due in one week. That Brainfog had to show up. So I came to my favorite place now DS, where there are people who understand me.
The emotions have been running kind of high the past few days. I don't know if anybody else feels that no body wants to be around them. Even if it's not so. The other night I told my fiance that he was trying to get away from me when he said that he was going to a friends house after work. I knew it wasn't true because he came home first to make sure that I didn't need anything and had taken something for pain. I did apologize, I think that fibro is just as hard for him to see me go through as it is for me.
Sorry for the long post. I told you I was venting.
Kandy
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This has never not worked here...And, this will be my last attempt at contact here . I have NO other contact info. I love you Always will.So.. here goes..Please, I need you guys.Luvnhugsjc
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Hi all! This is for those of you that have or have had the same neurologist for 4 years or more. I have been with mine now since 2009. He is one of the best movement disorder secialists in the midwest. I know he is extremely busy on the lecture circuit now and in fact not taking new patients there is a huge waiting list for him. BUT.... I feel like my visits are not what they use to be. He...
First off..kudos for going to college!
Second,
Your boyfreind is going through this with you. It was very sweet of him to check on you, before he went anywhere. I have learned to just allow the man in my life free time away from me..but he stays up my butt all the time, anyway. I tell him to go, but he doesn't like to go without me. Sometimes I wish he would!
Last night I wrote a letter to my boyfriend and gave him a card asking him to please be patient with me because I also had to "vent", we haven't had much time together lately because I've been so sick and I was bad at ME, FIBRO, MONO, CFS,and my newly diagnosed heart condition.
I hope he is good is and considerate as your boyfriend.
I think when we are really ticked off from this illness and explode, its good later to apologize, even if you know the person understands. I think because if both parties are trying it makes the sitch much better. My husband is always so worried about me and I feel bad for him because he feels so helpless. He is also ill and I feel helpless sometimes too. But keep trying and keep communication open ALWAYS. If the person truly cares, they will always be there for you!
HUGS
JBEAN
I couldnt do neither of the above.
But i have to say for me, my meds gets me out of bed and thru the day so that i can go to work and function most days. I still have pain daily and all day long but i can go to work and do other things. I am not on my feet all the time at work, but somedays i am.
You have to out way the good to the bad to decide what is best for you
But you are here, because you sought answers and relief. that shows me you have the skills to survive with this and reach your goals. Beleive in yourself, you will be able to rise to the challenge.
It is a confusing disease for others to see, they just dont understand, so try to be patient with him, I'm sure that he loves you and sounds like he is really concerned.....Love you.....Helen
Yes everything is much harder and requires more effort but that doesn't mean you can't still achieve.
You may have to modify your plans a little and work a little slower than most, but you'll get there and by Gawd you'll appreciate it when you do :-)
xxx
This is something you might wish to consider.
hugs